Massachusetts Down Syndrome Congress (MDSC)

Massachusetts Down Syndrome Congress (MDSC) Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Massachusetts Down Syndrome Congress (MDSC), 20 Mall Road, Ste 261, Burlington, MA.
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The Massachusetts Down Syndrome Congress (MDSC) works daily to ensure that individuals with Down syndrome in Massachusetts are valued, included, and given the opportunities to pursue fulfilling lives.

TEAM MDSC runner Carlie Siegel didn't just finish the 2026 Boston Marathon โ€” she finished it as the final official finis...
04/22/2026

TEAM MDSC runner Carlie Siegel didn't just finish the 2026 Boston Marathon โ€” she finished it as the final official finisher of the entire race! ๐Ÿ’™๐Ÿ’›

Carlie's journey from Hopkinton to Copley Square on Monday was not easy, but she persevered.โ€œYou're walking, but you're moving forward and you're still moving,โ€ she said. โ€œYou're going to finish. You're going to cross that finish line."

She's now just under $300 shy of her fundraising goal. Help her finish that too! ๐Ÿ‘‡ givengain.com/project/carlie-raising-funds-for-massachusetts-down-syndrome-congress-111824


https://www.runnersworld.com/news/a71088131/final-finisher-boston-marathon-2026/

Carlie Siegel crossed the line in the nick of time on Marathon Monday to get under the 5:36 p.m. cutoff time.

Spots are still open! Join fellow MDSC dads for our next virtual support group TOMORROW evening to connect and share! ๐Ÿ’›
04/21/2026

Spots are still open! Join fellow MDSC dads for our next virtual support group TOMORROW evening to connect and share! ๐Ÿ’›

So grateful for the chance to come together ahead of race day with some of our incredible MDSC marathon runners! ๐Ÿ’™๐Ÿ’› It w...
04/18/2026

So grateful for the chance to come together ahead of race day with some of our incredible MDSC marathon runners! ๐Ÿ’™๐Ÿ’› It was amazing to feel the energy in the room - everyone is so motivated and ready - and to meet so many of the family members and supporters cheering them on every step of the way.

We canโ€™t wait to celebrate and support this inspiring group on Marathon Mondayโ€ฆ stay tuned for details tomorrow on where to find us on Heartbreak Hill at our MDSC tent! ๐Ÿƒโ€โ™‚๏ธ๐Ÿ‘

TEAM MDSC BOSTON MARATHON SPOTLIGHT | Meet Lindsay Mann Mittura ๐Ÿ’™๐Ÿ’›Lindsay is running the 2026 Boston Marathon for the MD...
04/17/2026

TEAM MDSC BOSTON MARATHON SPOTLIGHT | Meet Lindsay Mann Mittura ๐Ÿ’™๐Ÿ’›

Lindsay is running the 2026 Boston Marathon for the MDSC in honor of her daughter Mia and Mia's twin brother, Jude. Mia was born with the SUPERPOWER of Down syndrome โ€” and Lindsay's family sees that diagnosis as a beautiful gift that has changed them in all the best ways.

Mia has faced her share of medical challenges along the way, and through all of it she has shown remarkable strength and determination. As Lindsay puts it: "I am running for Mia and her friends of all abilities to share just how extraordinary individuals with Down syndrome are!"

Want to cheer Lindsay and the rest of Team MDSC across the finish line? Join us on Marathon Monday! We'll be set up between Miles 17 and 18 on Commonwealth Ave, across from Brae Burn Country Club in West Newton, starting at 10AM. Just a 15-minute walk from Woodland Station on the Green Line โ€” we'll have snacks, cowbells, and plenty of team spirit. Email race@mdsc.org for more details.

๐Ÿ‘‰ Support Lindsay's run: givengain.com/project/lindsay-raising-funds-for-massachusetts-down-syndrome-congress-114544

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TEAM MDSC BOSTON MARATHON SPOTLIGHT | Meet Debbie Sutter ๐Ÿ’™๐Ÿ’›Debbie Wong Sutter is running the 2026 Boston Marathon for th...
04/16/2026

TEAM MDSC BOSTON MARATHON SPOTLIGHT | Meet Debbie Sutter ๐Ÿ’™๐Ÿ’›

Debbie Wong Sutter is running the 2026 Boston Marathon for the MDSC โ€” and this isn't her first time. Debbie also ran for Team MDSC in 2024, and she's back for more.

Debbie is running in honor of her brother, "Captain" Edward. Thanks to inclusive programs and advocacy organizations like MDSC, Edward never faced the challenges of growing up with Down syndrome alone โ€” and the results speak for themselves. As Debbie describes it: "These support systems opened doors: helping him graduate high school, build real independence, and land a full-time job at Walmart that he's incredibly proud of and has enjoyed every single day."

Edward's story is exactly what MDSC's programs make possible โ€” and Debbie is running to ensure that more individuals with Down syndrome have the same opportunities, independence, and bright futures.

๐Ÿ‘‰ Support Debbie's run: givengain.com/project/debbie-raising-funds-for-massachusetts-down-syndrome-congress-112740

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TEAM MDSC BOSTON MARATHON SPOTLIGHT | Meet Joshua Komyerov  ๐Ÿ’™๐Ÿ’›Josh is running the 2026 Boston Marathon for the MDSC โ€” an...
04/15/2026

TEAM MDSC BOSTON MARATHON SPOTLIGHT | Meet Joshua Komyerov ๐Ÿ’™๐Ÿ’›

Josh is running the 2026 Boston Marathon for the MDSC โ€” and after 15 years on staff as Deputy Director of Communications & Operations, this one is personal.

For Josh, running 26.2 miles on April 20th is a way to put his whole self behind the mission he has spent 15 years advancing. He's running for too many friends and families to name as well as the other 8,000 individuals with Down syndrome across Massachusetts.

As Josh puts it: "For me, running the Boston Marathon as a member of Team MDSC feels like the culmination of my life's work โ€” advocating for the acceptance and inclusion of individuals with disabilities at an organization that has become my second family."

Josh also had the privilege of knowing founder Susan Hurley since his earliest days at MDSC โ€” a small but mighty force with a big personality who could energize any room. He'll be carrying her spirit on every mile of April 20th.

๐Ÿ‘‰ Support Josh's run: givengain.com/project/joshua-raising-funds-for-massachusetts-down-syndrome-congress-111294

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TEAM MDSC BOSTON MARATHON SPOTLIGHT | Meet Alden Huang ๐Ÿ’™๐Ÿ’›Alden is running the 2026 Boston Marathon for the MDSC โ€” and fo...
04/14/2026

TEAM MDSC BOSTON MARATHON SPOTLIGHT | Meet Alden Huang ๐Ÿ’™๐Ÿ’›

Alden is running the 2026 Boston Marathon for the MDSC โ€” and for this Babson College senior from Wellesley, the connection to our mission runs deep.

Alden's mother Clare served on the MDSC Board of Directors, and he has volunteered at MDSC events including the Buddy Walk. He also has a cousin, Cameron, with Down syndrome, who lives in Canada. As Alden puts it: "I really wanted the opportunity to run for an organization that brings attention and opportunity to great people like Cameron."

A standout high school runner who captained his cross-country team and competed at New England Nationals, Alden stepped away from the sport after graduation before rediscovering what running gave him. As he describes it: "It gave me a break from my work, a chance to [relieve] any pressure in a productive manner, and kept my mental and physical health intact." Now he's channeling that back into 26.2 miles for a cause close to his heart.

๐Ÿ‘‰ Support Alden's run: givengain.com/project/alden-raising-funds-for-massachusetts-down-syndrome-congress-114601

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TEAM MDSC BOSTON MARATHON SPOTLIGHT | Meet Annie Murphy ๐Ÿ’™๐Ÿ’›We're thrilled to have Annie running the 2026 Boston Marathon ...
04/13/2026

TEAM MDSC BOSTON MARATHON SPOTLIGHT | Meet Annie Murphy ๐Ÿ’™๐Ÿ’›

We're thrilled to have Annie running the 2026 Boston Marathon for the MDSC โ€” this isn't her first time running for our team, having previously run the Falmouth Road Race with Team MDSC.

Annie was introduced to MDSC through Ned Reichenbach, a member of MDSC's Self Advocate Advisory Council. Through their shared involvement, she has seen firsthand the impact the organization has on individuals with Down syndrome and their families โ€” and that connection has stayed with her.

As Annie puts it: "Running for this team isn't just about crossing the finish line โ€” it's about helping to spread awareness and celebrate a community built on acceptance, understanding, and love."

๐Ÿ‘‰ Support Annie's run: givengain.com/project/annie-raising-funds-for-massachusetts-down-syndrome-congress-119073

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Reminder! TONIGHT is our final webinar in the Foundations for Families Series ๐Ÿ’™Medical Updates for Children and Adolesce...
04/13/2026

Reminder! TONIGHT is our final webinar in the Foundations for Families Series ๐Ÿ’™

Medical Updates for Children and Adolescents with Down Syndrome with Dr. Meredith Close

Register here: https://mdsc.zoom.us/webinar/register/WN_KQASlRuwScadhGzkpC9H0A #/registration

Register now for our final webinar in the Foundations for Families Series: Medical Updates for Children and Adolescents with Down Syndrome with Dr. Meredith Close

๐Ÿ’› Monday April 13, 7pm ET on Zoom.

๐Ÿ’™ Register here: https://mdsc.zoom.us/webinar/register/WN_KQASlRuwScadhGzkpC9H0A #/registration

๐Ÿ’› $10 fee

๐Ÿ’™ If you are not able to attend live, you can register to receive a recording of the webinar.

๐Ÿ’› Questions? Email Katie at FirstCall@mdsc.org

TEAM MDSC BOSTON MARATHON SPOTLIGHT | Meet Carlie Siegel  ๐Ÿ’™๐Ÿ’›Carlie is running the 2026 Boston Marathon for the MDSC โ€” an...
04/11/2026

TEAM MDSC BOSTON MARATHON SPOTLIGHT | Meet Carlie Siegel ๐Ÿ’™๐Ÿ’›

Carlie is running the 2026 Boston Marathon for the MDSC โ€” and we are so grateful to have her on Team MDSC this year!

Carlie is among a remarkable group of 10 runners who will take on 26.2 miles from Hopkinton to Copley Square on April 20th, each one running to support individuals with Down syndrome and their families.

Together, this team has raised nearly $140,000 toward their collective goal of $150,000 โ€” and every dollar makes a real difference.

Carlie and the entire Team MDSC crew have been supported every step of the way by our partners at CharityTeams, who have coached and guided our marathon runners for more than 15 years.

Want to help Carlie cross the finish line strong?

๐Ÿ‘‰ Support Carlie's run: givengain.com/project/carlie-raising-funds-for-massachusetts-down-syndrome-congress-111824

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Hi! Iโ€™m excited to share that Iโ€™m raising funds for the Massachusetts Down Syndrome Congress, an incredible organization dedicated to supporting individuals with Down syndrome and their families. As an official charity of the Boston Marathon, they make a significant difference in our community b...

Address

20 Mall Road, Ste 261
Burlington, MA
01803

Opening Hours

Monday 7am - 5pm
Tuesday 7am - 5pm
Wednesday 7am - 5pm
Thursday 7am - 5pm
Friday 7am - 5pm
Saturday 8am - 5pm
Sunday 10am - 5pm

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The Premier Resource for Down Syndrome Info, Networking & Advocacy in MA and beyond

The MDSC strives to ensure all individuals with Down syndrome in Massachusetts are valued, included, and given opportunities to pursue fulfilling lives by providing information, networking opportunities, and advocacy for people with Down syndrome and their families, educators, health care professionals, and the community-at-large.

The MDSC was founded in 1983 when parents met in a living room to share information about their children, provide support for each other and strategize how to educate their families, schools and communities. More than three decades later, the MDSC has over 3,500 members, an energetic Board of Directors, a dynamic management team, and a vision to ensure that every person with Down syndrome has the opportunity to reach his or her full potential.

Today, with our wealth of connections and expertise, the MDSC is prepared to meet the needs of all our families on a number of levels through longstanding, proven programs and bold new initiatives. The MDSC offers a broad array of programs to serve people with Down syndrome and their families throughout the state, including: our signature Parent's First Call Program, a volunteer, state-wide group of trained parent mentors available 24/7 that is a national model; two major annual conferences and an adult conference, which draw national and international experts in their fields; a Buddy Walkยฎ Program that includes 3 Buddy Walks throughout the state; our Your Next Star employment initiative, which is opening the eyes of employers to the value of employees with Down syndrome; Self-Advocate Programs like Advocates in Motion and our Self-Advocate Advisory Council, which provide opportunities for teens and adults with Down syndrome while making empowerment a central component; and our public policy program, which has passed major legislation on the state level and been a leader nationally.