Carolina Institute for Developmental Disabilities

Carolina Institute for Developmental Disabilities The CIDD is a comprehensive program for services, research, and training relevant to individuals wit

The Carolina Institute for Developmental Disabilities in the UNC School of Medicine was established July of 2007 to provide the citizens of North Carolina with world class services, research, and training for individuals with developmental disabilities and their families. The Institute is one of only a small number of comprehensive centers for developmental disabilities in the United States that bring together three federally-funded programs of national significance – the UCEDD, LEND, and IDDRC programs.

Congratulations to Dr. Diana Cejas, Associate Professor of Neurology and Dual appointment with the CIDD, who was honored...
12/03/2025

Congratulations to Dr. Diana Cejas, Associate Professor of Neurology and Dual appointment with the CIDD, who was honored with the 2025 AMWA Inspire Award by the American Medical Women’s Association (AMWA)!

Celebrating 47 women physicians recognized for inspiring others to impact the culture of medicine. The American Medical Women’s Association (AMWA) is proud to announce the recipients of the 2025 AMWA […]

In honor of International Day of People with Disabilities Exceeding Expectations with Kenneth Kelty is bringing back one...
12/03/2025

In honor of International Day of People with Disabilities Exceeding Expectations with Kenneth Kelty is bringing back one of the his podcast's earliest episodes from 2021 with Lia McNeilly and her daughter Neave talking about being brought up with a disability in Northern Ireland.

In this episode, Kenneth interviews Lia and Neave McNeilly who are mother and daughter about what it is like to live with a disability in Northern Ireland, compared to the US.

CIDD Community Talk Webinar presents Parenting with a DisabilityWednesday, December 10 @ 12:00 NoonJoin a panel of paren...
12/03/2025

CIDD Community Talk Webinar presents Parenting with a Disability
Wednesday, December 10 @ 12:00 Noon

Join a panel of parents with disabilities as they discuss being a parent in an "Able-Centric" environments. This panel will be led by Chris Hendricks, musician, advocate and parent with lived experience.

Register in advance for this series:

Talks on resources, research and experiences presented for the IDD Community by the UNC Carolina Institute for Developmental Disabilities.

Laura Klinger, PhD, of psychiatry, and Jason Stein, PhD, in genetics, together with CIDD Director, Joseph Piven, MD, in ...
10/15/2025

Laura Klinger, PhD, of psychiatry, and Jason Stein, PhD, in genetics, together with CIDD Director, Joseph Piven, MD, in psychiatry, received two $4 million grants to study the root causes and improve therapies to help autistic people live happier and healthier lives.

Laura Klinger, PhD, of psychiatry, and Jason Stein, PhD, in genetics, together with Joseph Piven, MD, in psychiatry, received two $4 million grants to study the root causes and improve therapies to help autistic people live happier and healthier lives.

El Consejo Presenta:Serie de videos de la ADA para comunidades de habla hispanaJueves 25 de septiembre de 20251:00 - 2:0...
09/23/2025

El Consejo Presenta:
Serie de videos de la ADA para comunidades de habla hispana

Jueves 25 de septiembre de 2025
1:00 - 2:00 PM vía Zoom

————————

The Council Presents:
ADA Video Series for Spanish-Speaking Communities

Thursday, September 25, 2025
1:00 - 2:00 PM via Zoom

Email from NC Council on Developmental Disabilities Una serie educativa mensual para personas de la comunidad. View as Webpage El Consejo Presenta: Serie de videos de la ADA para comunidades de habla

The NC Fragile X Foundation Board will be hosting their annual Family & Friends Picnic on October 11th, 2025. Time is 11...
09/05/2025

The NC Fragile X Foundation Board will be hosting their annual Family & Friends Picnic on October 11th, 2025. Time is 11am-4pm. Rain or Shine! Please RSVP at the link below by Oct 3:
https://www.zeffy.com/en-US/ticketing/fragile-x-2025-picnic
Meet us at the Lake Mackintosh Clubhouse to check in when you arrive!
Lake Mackintosh Park
2704 Huffman Mill Road
Burlington, NC 27215

Questions? Contact Tim Field at timfield2@gmail.com
or 919-548-9760

The NC Fragile X Foundation Board is pleased to host our annual Family & Friends Picnic. Join us for a day to reunite and gather with our NC Fragile X community!WHAT TO EXPECT:Catered BBQ Lunch (with Vegetarian and kid-friendly options)Scenic and Peaceful Location on the LakeFriendly Faces, both...

FREE Webinar: NC ABLE – Eligibility, Benefits, and FeaturesDate & Time Sep 22, 2025 12:00 PM Eastern Time The presentati...
08/28/2025

FREE Webinar: NC ABLE – Eligibility, Benefits, and Features
Date & Time Sep 22, 2025 12:00 PM Eastern Time
The presentation focuses on the ABLE account eligibility, account features and benefits of owning an ABLE account. ABLE accounts provide tax- advantaged savings and investment accounts for people living with a disability without jeopardizing other means-tested public supports. Register at the link below:

The presentation focuses on the ABLE account eligibility, account features and benefits of owning an ABLE account. ABLE accounts provide tax- advantaged savings and investment accounts for people living with a disability without jeopardizing other means-tested public supports. Who is eligible for AB...

https://conta.cc/46co5woWhen the School Bus Stops Coming: Preparing Youth with Disabilities & Their Caregivers for the R...
08/27/2025

https://conta.cc/46co5wo
When the School Bus Stops Coming: Preparing Youth with Disabilities & Their Caregivers for the Road Ahead
Exceptional Children's Assistance Center FREE In-Person Transition Event! Saturday, September 27, 2025 9 am to 4:00 pm Pine Lake Prep 104 Yellow Wood Circle, Mooresville, NC 28115
Register before Sept 1. Click on link below:
https://conta.cc/46co5wo

Email from Exceptional Children's Assistance Center FREE Transition Event! Saturday, September 27, 2025 9 am to 4:00 pm Pine Lake Prep 104 Yellow Wood Circle, Mooresville, NC 28115 A Free In-Person Tr

https://appwell.appstate.edu/outreach/growingwell/conference/Important NC Developmental Disabilities Conference October ...
08/27/2025

https://appwell.appstate.edu/outreach/growingwell/conference/
Important NC Developmental Disabilities Conference October 12-14!
The North Carolina Council on Developmental Disabilities is excited to partner with the Appalachian Institute for Health and Wellness at Appalachian State on a conference focused on raising children and youth with developmental disabilities and other disabilities throughout their lifetime. Scholarships for individuals with intellectual and other developmental disabilities and family members are available for registration (and a limited number for travel).

2025 Growing Well Conference: “Moving Mountains and Community”
Presented by AIHW Community Outreach and Education

October 12-14, 2025 | Leon Levine Hall of Health Sciences
Boone, NC
The Conference is for: Family Members, People with Developmental Disabilities, Professionals, and Advocates!
SCHOLARSHIPS AVAILABLE! Family members and individuals with I/DD can apply for scholarships. There are a limited number of scholarships for registration and for travel to the conference for those more than three hours away from Boone.
Topics will include:
• Medical management of children with complex health conditions
• Evidence-based behavioral therapies
• Cross-system collaboration in child welfare and mental health
• Supporting youth through transitions from school to adulthood including employment and other opportunities
Go here to Learn More and Register!

The Appalachian Institute for Health and Wellness connects App State to the community by supporting research, interprofessional clinics and community outreach.

WEBINAR: Medicaid is Changing —What Does it Mean for You?Date: September 4, 2025 Time: 7:00-8:00pmWhat to Expect:-Clear...
08/25/2025

WEBINAR: Medicaid is Changing —What Does it Mean for You?
Date: September 4, 2025 Time: 7:00-8:00pm
What to Expect:-Clear explanations of Medicaid changes-How these affect families-Q&A with panel of experts
Register at link below: https://us02web.zoom.us/webinar/register/WN_2r4D7A1XSluVy3tLOlUu4Q #/registration
Who Should Attend: Families• Self-advocates • Caregivers & Providers, Foster, Adoptive, and kinship caregivers, including families supporting loved ones with disabilities across the lifespan

Welcome! You are invited to join a webinar: Medicaid is Changing —What Does it Mean for You?. After registering, you will receive a confirmation email about joining the webinar.

Every five years, the North Carolina Council on Developmental Disabilities (NCCDD) creates a Five-Year State Plan. This ...
08/14/2025

Every five years, the North Carolina Council on Developmental Disabilities (NCCDD) creates a Five-Year State Plan. This plan helps guide its work and decide which projects to fund to improve services and supports for people with intellectual and developmental disabilities (I/DD) in North Carolina.

To make the state plan, NCCDD looks closely at what people with I/DD in North Carolina need by asking for input to better understand what matters to them, their families and their local communities. We gather input in two ways: through an online survey and through in-person and virtual listening sessions. Then, the Council puts together a plan that includes clear goals, steps to reach those goals, and actions to create positive change to promote self-determination, integration, productivity, inclusion and independence.

You can be part of helping NCCDD define its goals for the next five years by visiting NCCDD – Five-Year State Plan and providing input!

The North Carolina Council on Developmental Disabilities works with others across the State to make sure people with intellectual and developmental disabilities (I/DD) and their families have access to community services, individualized supports, and other forms of assistance.

Address

101 Renee Lynn Court
Carrboro, NC
27510

Opening Hours

Monday 8am - 5pm
Tuesday 8am - 5pm
Wednesday 8am - 5pm
Thursday 8am - 5pm
Friday 8am - 5pm

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