Lymphedema Advocacy Group / Lymphedema Treatment Act

11/03/2025

A study looking at the use of GLP-1 medications in the treatment of lymphedema is enrolling patients! For details please read that week’s newsletter (https://lymphedemaadvocacygroup.org/glp-1-study-for-lymphedema-is-still-enrolling-patients/).

We are grateful to everyone who participated in our 2025 Lymphedema Coverage Survey. A report outlining the results will be released soon. Last week, I had ...

10/25/2025

We’ve updated our Provider handout. New information is now included under the "What details and clinical notes must be included with the prescription?" section. Please visit our website for details (https://lymphedemaadvocacygroup.org/updated-provider-handout/).

We've updated our Provider handout. New information is now included under the "What details and clinical notes must be included with the prescript ...

10/18/2025

We are saddened to share the news that Joan White, founder of the Lighthouse Lymphedema Network (LLN), passed away earlier this week. Joan was a lymphedema patient and true force of nature whose legacy will live on through the LLN and the many members of the lymphedema community whose lives were improved by her efforts.

Joan’s swelling began after a surgical procedure in 1988. After finding no lymphedema treatment centers in the United States, in 1991 she flew to Germany. After she returned and at her own expense, she helped a therapist become trained in Complete Decongestive Therapy. It became her mission to let other patients know that this treatment was available, and in 1993 she started the Lighthouse Lymphedema Network.

As Joan wrote in The Puzzle: An Inside Glimpse of Lymphedema, "Live your life to serve others, and never think you are alone." May Joan rest in peace knowing that the world, and particularly the lymphedema community, has been immeasurably improved through her service.

For details about her memorial services please go to (https://lymphedemaadvocacygroup.org/remembering-joan-white/).

10/15/2025

The Lighthouse Lymphedema Network (LLN) conference is taking place this weekend in Atlanta, GA, and the International Lymphedema Framework (ILF) conference is taking place next weekend in Niagara Falls, Canada. The registration deadline for virtual attendance at LLN is today, 10/15, and the registration deadline for in-person attendance at ILF is Friday, 10/17. Links to register and get more information are in our newsletter at https://lymphedemaadvocacygroup.org/virtual-lln-conference-registration-deadline-is-today/.

10/12/2025

Our Lymphedema Supplier Directory now has nearly 300 listings! Please check to see if your supplier is included, and if they are not, ask them to join. Suppliers must add their own businesses. It's completely free, and all they need to do is click on the "Register" button at the top of the page, then follow the prompts to create an account. Together, we can help more patients find the best supplier to meet their needs!

Lymphedema Supplier Directory After entering your location search criteria, click on a business name to view detailed information about each supplier, inclu ...

10/08/2025

Do you have insurance-related questions? A great place to start is our FAQ page. You can also find additional information specific to each type of plan under the Insurance tab on the main navigation menu of our website. (https://lymphedemaadvocacygroup.org/insurance/frequently-asked-questions/)

Lymphedema Treatment Act Questions What is the Lymphedema Treatment Act (LTA) and how does it help patients? The Lymphedema Treatment Act (LTA) is a federal ...

10/05/2025

The Center for Medicare Advocacy recently presented a webinar to help current and upcoming Medicare beneficiaries understand their different plan options. A recording is now available. (https://medicareadvocacy.org/navigating-open-enrollment-webinar/)

__________ ___________ Description The Center for Medicare Advocacy’s popular yearly webinar is for anyone dealing with Medicare enrollment. Experts cover the basics surrounding Medicare’s Open Enrollment Period, with an emphasis on considerations for people with longer-term and chronic conditio...

09/29/2025

Just a few days left to take our 5-minute coverage survey and get 15% off your next pair of Pandere Shoes!

Your voice matters—and earns 15% off. Take the 2025 Lymphedema Insurance Coverage Survey (under 5 minutes), open until Sept 30.
How to get your code:
👉 Complete the survey
👉Screenshot the confirmation
👉Email the screenshot to hello@pandereshoes.com
We will reply with your 15% off code
Take the survey now: https://www.surveymonkey.com/r/coverage2025

09/25/2025

There’s just a few days left to add your voice! Our 2025 Lymphedema Treatment Coverage Survey only takes 5 minutes to complete and closes at the end of September. Results will be analyzed in October and published in November, in time to assist patients in choosing their plan for next year. If you haven't completed the survey yet, please do!

Please take this 5-minute survey, which will be open until the end of September. Results will be analyzed in October and published in November, just in time to assist patients in choosing their plans for the upcoming open enrollment period.

09/20/2025

Come visit Franci at our information table if you are in Nashville for the NLN Conference this weekend!

09/18/2025

We’ve recently added an Insurance Appeal Resources page to our website, which is full of valuable information, advice, and links. (https://lymphedemaadvocacygroup.org/insurance-appeal-resources/ ) We encourage you to never take no for an answer! Studies estimate that only about 1% of denied health insurance claims are appealed. However, when appeals are pursued, they are often successful, with a win rate of 70–80%!

Insurance Appeal Resources If you have been denied coverage for any lymphedema treatment item or service, we encourage you to appeal! You'll find helpf ...

09/16/2025

Get 15% off at Pandere Shoes for completing our 5-minute survey! (https://www.surveymonkey.com/r/coverage2025) These awesome shoes are designed to fit feet. Just send them a screen shot or photo from the survey confirmation page to get your coupon. Full details are in their blog post (https://pandereshoes.com/blogs/blog/pandere-lymphedema-coverage-survey-2025).

💜 Insurance shouldn’t be a guessing game.
Take 5 minutes ➡️ Make a difference.
Complete the 2025 Lymphedema Insurance Coverage Survey and help shine a light on real insurance coverage for lymphedema patients.
👉 Link here: https://www.surveymonkey.com/r/coverage2025
💡 Open until Sept 30
🎁 Get 15% off your next Pandere order as our thank-you, (Chat with us for details)

Lymphedema Advocacy Group / Lymphedema Treatment Act Lighthouse Lymphedema Network National Lymphedema Network Lymphedema Lymphedema Management Lets Cure Lymphedema