HD Reach

02/21/2026

Rare Disease Day is almost here! This month, join HD Reach in honoring the strength of families impacted by . You can help by:

• Starting conversations about HD
• Wearing purple and blue for our HD warriors 💜💙
• Supporting HD families in your community

Let’s make Rare Disease Month a time of awareness, advocacy, and connection.

02/21/2026

Check out the Help 4 HD International Virtual HIPE TODAY! Times are in PST (start time is 11am ET)

Here's the schedule for today! Stay tuned we go LIVE at 8am PST!
(Reminder: the last session of the day, uniQure, will only be available via zoom. Details below to join.)

Watch now: https://www.facebook.com/share/v/1AwVzkAocB/

Zoom Link: https://us02web.zoom.us/j/88488437165?pwd=nP6VnKueFkOrz5iQESJFl9THXwNqkb.1
Passcode:062691

Sign up on the App for Giveaways: https://shorturl.at/LZeJ8

02/20/2026

We are here and ready to sip and shop with you!

Join us at 6 Kendra Scott locations across North Carolina until 8pm (7pm in Winston-Salem).
Mention HD Reach at checkout and 20% of sales will support HD families across our state.

Your support means so much. 💙

https://www.hdreach.org/donate/valentines.html

02/20/2026

Will you be joining the Help 4 HD International HIPE??

Tune in! Erika will be on at 3:20pm ET (times are in PT on flyer)

🔹VIRTUAL HIPE SCHEDULE🔹Connect as we are of at this FREE event on February 21st! updates, HIPE Panel, HD families' experiences, & more!

Watch on Facebook: https://www.facebook.com/share/v/18A6qSJPUn/

Event Zoom link: https://us02web.zoom.us/j/88488437165?pwd=nP6VnKueFkOrz5iQESJFl9THXwNqkb.1
Passcode:062691

App: https://digitalgrowthfirm.adalo.com/h4hdweb?target=25zsrr88t68iit4c1wckn3oin¶ms=%7B%7D

02/20/2026

TOMORROW! Join us at the Vanderbilt HD Educational Community Support Group .

https://www.hdreach.org/community/events/educational-speaker-hour.html

02/20/2026

To all HD caregivers, you deserve to be recognized every single day.

Thank you for standing by our HD warriors on the good days and the tough ones. Thank you for the patience, the advocacy, the late nights, the appointments, and the quiet moments no one else sees.

We see you. We appreciate you. And we are so grateful for you. 💜🙏🏼💙

02/20/2026

WINSTON-SALEM: Anyone craving pizza for lunch 🍕 Come join this wonderful, community led meetup. 💙💜 Sign up here: https://www.hdreach.org/community/events/ 💙💜 Walkins are welcome, however please register if you can. For questions, contact Brandi at bdellenback@hdreach.org.

02/19/2026

Tomorrow is the day to shop in store! Online shopping has wrapped up, but you can still find the perfect Valentine’s sparkle and give back.

Join us for a Kendra Scott Give Back Fundraiser benefiting HD Reach because love looks even better when it gives back 💖

💎 Shop In-Store: TOMORROW
Friday, February 20
6–8 PM at 6 participating Kendra Scott locations across North Carolina. Exception: Winston-Salem location is 5–7 PM

02/19/2026

Meetup Reminders for TOMORROW & NEXT WEEK. https://www.hdreach.org/community/events/ 💙💜

02/18/2026

We Need Volunteers for Education Day 2026! 💙💜 Education Day 2026 will be held April 17–18 at The Kirk of Kildaire in Cary, NC, and we’re looking for enthusiastic volunteers to help make the event amazing. Whether you want to help behind the scenes or greet attendees, your support makes a real difference for the Huntington’s disease community.

👉 Learn more and sign up to volunteer: https://www.hdreach.org/conference/2026.html

02/18/2026

Tune in to the Help4HD Virtual HIPE event this Saturday!

Erika Boulavsky, Community Outreach Specialist, will be speaking from 320–3:35 PM ET (flyer is in PT), where she’ll be discussing Bridging Connections — sharing insights on strengthening relationships and building meaningful community partnerships. Be sure to join and catch her session!💙

Virtual is only a few weeks away! Community Outreach Specialist from HD Reach , Erika Boulavsky, will be meeting us online! Register to receive free box (Limited Supply)!

Click here: https://www.help4hd.org/events

02/18/2026

Did you miss our livestream with HDYO (Huntington's last night playing and chatting about North American HDYO Camp, what HDYO is up to, challenges for the community, and plenty of belly laughs!
Jenna might have give a clue where 2027 Congress will be…

Camp is an incredible 4 day retreat for young people impacted by Huntington’s disease in Maryland.

If age 16-25 and impacted by Huntingtons disease living in North America, apply for this free camp by March 15, 2026
https://www.hdyo.org/a...

Tune into this episode to hear personal experiences and the structure from the Executive Director of HDYO, Jenna Heilman.