Got Hydrocephalus?

Got Hydrocephalus? I have had Hydrocephalus since birth. 16 surgeries under my belt. I created this page to share my story, my life and my health updates.

Thank you for being here 💙

02/16/2026
02/16/2026

Guess when I saw this?! On Valentines Day! It was amazing 🤩

Ok with these posts this morning 😂 got me laughing!
02/16/2026

Ok with these posts this morning 😂 got me laughing!

Art by ~ sugarandsloth

Clover says good morning to everyone, have a great day everyone wherever you are 💙
02/16/2026

Clover says good morning to everyone, have a great day everyone wherever you are 💙

😂
02/16/2026

😂

After brain injury my language impulsivity was bad, it took me several years to access control of my mouth...

02/16/2026

I love this photo of myself 💙

Shout out to my newest followers! Excited to have you onboard!Jp Wilson, Emmanuel Agola
02/16/2026

Shout out to my newest followers! Excited to have you onboard!

Jp Wilson, Emmanuel Agola

Big thanks toSamantha Nicole Moser, Havyn Lezotte, Ryder Bruen, Manraj Kaur, Wendy Cruz, Dallon K Viklund, Ron Patrick K...
02/16/2026

Big thanks to

Samantha Nicole Moser, Havyn Lezotte, Ryder Bruen, Manraj Kaur, Wendy Cruz, Dallon K Viklund, Ron Patrick Kelleher, Tanya Sorensen, Christopher Sierra, Lydia JamTone Toney, Siphosethu Malinga, Renee M. Mercier, Lovelle Faith, Ana Flores, Jonathan Morrison, Helen Irene Esterly, Cheryl Wheeler, Thomas Gene Parady Jr, Tina Marie, Robert Kerr, Bud Burns, Brian Pike, Rhonda Myers

for all your support! Congrats for being top fans on a streak 🔥!

Big shout out to my newest top fans! 💎Samantha Nicole Moser, Havyn Lezotte, Ryder Bruen, Manraj Kaur, Wendy Cruz, Ingrid...
02/16/2026

Big shout out to my newest top fans! 💎

Samantha Nicole Moser, Havyn Lezotte, Ryder Bruen, Manraj Kaur, Wendy Cruz, Ingrid Exnerhc, Dallon K Viklund, Ron Patrick Kelleher, Tanya Sorensen, Christopher Sierra, Lydia JamTone Toney, Siphosethu Malinga, Renee M. Mercier, Lovelle Faith, Ana Flores, Jonathan Morrison, Helen Irene Esterly, Cheryl Wheeler, Thomas Gene Parady Jr, Tina Marie, Robert Kerr, Bud Burns, Nancy Razorsek, Rudolf Kinder, Brian Pike, Rhonda Myers

Drop a comment to welcome them to our community,

Thanks for being a top engager and making it on to my weekly engagement list! 🎉Sarah Hattie Reese, Ryder Bruen, Adriana ...
02/16/2026

Thanks for being a top engager and making it on to my weekly engagement list! 🎉

Sarah Hattie Reese, Ryder Bruen, Adriana Cinapri

Thanks for being a top engager and making it on to my weekly engagement list! 🎉Sarah Hattie Reese, Ryder Bruen, Adriana ...
02/16/2026

Thanks for being a top engager and making it on to my weekly engagement list! 🎉

Sarah Hattie Reese, Ryder Bruen, Adriana Cinapri, Jonelise Bosman, Joseph T Nauseef, Wayne Barton, Alexia Sifford, Chia Su-Ling, Niki Stanley, Toni Lz, Chelsea Crochiere, Kitty Arnsman, Chloe Ward, Michael Gregory, Sandy Lawton, Jake Hankins, Chad Lee, Ana Flores, Tim Shelton, Wendy Cruz, Ben Zawaski, Shana Sloan, Hannah Knight, Sharon Deasy, Kate Schneider, Shannon Claffey, Christopher Sierra, Ingrid Exnerhc, Jonathan Morrison, Tanya Sorensen, Josette Falzon, Ron Patrick Kelleher, SarahLiz Clark, Lydia JamTone Toney, Michael Shaw, Simon Day, Jonathan Adam, Alia Smith, Havyn Lezotte, Jillian Snedden, T.K. Ryans, Jeanne Carrel, Cynthia Gibson, Brian A. DeJesus, Jeanne Gochenour, Grace Ann Samson

02/16/2026

If you ever doubt your own strength, reflect on the pain, stress, trauma and lows you've outlived and overcome throughout the years - that's strength.

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Casselberry, FL
32707

Website

https://www.bonfire.com/got-hydrocephalus-merch-2/, https://www.bonfire.com/got-hydrocepha

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My story

I was a premature baby, born at 29 weeks on July 6th, 1996 - my birth date was originally September 17th. My first shunt was put in on August 20th, and I was in the hospital for two months prior. A VP (ventriculoperitoneal) shunt was in place.

There were no problems for sixteen years until October 17th, 2012 during my sophomore year of high school. I started getting bad headaches, neck pain, all along my shunt tract. Pain I had never experienced before in my life. When the pain got so bad, I had had to go to the hospital. Long wait in the ER for scans to be done to determine the other part of my life. I had a full shunt revision.

Shortly after my second surgery, on the day before Thanksgiving 2012, I had my third. On November 21st, CSF (cerebrospinal fluid) was leaking from the incision on my head scar. My fourth revision was on February 3rd, 2013 because of leakage as well.

Again, everything was alright for two years until 2016. My fifth revision was April 19th and sixth was on July 24th.