HDSA-Albany

HDSA-Albany HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease and their families.

Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder that results in a loss of cognitive, behavioral and physical control, and for which, presently, there is no treatment or cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason. Symptoms usually appear in an individual between 30 and 50 years of age and progress over a 10 to 25 year period. Eventually, a person with HD becomes totally dependent upon others for his or her care. More than 30,000 people in the United States are currently diagnosed with HD and 200,000 are at-risk.. Each of their siblings and children has a 50 percent risk of developing the disease. Although medications can relieve some symptoms in certain individuals, research has yet to find a means of conquering or even slowing the deadly progression of HD.

Our community powers everything we do—and this is a fun one. 💙Help us choose the next Team Hope Walk T-shirt!🗓️ Online v...
01/12/2026

Our community powers everything we do—and this is a fun one. 💙

Help us choose the next Team Hope Walk T-shirt!

🗓️ Online voting: 1/9–1/23

Visit: https://fs22.formsite.com/hdsa/zs5gdyk81j/index to cast your vote.

Spots are filling up for our 4th Annual Driving For Dollars event. Get your squad together to help benefit the HDSA-Alba...
01/12/2026

Spots are filling up for our 4th Annual Driving For Dollars event. Get your squad together to help benefit the HDSA-Albany. We are always advancing & raising awareness about HD. Process from this event will go to HDSA-Albany

Link to register:

https://www.elevateoc.org/drivingforedollars

🗳️ Help choose the next Team Hope Walk T-shirt!Vote for your favorite design  #1– #4 now through 1/9–1/23.✅ Vote here: h...
01/10/2026

🗳️ Help choose the next Team Hope Walk T-shirt!

Vote for your favorite design #1– #4 now through 1/9–1/23.

✅ Vote here: https://fs22.formsite.com/hdsa/zs5gdyk81j/index (only votes through the voting link count!)

Which one are you picking? 👇💙

We need your voice!Take Action Now, Stand Up for AMT-130AMT-130, a promising gene therapy for Huntington’s disease, is a...
12/27/2025

We need your voice!

Take Action Now, Stand Up for AMT-130

AMT-130, a promising gene therapy for Huntington’s disease, is at risk of not getting a full, fair FDA review. After decades without a treatment that slows or stops HD, families cannot afford delays.

Ask your Members of Congress to urge the FDA to allow AMT-130 to move forward to a science-driven review.

Your message right now can help keep hope moving forward.

🔗 hdsa.org/advocacyhome/TakeAction

HDSA is planning the path ahead for the next three years, and your input can help lead the way.If Huntington’s disease t...
12/26/2025

HDSA is planning the path ahead for the next three years, and your input can help lead the way.

If Huntington’s disease touches your life, we’d love to hear your perspective.

Take the quick survey at: https://fs22.formsite.com/hdsa/olqg4bsvru/index to help guide HDSA’s work through the year 2028.

12/23/2025

Take Action Now — Stand Up for AMT-130

AMT-130, a promising gene therapy for Huntington’s disease, is at risk of not getting a full, fair FDA review. After decades without a treatment that slows or stops HD, families cannot afford delays.

We need your voice!

Ask your Members of Congress to urge the FDA to allow AMT-130 to move forward to a science-driven review.

For people living with HD, every day matters.

Your message right now can help keep hope moving forward.

🔗 hdsa.org/advocacyhome/TakeAction

Address

Castleton-on-Hudson, NY
12033

Opening Hours

Monday 5pm - 7pm
Tuesday 9am - 2pm
Thursday 9am - 2pm
Saturday 11am - 1pm

Telephone

+12122421968

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