HDSA-Albany

HDSA-Albany HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease and their families.

Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder that results in a loss of cognitive, behavioral and physical control, and for which, presently, there is no treatment or cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason. Symptoms usually appear in an individual between 30 and 50 years of age and progress over a 10 to 25 year period. Eventually, a person with HD becomes totally dependent upon others for his or her care. More than 30,000 people in the United States are currently diagnosed with HD and 200,000 are at-risk.. Each of their siblings and children has a 50 percent risk of developing the disease. Although medications can relieve some symptoms in certain individuals, research has yet to find a means of conquering or even slowing the deadly progression of HD.

We are looking forward to our 10th Annual Corks and Forks at Duo at the Dunes!Get your tickets early!
02/23/2026

We are looking forward to our 10th Annual Corks and Forks at Duo at the Dunes!

Get your tickets early!

A fundraising page benefiting Huntington's Disease Society of America

02/21/2026

Rare diseases may be invisible to many, but those living with them are not.

Every voice has value. Every story makes a difference.
One community. Many voices. Stronger together.

Mark your calendar and stand with us this Rare Disease Day.
How you can participate:
• Like & Share
• Spread the word - Make sure to use the hashtag !
• Donate

Mark your calendar and stand with us this Rare Disease Day.
Click the link below and save the date:
https://www.addevent.com/event/ybyqf61m8jq9
Make your matched gift early:
https://give.hdsa.org/campaign/766544/donate

HDSA is now accepting scholarship applications to help individuals and families attend the 41st Annual HDSA Convention i...
02/19/2026

HDSA is now accepting scholarship applications to help individuals and families attend the 41st Annual HDSA Convention in Phoenix, AZ (June 24–28, 2026).

All applications must be submitted by midnight (ET) on Sunday, March 8, 2026. Applicants will be notified of decisions by March 20, 2026. Please note: application information is confidential and reviewed only by HDSA scholarship committees.

For more information, visit:https://hdsa.org/wp-content/uploads/2026/02/scholarship-document-for-website-2.pdf

Join us in making a difference at the 2026 TCS New York City Marathon with Team HDSA!🏃♀️🌟 Picture yourself running throu...
02/18/2026

Join us in making a difference at the 2026 TCS New York City Marathon with Team HDSA!

🏃♀️🌟 Picture yourself running through the vibrant streets of all five boroughs, culminating in Central Park. Your miles can support individuals and families affected by Huntington’s disease.

Run with purpose and turn your passion into meaningful impact!

To learn more, you can visit: https://fs22.formsite.com/hdsa/oo9gieunir/index

Join HDSA and Skyhawk Therapeutics this Thursday, February 19th for a community webinar on the latest nine-month Phase 1...
02/17/2026

Join HDSA and Skyhawk Therapeutics this Thursday, February 19th for a community webinar on the latest nine-month Phase 1 patient data from the SKY-0515 program. Skyhawk will present the findings, followed by a live, moderated Q&A with HDSA staff.

When you register, your questions can be submitted in advance. To learn more, visit: https://hdsa-org.zoom.us/webinar/register/6817695154453/WN_d3K3I9YgT-Ct_8ygOiJ0hA #/registration

Join HDSA and Skyhawk Therapeutics next Thursday, February 19th for a community webinar on the latest nine-month Phase 1...
02/13/2026

Join HDSA and Skyhawk Therapeutics next Thursday, February 19th for a community webinar on the latest nine-month Phase 1 patient data from the SKY-0515 program. Skyhawk will present the findings, followed by a live, moderated Q&A with HDSA staff.

Questions can be submitted in advance when you register. To learn more, visit: https://hdsa-org.zoom.us/webinar/register/6817695154453/WN_d3K3I9YgT-Ct_8ygOiJ0hA #/registration

Address

Castleton-on-Hudson, NY
12033

Opening Hours

Monday 5pm - 7pm
Tuesday 9am - 2pm
Thursday 9am - 2pm
Saturday 11am - 1pm

Telephone

+12122421968

Website

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