HDSA-Albany

HDSA-Albany HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease and their families.

Huntington's Disease (HD) is a devastating, hereditary, degenerative brain disorder that results in a loss of cognitive, behavioral and physical control, and for which, presently, there is no treatment or cure. HD slowly diminishes the affected individual's ability to walk, think, talk and reason. Symptoms usually appear in an individual between 30 and 50 years of age and progress over a 10 to 25 year period. Eventually, a person with HD becomes totally dependent upon others for his or her care. More than 30,000 people in the United States are currently diagnosed with HD and 200,000 are at-risk.. Each of their siblings and children has a 50 percent risk of developing the disease. Although medications can relieve some symptoms in certain individuals, research has yet to find a means of conquering or even slowing the deadly progression of HD.

Spots are filling up for our 4th Annual Driving For Dollars event. Get your squad together to help benefit the HDSA-Alba...
11/19/2025

Spots are filling up for our 4th Annual Driving For Dollars event. Get your squad together to help benefit the HDSA-Albany. We are always advancing & raising awareness about HD. Process from this event will go to HDSA-Albany

Link to register:

https://www.elevateoc.org/drivingforedollars

In an effort to provide additional support, HDSA will be hosting another session today, Tuesday, November 18th, at 6 PM ...
11/18/2025

In an effort to provide additional support, HDSA will be hosting another session today, Tuesday, November 18th, at 6 PM EST. This session is open to anyone under the age of 35 years old who wants to ask additional questions and/or discuss the most recent news from uniQure and the FDA.

This session will be facilitated by MaryAnn Emerick, LMSW and Katie Dykman, LISW.

To join us, please visit: https://www.heypeers.com/meetings/47329/details

If you are not able to make this session, check out additional support group opportunities: https://hdsa.org/.../community.../hdsa-support-groups/

HDSA is planning the path ahead for the next three years, and your feedback can help guide the way.If Huntington’s disea...
11/18/2025

HDSA is planning the path ahead for the next three years, and your feedback can help guide the way.

If Huntington’s disease touches your life, we’d love to hear your perspective.

Take our quick survey at: https://fs22.formsite.com/hdsa/olqg4bsvru/index to help guide HDSA’s work through the year 2028.

11/18/2025

Pre order your Amaryllis now! Deliveries begin tomorrow, Tuesday, November 18th!

Featuring over 20 amazing products to choose from, with vibrant amaryllis varieties and fragrant paperwhites! 🌺 Shop with confidence knowing that FP (FlowerPower) guarantees all products will grow beautifully. 🌼

Don't forget to credit your order to your chapter or affiliate at checkout! Give a gift that blooms this season!

Click: http://HDSA.fpfundraising.com to learn more.

In an effort to provide additional support, HDSA will be hosting another session tomorrow, Tuesday, November 18th, at 6 ...
11/17/2025

In an effort to provide additional support, HDSA will be hosting another session tomorrow, Tuesday, November 18th, at 6 PM EST. This session is open to anyone under the age of 35 years old who wants to ask additional questions and/or discuss the most recent news from uniQure and the FDA.

This session will be facilitated by MaryAnn Emerick, LMSW and Katie Dykman, LISW.

To join us, please visit: https://www.heypeers.com/meetings/47329/details

If you are not able to make this session, check out additional support group opportunities: https://hdsa.org/find-help/community-social-support/hdsa-support-groups/

In an effort to provide additional support, HDSA will be hosting another session this Tuesday, November 18th, at 6 PM ES...
11/15/2025

In an effort to provide additional support, HDSA will be hosting another session this Tuesday, November 18th, at 6 PM EST. This session is open to anyone under the age of 35 years old who wants to ask additional questions and/or discuss the most recent news from uniQure and the FDA.

This session will be facilitated by MaryAnn Emerick, LMSW and Katie Dykman, LISW.

To join us, please visit: https://www.heypeers.com/meetings/47329/details

If you are not able to make this session, check out additional support group opportunities: https://hdsa.org/find-help/community-social-support/hdsa-support-groups/

In 30 Minutes, at 4 PM EST HDSA will be hosting a session that will be open to anyone from the HD community who has addi...
11/14/2025

In 30 Minutes, at 4 PM EST HDSA will be hosting a session that will be open to anyone from the HD community who has additional questions and/or would like to discuss the most recent news from uniQure and the FDA.

This session will be hosted by Dr. Tamara Maiuri and MaryAnn Emerick, LMSW.

To join us, please visit: https://heypeers.com/meetings/49247/details

If you are not able to make this support group, check out additional support group opportunities: https://hdsa.org/find-help/community-social-support/hdsa-support-groups/

The Time is NOW! Join the Fight to Bring Hope to HD Families: Urge the FDA to Uphold Accelerated Approval! HDSA, Help4HD...
11/14/2025

The Time is NOW!

Join the Fight to Bring Hope to HD Families: Urge the FDA to Uphold Accelerated Approval!

HDSA, Help4HD, HD Reach, HDF and HDYO have joined forces on a petition directly to the FDA.

Key Asks of the FDA:
- Honor Your Previous Guidance: Fully uphold the previously agreed-upon accelerated approval pathway for AMT-130, including the use of external control data from natural history studies.
- Recognize the Urgency: Acknowledge the dire, unmet medical need in the HD community and act with the expediency that Breakthrough Therapy and RMAT designations demand.
- Expedite Review: Make the review and approval of AMT-130, and any other future HD therapies, a top priority to get this potentially life-altering therapy to patients without further delay. Every day of delay is a day a family can't get back.

Sign the Petition NOW! Click the link below:
https://c.org/vfJyPMKbQM
And make sure to confirm your email - your voice only counts if your do.

11/13/2025

Pre order your Amaryllis now! Deliveries begin next week, November 18th.

With over 20 amazing products to choose from, with vibrant amaryllis varieties and fragrant paperwhites! 🌺 Shop with confidence knowing that FP (FlowerPower) guarantees all products will grow beautifully. 🌼

Don't forget to credit your order to your chapter or affiliate at checkout! Give a gift that blooms this season!

Click: http://HDSA.fpfundraising.com to learn more.

HDSA will be hosting a session this Friday, November 14th, at 4 PM EST that will be open to anyone from the HD community...
11/13/2025

HDSA will be hosting a session this Friday, November 14th, at 4 PM EST that will be open to anyone from the HD community who has additional questions and/or would like to discuss the most recent news from uniQure and the FDA.

This session will be hosted by Dr. Tamara Maiuri and MaryAnn Emerick, LMSW.

To join us, please visit: https://heypeers.com/meetings/49247/details

If you are not able to make this support group, check out additional support group opportunities: https://hdsa.org/find-help/community-social-support/hdsa-support-groups/

Address

Castleton-on-Hudson, NY
12033

Opening Hours

Monday 5pm - 7pm
Tuesday 9am - 2pm
Thursday 9am - 2pm
Saturday 11am - 1pm

Telephone

+12122421968

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