03/06/2026
We’ve just released a crucial update on the current state of Huntington’s disease research, emphasizing the urgent need for “urgency, grounded in scientific rigor” for families facing this terminal, progressive disease.
Dive into the full statement here: https://hdsa.org/news/update-from-the-huntingtons-disease-society-of-america-hdsa/
In this pivotal moment, the most powerful voice belongs to the HD community. Take action today by joining our advocacy movement at HDSA.org/takeaction.
Here, you’ll find clear, ready-to-use tools designed to empower you to speak up, share your story, and urge decision-makers to support a rare-disease system that fosters safe innovation without unnecessary delays.
Stay tuned for more details—we are actively building additional advocacy efforts to amplify the HD community’s voice in the weeks ahead. Together, we can drive change and ensure that the needs of those affected by Huntington’s disease are heard and addressed.
Your involvement is vital in this fight for hope and progress. Let’s make our voices count!"
