Live for today brain injury group

Live for today brain injury group My name is Joseph Weber, and I am the founder of Live for Today Brain Injury Group. I established t kkkk

08/01/2021

Update from "Facilitator Joe."
Update from "Facilitator Joe"

In December of 12/2019 Joe incurred a major cerebellar stroke, which exacerbated his deficits resultant from his brain surgery in February, 2002. Joe's craniotomy ushered forth a host of psychological and physical deficits. His memory; concentration, persistence and pace, all became severely compromised, and he began experiencing full-body seizures a few months post-op. Thank God he was placed on anti-seizure medications and had his last full-body seizure in 2005; conversely, Joe was unable to slow down worsening memory and concentration skills and had increasing anger outbursts on the job. Fast forwarding to 2018, Joe began losing his balance and was taking many falls when trying to walk around his neighborhood with his former wife. She had encouraged Joe to get back up from falls and would leave him alone 3 days per week, while she supposedly went to visit her mom. She insisted to Joe that he would be okay and safe to care for himself during her outings. He did not want to cause upheaval in the marriage, so he obeyed her directives. One day, Joe's son, Andrew, was over visiting with Joe and his wife when Joe suffered a big stroke. Joe fell down and lost his ability to speak. Joe asked his wife to call 911. She insisted to Joe's son that he would be okay, as he was now completely unable to move. Andrew dialed 911, and the paramedics were soon on the scene. Joe was admitted to ER right away, as a bed already awaited him. Although Joe was in bad shape, his wife at the time opted not to go with them. There was no vehicle, so the medics approved her to ride along... She declined. In the hospital Joe was examined by various tests and procedures and found to have incurred a horrific cerebellar stroke. He was kept in the hospital a few days in the ICU for monitoring and afterwards released to a nursing home called Riverside, where he completed over a week's worth of PT. Joe had too much difficulty adjusting and was shipped off to a better home called Sharon Care," located in Centralia, WA. There he remained for a few days, until he began to experience recurring bladder infections as he'd had a few years prior. So our friend was fitted with a Foley catheter and shipped off to another convalescent center in Olympia, WA. Not long into his stay, he developed tachycardia (accelerated heart rate) and was transferred to Peace Health hospital in Vancouver, WA. He was placed with a heart monitor and admitted to ICU. There he underwent 6 weeks of antibiotic treatments and PT. Joe did very well and quickly progressed from a wheelchair to a walker, and from there, to a cane. Finally a room opened up at an assisted living facility, called "Favored" Homes, where he still resides. Unfortunately, Joe had to be released in a wheelchair, as he had been deemed unsafe by his P*P in Centralia. Joe essentially lost ground and had to restart PT in his adult-family home. His insurance stopped covering in-home PT a few weeks back, and he was approved for 12 sessions of outpatient PT services. He is doing quite well now and will hopefully be independent with a walker at home once the sessions finish up.

07/11/2020

My testimony!

I was diagnosed with WHO Grade III terminal brain cancer over President's day weekend, 2002. On Friday evening I experienced what appeared to be the onset of first migraine headache ever! Having had been very healthy and physically fit up until that particular time in my life, the headache; the left-sided weakness; and just the general malaise, came as a complete shock! As the evening progressed, I found myself taking any type of over the counter pain and fever reducing medication I could find, and more than the recommended dose of two Tylenol capsules every other hour. As I lay in bed with an ice pack placed under my head I imagined every possible scenario as to what medical condition(s) could be at play here!

My first thought was that I may have incurred this increasing unbearable headache simply due to work-related and family stress. During that era of my life, I had been in a rocky marriage for 6 years and was working a highly stressful job as a Social Security disability examiner for the State of Washington. With a new home mortgage and our second son in tow I was willing to do whatever I could to bring in as high an income as possible. I was jumping at any overtime hours I could get to help pay off my student loans and finance a new car. Unfortunately I was also trying to do my utmost to maintain the yard and make any improvements on the home, all the while engaging in my church ministries of ushering and being a guitarist at church.

My wife was also working nearly full-time hours as a sign-language interpreter, but was also pulling off beautifully the role of a full-time stay-at-home mom in less-than half the hours as her peers (in my opinion anyway). Tending to our domestic needs, my wife was dead tired by the end of the day. Consequently, we were knowingly spending less than ample time together as any couple who wanted to improve upon, let alone to keep afloat any normal expectations for any long lasting and intimate relationship.

Just as my headache began, I had become so angry at simply life itself that I began shouting out to God at the top of my lungs. I remember being in the bathroom and staring at myself in the mirror and seeing my face turning beat red and looking as if I wanted to smash everything around me. Fortunately my wife had not been home to overhear it. After my several minute rant, I took my first two ibuprofen capsules, grabbed the ice pack and headed for the bed. Not being to really focus due to the pain I was in and out of consciousness and by the time my wife and son returned from shopping I could not even get up out of bed to make it to the door and assist her in bringing in the groceries. My wife was, indeed, surprised that I was in such an incapacitated state that she left the groceries and helped me to the car, where our five year old was still in his car seat. She rushed me to our medical facility and I waited in the car with my son while she quickly retrieved a wheelchair.

Within minutes she had me into urgent care, and as I was in acute distress, they took me right back to a room (thank God one was available). The nurse checked my vital signs were WNL, but my excruciating pain warranted an immediate medical consultation with the physician assistant on duty. He performed a standard medical exam and said that my sinuses were clear, hence ruling out that cause for the headache. I pleaded with him for something for the pain, and he prescribed me with Percocet. After returning home that evening I took my first doses and looked forward to being able to get a good night's rest, and once the pain medicine kicked in, I slept almost through the whole day Saturday.

When I awoke the headache had become much worse than ever in just a few minutes time. That was the breaking point, and in tears I got into our van, and my wife rushed me to the ER at Saint Peter's Hospital in Olympia. On the way over I became so nauseated that I had her pull over and I got rid of whatever I had managed to consume that day!

At that time of my diagnosis I had already been employed by WA State Division of Disability Determination Services for four years, and another son had joined our family on 07/28/2002. Having already been employed by the agency since 9/98, my medical knowledge was already quite extensive. I had been twice promoted and was earning a fairly decent wage. I had everything I could have ever dreamed about up to that point in my life: a lovely wife, two beautiful young boys, a very nice home, two cars, and the list continues!

Upon being diagnosed, my world was literally flipped upside down.

Surviving brain surgery, radiation treatments, and chemo presented some major necessary adjustments. I not only began to feel as if I were losing my own human identity, but my family as well. Were it not for my own personal Christian beliefs, I would have given up on life. I knew it was only right to uphold my responsibilities as a husband and a father. So, what next?

I did my best over the course of several years to maintain my high job-level performance, take care of my spouse and help her to raise our three kids. At work I was very well liked and appreciated, hence management did their best to accommodate me for as long as they could. Not only was I allowed a lighter caseload, but I was treated with utmost respect and human dignity. That was to be expected within the very context of my position. Unfortunately, the road had to become really rough before the potholes could be fixed

First there were the demotions and the divorce. As you can imagine, these events added insult to injury. I became a broken man, with no hope, or even will to live. God and my kids were literally my saving grace.

I realized it was now when the rubber must meet the road. I made my own choice to fill in those blasted potholes and move on with my life. I found that continuing on with any type of employment or volunteer services boosted my moral. I could afford to make my child-support payments and pay my dad rent. It was then that Determination really spread its wings.

I gleaned tremendous support from my family, my friends, and of course, from my dear precious children. Personally speaking, I cannot rule out miracles and I am simply unable to leave God out of the equation. As soon as I surrendered my situation the doors flew wide open to renewed strength and success. I was so poignantly reminded of the dream I said to myself,” I’m going to make this happen. Along with that proclamation came an optimism that hasn't stopped gaining impetus.

My first step among baby ones, was to reestablish my identity as a confident, outgoing, and intelligent human being. Having had to stop working and go on Social-security disability benefits was no doubt tough. However, this had provided me with firsthand experience for my present-day employment with TBISN (Traumatic brain-injury network).

Address

1218 N Washington Avenue
Centralia, WA
98531

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