UNC Muenzer MPS Center

04/23/2026

MPS Awareness Night at Carolina Baseball continues to make an impact beyond the field, ⚾💙

This recent feature from GoHeels highlights how the UNC Baseball program used its platform to raise awareness for mucopolysaccharidoses (MPS) and the meaningful connection to the Muenzer MPS Research & Treatment Center.

From honoring longtime friend of the program JR Anton to bringing attention to rare disease research happening right here at The University of North Carolina at Chapel Hill, it was a special night for our community.

Read the full story here:

The Diamond Heels won again, this time while drawing attention to an issue important to the program.

04/22/2026

Big thanks to Carolina Baseball for helping shine a light on MPS at Boshamer Stadium last night 💙

It meant a lot to see both teams wearing MPS Awareness bands and taking time to recognize the patients, families, clinicians, and researchers who make up this community. Events like this help bring greater awareness to mucopolysaccharidoses (MPS) and the importance of continued research and support.

We’re grateful for everyone who helped make MPS Awareness Night so meaningful.

04/21/2026

The Muenzer MPS Center team is out at Bryson Field at Boshamer Stadium for MPS Awareness Night at Carolina Baseball ⚾💙

Stop by and visit us as we connect with fans, share information, and raise awareness for MPS.

Proud to be part of such a special night with our MPS community and the Carolina family.

04/21/2026

A recent event at North Carolina Central University brought students together for the Genetics-in-a-Day Careers Workshop.

Hosted by the UNC Program for Precision Medicine in Health Care, the workshop highlighted real-world applications of genetics and the impact of metabolic disorders.

The Muenzer MPS Center team was proud to be involved:
• Dr. Kim Stephens delivered the keynote on patient advocacy
• Lindsay Torrice led the Research session
• Kristin Clinard spoke during the Family Support session

Connecting students to real-world experiences—and the people behind this work—is what it’s all about.

04/17/2026

Zeke the Zebra is ready for MPS Awareness Day at the ballpark ⚾🦓

Zeke, who calls the Muenzer MPS Research & Treatment Center home, is sporting the official MPS Awareness Baseball shirt ahead of next Tuesday’s UNC Baseball game.

We’re looking forward to a great night at the ballpark as we come together to raise awareness for MPS and support patients and families.

📅 Tuesday, April 21
⏰ First pitch at 6 PM
📍 Boshamer Stadium

Tickets are still available through the Carolina Baseball ticket office for anyone who would like to attend.

04/14/2026

Registration for MPS Awareness Day at UNC Baseball through our group is now closed—thank you to everyone who signed up to join us.

We’re one week out from first pitch and looking forward to a great evening at the ballpark as we come together to raise awareness for MPS and support our community. ⚾💙

📅 April 21, 2026
⏰ First Pitch: 6:00 PM
📍 UNC vs. High Point

Tickets are still available through the Carolina Baseball ticket office for anyone who would like to attend.

If you’re attending, we’ll see you there.

04/13/2026

⚾ MPS Awareness Day at Carolina Baseball

Dr. Joseph Muenzer, Dr. Kim Stephens, and Becky Brinson visited the North Carolina Tar Heels baseball team this morning to finalize details for our upcoming MPS Awareness Game on April 21.

We’re looking forward to a meaningful evening raising awareness and bringing the MPS community together at the ballpark.

04/13/2026

Families of children with a genetic disorder called Hunter Syndrome are celebrating a potentially life-changing decision.

04/09/2026

⚾ Step up to the plate for MPS Awareness Day!

Join us at Bryson Field at Boshamer Stadium on Tuesday, April 21, as the Tar Heels take on High Point during a special night at the ballpark.

MPS families can enjoy complimentary tickets, so grab your seats, bring your crew, and help us raise awareness while cheering on the Heels!

🎟️ Register now: https://bit.ly/4cgskbu
📸 Tar Heels Athletics

04/08/2026

⚾💙 Last Call: MPS Awareness Day Tickets for MPS Families 💙⚾

The Muenzer MPS Research and Treatment Center is making a final call for MPS families planning to attend MPS Awareness Day at the Carolina Baseball game on Tuesday, April 21, 2026, as the UNC Tar Heels take on High Point University.

🗓Registration deadline: Friday, April 10 at 11:59 PM ET
We are finalizing our ticket request, so please be sure to register as soon as possible.

📅 April 21, 2026
⏰ First pitch: 6:00 PM ET
📍 Bryson Field at Boshamer Stadium
235 Ridge Road, Chapel Hill, NC

🎟️ MPS families will receive complimentary tickets and MPS Awareness shirts

👉 Register here: https://tinyurl.com/UNCMPSBaseballGame
We look forward to coming together as a community and showing strong support for MPS awareness.

04/06/2026

💙🔬 Advancing Rare Disease Research 🔬💙

Dr. Kim Stephens, Executive Director of the Muenzer MPS Research & Treatment Center, and Dr. Joseph Muenzer, Director of the Muenzer MPS Research & Treatment Center, are featured in this FOX8 Buckley Report segment from highlighting progress in treating rare diseases, including MPS II.

The segment also includes the Selser family alongside Dr. Kim Stephens’ family, sharing their experiences living with MPS II.

As Dr. Muenzer shares, “We have approval of a drug that’s going to treat the brain disease in MPS II that we’ve never had before,” marking an important step forward in treatment innovation.

At the Muenzer MPS Research & Treatment Center, we remain committed to advancing research, supporting patients and families, and contributing to progress in rare disease care.
🎥 https://www.youtube.com/watch?v=SJQtpO45cuQ
📰 https://myfox8.com/spotlight/buckley-report/researchers-look-for-cures-to-rare-diseases/

Researchers look for cures to rare diseasesSee more from FOX8 anchor and senior reporter Bob Buckley: https://myfox8.com/spotlight/buckley-report/MOBILE APPG...

04/02/2026

Update on UX111 for Sanfilippo syndrome Type A (MPS IIIA):

The U.S. Food and Drug Administration has accepted the resubmitted Biologics License Application (BLA) for UX111, an investigational AAV gene therapy, and has set a PDUFA action date of September 19, 2026.

🔗 Read the full announcement: https://ir.ultragenyx.com/news-releases/news-release-details/ultragenyx-announces-us-fda-acceptance-bla-resubmission-ux111