10/03/2025
Quick Mason update!
Things have been slowly moving along for us. I, Charde, have continued to have more bad days than good with my health. I'm struggling to keep up with daily things but my husband is always there to pick up my slack a d take care of our needs.
For the past month or so, Mason has had quite an increase in his pain/phantom pain levels. The pain affects his legs especially. His legs have atrophied due to normal everyday use. It happens with amputees and we knew he would eventually need to be recasted to fit his changing legs. His prosthetist has unfortunately been out of office on paternity leave for the past month. Mason hasn't been able to wear his leg prosthetics for over a week now due to skin breakdown caused by ill-fitted prosthetics. So, he has been solely using his wheelchair during that time making his help needed from us alot greater. We have spoken with the doctors and they are increasing some of his nerve pain meds to hopefully make Mason more comfortable. Unfortunately there's nothing else that can be done until his prosthetics get recasted on October 12. He can't wear them when he has skin breakdown due to open skin, possibly contracting an infection, and the level of pain.
On a different note, Mason has been persistent in expressing his want to drive a car. We have been looking into how we need to go about that and it's not the easiest process! We have to find a specialized occupational therapist that is trained in drivers Ed. Insurance won't cover it. Of course!! They won't cover any of the costs associated with the drivers Ed or therapist providing it. Nor will they pay for any accomodations needed for him to drive his own car. Can you say frustrating?! I have had to jump through a million hoops for Mason over the past few years to get his insurance to approve even the most necessary items for him. It took me over a year to get power approved on his wheelchair, and a year and a half to get him approved for SSI. Seems like with his condition, things would be approved easily and more easily accessible for him. But, we put our trust in God and pray and pray that things start working more in our favor. I'll never stop fighting for what he wants and needs in his life. Ever.
He has surgery to repair and reconstruct his urethra/private area on December 15. It will once again be a 7-9 hour surgery that involves more skin grafting as well. He will need to stay overnight because the hospital is three hours away from us and because of how extensive the surgery will be. Please continue to pray for Mason and our family and please consider helping us along our journey by sharing or donating. Every little bit helps us get back on our feet and survive day to day right now. We can't thank everyone enough for the outpouring of support we've recievd thus far.
God bless,
The McMillan Family ❤️
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