MUSC Spina Bifida Clinic

MUSC Spina Bifida Clinic Spina Bifida Clinic Over 250,000 Americans are in the Spina Bifida Community. There are 65 million women at risk of having a baby born with Spina Bifida.

An estimated 166,000 people in the United States are currently living with Spina Bifida, the most common permanently disabling birth defect. Spina Bifida is a neural tube defect that happens in the first month of pregnancy when the spinal column doesn't close completely. Every day, an average of 8 births are affected by Spina Bifida or a similar birth defect of the brain and spine. Each year, about 3,000 pregnancies are affected by these birth defects. The effects of Spina Bifida are different for every person. Up to 90 percent of children with the worst form of Spina Bifida have hydrocephalus (fluid on the brain) and must have surgery to insert a “shunt” that helps drain the fluid—the shunt stays in place for the lifetime of the person. Other conditions include full or partial paralysis, bladder and bowel control difficulties, learning disabilities, depression, latex allergy, and social and sexual issues. Thanks to new medical treatments and technology, most people born with Spina Bifida can expect to live a normal life. People with Spina Bifida have many special challenges because of their birth defect, but their condition does not define who they are. People with Spina Bifida have careers, get married, and have children just like people who do not have Spina Bifida.

-From Spina Bifida Association website, 2009, www.spinabifidaassociation.org

Some great Spina Bifida resources!
12/07/2011

Some great Spina Bifida resources!

12/07/2011

It is almost that time of year to start thinking about summer camps and to start working on applications!! Many have early deadlines (February/March).

12/07/2011
12/07/2011

Please check out www.walknrollforsb.org to find out more about this great event to increase awareness about Spina Bifida!

09/30/2011

Looking for a way to get involved in more physical activities? Here is a great resource:

Acheiving Wheelchair Equality/Lowcountry Wheelchair Sports
Disability Resource Center
7944 Dorchester Road, North Charleston, 29418
ph:(843)225-5080, tty (866)864-7730, email: awelcws@aol.com

09/30/2011

Spina Bifida Awareness Month!! Photo Contest

Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of all those affected by Spina Bifida.

I have to again highlight a great resource for families looking to meet other SB families. I keep hearing "we don't kno...
06/15/2011

I have to again highlight a great resource for families looking to meet other SB families. I keep hearing "we don't know anyone else with a child with Spina Bifida." Just call or put in a request on-line to get paired with another family. There also opportunities to mentor other families (they provide training). Spina Bifida is definitely under-represented in this group-Lets change that!!!

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06/13/2011

Thanks to everyone who participated in the Spina Meet and Greet this past Saturday! I know there were several families that were unable to come. Hopefully we can get more events planned. Stay tuned and spread the word to friends about the page!

The City of Charleston has a great list of physical activities and camps for persons with disabilities. On the website,...
05/31/2011

The City of Charleston has a great list of physical activities and camps for persons with disabilities. On the website, look under 'Families, Youth, and Seniors' and then again under 'Special Needs' to see what is available this summer and upcoming fall!

05/25/2011

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135 Rutledge Avenue
Charleston, SC
29425

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