02/26/2026
ALS
Try to Imagine what it must be like to receive life-shattering news: “You have been diagnosed with Amyotrophic lateral sclerosis (ALS), or Lou Gehrig's disease.”
Yes, the shock is something that takes your breath away. It makes you pause and think about the fragile reality of life. ALS may be the most devastating medical diagnosis a person can receive. Without warning, this horrific condition is unforgiving, a progressive neurodegenerative disease. ALS invades and overtakes the entire body destroying motor neurons in the brain and spinal cord, leading to muscle weakness, atrophy, and eventually complete paralysis. As the disease advances, additional complications occur causing severe difficulties with breathing, swallowing, and speaking. Mercifully, ALS typically does not affect senses (sight, smell, taste, hearing, touch).
Thankfully, the strength and resolve of the human spirit is incredible. The desire to seek joy, to take nothing for granted, and to live each day to the fullest is in so many ways, beyond belief. To be present, to be loving, and to be small part of a big moment is what God wants us to do.
A few months ago, I received a phone call from a woman, a big sister stating, “my little sister has ALS and I want her to experience as much fun, excitement, and the thrill of adventure while she still can. I was told that you were the one who could do this on the ski slopes at Massanutten. My sister’s name is Saundy and she has a need for speed and wants to go fast.”
I told her, “thank you for putting your faith, confidence and trust in me. Yes, I can provide her with a great experience on the snow. A few years ago, I shared a similar experience with a father who had ALS and he wanted to ski one last time with his two sons. I will do everything in my power to make that happen.”
On February 7, 2026. I was blessed to share a fast, exhilarating skiing experience with Saundy. God kept us safe. When Angels sense you need them, and Angels always do, they come unseen from everywhere to help, to protect, and to comfort you. It was as if we were carving big turns and floating over the snow on angel wings.
Savoring and making the most of life, seizing the day (carpe diem), and being adventurous with God‘s mercy and grace is so important because none of us know what tomorrow will bring.
“When we live with a servant-heart for people who typically have been excluded—those with disabilities, complex medical diagnoses, and rare genetic disorders—we make it possible for them to enrich their lives with opportunities to explore new experiences, to challenge themselves, and to achieve things they never dreamed were possible.”
—MAA
Therapeutic Adventures is proud to provide Universal access and an all-encompassing approach responsive to the unique needs of those who we serve.
www.TAonline.org
