10/14/2020
This has been a tough year to say the least. My heart goes out to everyone who lost their job or worse, went out of business, not to mention those who were infected and those who died. We are managing well enough at the ALS Residences but 7 months of being locked down has been brutal. Everyone here is healthy and virus free so I grin and bear it.
I have some good news. Within a month, we are opening 2 new houses of 10 people each, exclusively for people on ventilators. In an agreement with the state, we will be accepting people stuck in more acute care facilities and hospitals including people who were vented because of covid-19 and don't have 24/7 care at home. Of course, a number of pALS will be included and I expect they will become a majority over a number of years.
The state is helping to cover some of the care expenses but much less than they were spending at a hospital. More than that, the 2 new houses will get the full ALS Residence treatment including the full PEAC automation package and regular outings once the lockdown is lifted.
The Walk for Living is this Sunday. It is virtual, of course, which just makes it easier for you to participate. On Sunday, I invite you to Walk around your block for the cause. Whatever you can spare to send in financially will go to improve the quality of life to the greatest concentration of pALS living together anywhere on Earth. If it is easier to give a few dollars a month, that option is available. I hope to have more cheery news next year. Thank you for your support.
TO DONATE W/ PAYPAL:
https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=YHNVKFPZ4CXUC
ps - Can you believe that today is the 14th anniversary of my ALS diagnosis? In another 14 years, I'll be full cyborg. ;)
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