04/29/2026
End of April Update
On Thursday last week, I spoke with Dr. Dietch at Northwestern about my MRI and CT results. There was noted growth in my largest tumor since my last MRI in late January. My CEA was also 122 this past week. Based on these pieces of information, the team has recommended a repeat PET scan, which I am doing tomorrow in St. Louis. This is another challenging piece of information to process.
The PET has to show continued liver disease isolation. Assuming we get the PET result we need by early next week, I will go to Northwestern to have a Y90 procedure on the right lobe of my liver to zap the large tumor with radiation in the next few weeks.
My liver chemo seems to no longer be providing much benefit. I started the liver chemo at 200 mgs of medicine 8 months ago. In the last 3 months I am down to 13 mgs of the medicine per treatment, because my Alkaline Phosphatase readings have been too high. Northwestern oncology reviewed my liver chemo dosing and is not recommending any changes to the liver chemo right now. They won’t push it on dosing because if my liver’s biliary tree is damaged it’s not reversible and there are negative downstream impacts to liver function.
We have had brave souls head to Northwestern for donor evaluations, for which I am incredibly grateful.
The PET result and hopefully ensuing radiation procedure have to bring the cancer back into control to continue as a transplant candidate. Advanced Cancer treatment is in no way a linear process. Please pray for us.
Thanks,
Lauren