MPN Research Foundation

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MPN Research Foundation

Patient-centric foundation that exists to fund research & improve outcomes for those living with MPNs Driving groundbreaking research. Improving lives.

Founded by patients for patients, MPN Research Foundation is a catalyst for research funding in pursuit of new treatments – and eventually a cure – for polycythemia vera (PV), essential thrombocythemia (ET), and myelofibrosis (MF) – blood cancers collectively known as myeloproliferative neoplasms (MPNs). To date, we have funded more than $18 million in MPN research. Through a combination of MPN cancer research, advocacy and education, we bring together patients, researchers, and clinicians around the common goal of realizing new treatment options and ultimately, a cure for MPNs.

03/10/2026

One week left to register!

Don’t miss our next MPN Pathways: Empowered Voices in Research webinar, “Informed Consent,” happening Thursday, March 19 from 4-5pm CT.

Featuring Emily Largent, JD, PhD, RN, a leading bioethics scholar whose work focuses on human subjects research and the ethics of translating research to human care.

Learn how informed consent protects clinical trial participants, and how patient and caregiver perspectives help strengthen the process.

This webinar also counts toward completing the MPN Research Foundation Research Advocate Certification.

Can’t make it live? All registrants receive recording and post-session materials.

Register now: https://f.mtr.cool/osjkczusfq

03/09/2026

This is your final reminder, MPN community 💙

The 2026 MPN Patient Unmet Needs Assessment closes March 18, and your voice matters.

Whether this is your first time — or you participated in 2024 — your experience helps guide future research, education, and advocacy for myeloproliferative neoplasm (MPN) patients around the world.

🕒 Takes about 25 minutes

👉 Complete the assessment now: https://f.mtr.cool/itdfounaxz

Please consider sharing with other MPN patients so every voice is heard.

03/07/2026

Nurse knowledge is power. Sharing it is impact.

As a nurse who cares for patients living with myeloproliferative neoplasms (MPNs) and navigating the possibilities of disease progression, your role is critical.

Not only in delivering care, but in guiding patients through decisions that affect their long-term health and well-being. Your expertise and empathy help your MPN patients feel in control — even when questions and worries about disease progression make things feel uncertain.

Help share an opportunity with your eligible patients that empowers them and lets them contribute directly to future MPN research: the MPN PROGRESSion Registry™. Anyone 18 or older, living in the U.S., who has ever been diagnosed with an MPN can enroll.

👉 Learn more. Link in comments.

03/03/2026

The 2026 MPN Patient Unmet Needs Assessment is now open — and your experience helps guide future research, education, and advocacy for patients around the world.

If you participated in 2024, your input again is especially valuable. If not, we’d love to hear from you.

🕒 About 25 minutes
📅 Open until March 18, 2026

👉 Take the assessment today: https://f.mtr.cool/rcyyhkwvxr

Please share with other myeloproliferative neoplasm (MPN) patients, especially those outside the U.S., so every voice is heard.💙

03/01/2026

Today is Rare Disease Day! Thanks to our incredible community, we’ve raised over $77,000 to advance MPN research.

Your generosity helps us continue our over 25-year legacy of fueling scientific progress, supporting early discoveries, and bringing new treatments from bench to bedside.

If you haven’t joined in yet, it’s not too late! Every gift matters.

👉 Donate here: https://f.mtr.cool/rwbhfqilhf

Thank you for standing with the MPN community today.

02/27/2026

You’re a myeloproliferative neoplasm (MPN) patient living in the U.S. and have been thinking about enrolling in the MPN PROGRESSion Registry™. But you want to know: Can it be trusted? Will my data be safe?

The MPN PROGRESSion Registry™ is committed to protecting your privacy and ensuring your data is secure in many ways.🔒

Swipe to learn more.

02/26/2026

Unlock vital info on myeloproliferative neoplasms (MPNs) with our You and MPN Animated Patient Guide! This free, patient-focused program explains MPN types, risk factors, symptoms, diagnosis, and treatment using easy-to-understand animation, video, and infographic resources – created for patients and caregivers.

Explore the program at https://f.mtr.cool/kigagqbqxa

02/24/2026

Did you know? 95% of rare diseases lack FDA-approved treatments.

Clinical trials are the bridge from bench to bedside, but most patients never hear about them.

Our 2024 Patient & Caregiver Unmet Needs Assessment revealed:
✔ Only 10% of patient respondents reported participating in a trial
✔ 71% said their provider never discussed trial options

Your gift helps connect myeloproliferative neoplasm (MPN) patients to life-changing clinical trials through spreading knowledge to community hematologists and oncologists. We have also partnered with Blood Cancer United to give a more personalized approach to finding the right clinical trial for a patient.

This , stand for equity and access.
👉 Donate: https://f.mtr.cool/pcnkqtoxtu
👉 Explore trials: https://f.mtr.cool/abdbymqrzr

02/23/2026

Curious about what “informed consent” really means?

Join us for the next MPN Pathways: Empowered Voices in Research webinar, featuring Emily Largent, JD, PhD, RN, who will break down how informed consent works, why it matters, and how your lived experience as a patient or caregiver can strengthen the consent process.

Date: Thursday, March 19, 2026
4pm - 5pm CT via Zoom

Register now: https://f.mtr.cool/osjkczusfq

You’ll learn:
-Core principles of informed consent
-Strategies for clear communication during the consent process
-How patients and caregivers can contribute meaningful feedback to improve consent forms and participant understanding

This webinar also counts toward completing the MPN Research Foundation Research Advocate Certification.

Can’t make it live? All registrants receive recording and post-session materials

02/20/2026

Heart problems can sometimes be the first warning sign of an undiagnosed blood cancer.

John’s story is a powerful reminder:

At 48, he suffered a severe heart attack with no clear cause. For 2 years, he believed stress was to blame—until rising platelets revealed the truth: a rare blood disease called essential thrombocythemia (ET).

This American Heart Month, you can help shorten the time it takes for patients to get answers. Your donation fuels research that can help ensure patients get the care they need sooner.

👉 Donate today and make a difference: https://f.mtr.cool/ckblvbqgnz

02/19/2026

Are you eligible to enroll in the MPN PROGRESSion Registry™? View and save this information on the primary criteria for participation.

There is power in numbers, and we need every myeloproliferative neoplasm (MPN) patient who is eligible to join. The more information gathered by the Registry for researchers, the more comprehensive, diverse, and statistically significant the data will be — and the more we can learn.

02/17/2026

The 2026 MPN Challenge™ is underway! MPN Research Foundation’s signature funding initiative accelerates innovative, patient-focused research in essential thrombocythemia (ET), polycythemia vera (PV) & myelofibrosis (MF).

Since 2013, MPN Challenge has:
✔ Catalyzed discoveries from biology to translational advances
✔ Led to 77% of projects published
✔ Allowed researchers to secure $52M+ in follow-on funding

We've already invested over $20M in research and we’re just getting started. Patients are waiting for answers, and the next breakthrough depends on what we do today.

Join our community & stay connected to what we will be funding this summer.

👉 Subscribe here: https://f.mtr.cool/wxqzknsloi

Address

PO Box 10743
Chicago, IL
60610

Website

http://www.mpnresearchfoundation.org/

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