MPN Research Foundation

01/07/2026

2026 Global MPN Patient Unmet Needs Assessment is now open!

MPN Research Foundation invites individuals living with a myeloproliferative neoplasm (MPN) to participate in the 2026 Global MPN Patient Unmet Needs Assessment.

This global effort helps us better understand patient experiences, priorities, and unmet needs from around the world. Healthcare access, treatments, and support can vary widely, and global participation is essential to ensure all voices are represented.

Topics include:
• MPN diagnosis & monitoring
• Therapies & clinical trials
• Symptoms & related conditions
• Access to information & resources
• Emotional health & quality of life

Take the assessment here: https://www.tfaforms.com/5184100

Preview highlights from the 2024 assessment: https://mpnresearchfoundation.org/mpn-unmet-needs-assessment-preview/

Preliminary results will be shared in Summer 2026

Please share widely — especially with international communities — to help identify unmet needs worldwide. 🌐

01/06/2026

As of January 6th, 2026, MPN Research Foundation has opened the MPN Challenge™ funding cycle.

Together, let's push boundaries to pave the road for more effective treatments and, eventually, a cure for patients!

Please click here for further details on eligibility, proposal guidelines, and deadlines. https://goto.mpnresearchfoundation.org/49ixqCH

Proposals are due by March 23rd, 2026 at 11:59PM CT.

12/31/2025

As 2025 comes to a close, we're reflecting on the meaningful progress made possible by the myeloproliferative neoplasm (MPN) community:

👉 Patients and Caregivers sharing their unique journeys to help shape MPN Research Foundation's scientific strategy and support one another
👉 Researchers working relentlessly towards a deeper understanding of these rare blood cancers
👉 Industry professionals working hard to advance new treatment options that have the most beneficial outcomes for those living with MPNs

You can see some of the impact of this community's support in our Year-in-Review in the latest Good Marrow Magazine (link in bio).

Together, we moved closer to answers that can shape every stage of the patient journey. This is progress we're determined to build on without losing momentum.

Your year-end gift before midnight tonight ensures that this work continues at full strength. Every contribution helps propel
MPN Research.

Will you join in and make your year-end gift before midnight tonight? Give now with the link in bio!

12/23/2025

Promising new clinical trials are testing combination therapies that may expand benefits of this particular treatment more directly.

Our latest Good Marrow Magazine feature breaks down the science behind these combinations and why this moment represents an exciting step forward for MPN research.

Read the latest Good Marrow Magazine today: https://goto.mpnresearchfoundation.org/4pzuxV1

12/22/2025

Caregivers don’t always get the recognition they deserve — but their impact is powerful.

Our newest Good Marrow Magazine highlights the emotional strength, daily challenges, and meaningful moments shared by MPN caregivers. It also points to resources designed to help them feel supported and less alone.

To every caregiver in the MPN community: we see you, we appreciate you, and your wellbeing matters.

Read Good Marrow Magazine: https://goto.mpnresearchfoundation.org/4pzuxV1

12/19/2025

As we are near the end of an extraordinary year, we’re deeply grateful for our community. From heartfelt tributes to transformative gifts, you’ve helped us raise an incredible amount for myeloproliferative neoplasms (MPNs).

There's still more to do. Let’s finish strong and honor those we’ve lost, uplift those still on their journey, and accelerate the future we’re building together.

Will you be a part of our story?

Donate now: https://secure.qgiv.com/event/mpnresearchfoundation/

12/18/2025

New project explores alternative treatment options for MPNs.

MPN Research Foundation is funding a CRISPR project to see if it's possible to selectively eliminate mutated cells that cause myeloproliferative neoplasms (MPNs) without harming healthy ones.

CRISPR is a revolutionary gene-editing technology that works like molecular scissors. It allows scientists to find a specific piece of DNA inside a cell, cut it precisely, and either remove, repair, or replace it. Think of it like finding and deleting a single typo in a 3-billion-letter book — without damaging the rest of the story.

If successful, this work led by Drs. Shannon Elf and Yang Liu at the Huntsman Cancer Institute at the University of Utah could transform how MPNs are managed.

Could we be on the brink of a future where patients have more personalized and targeted treatment options?

Your gift makes this kind of bold science possible. This holiday season, please make a donation to fund more incredible breakthroughs like this one. https://secure.qgiv.com/event/mpnresearchfoundation/

12/15/2025

Big news!

We’re excited to introduce Good Marrow, our new magazine available in digital and print. Dive into stories that inspire, challenge, and connect.

Read online or enjoy the print edition by reaching out to communications@mpnrf.org.

Explore Issue #1 today: https://goto.mpnresearchfoundation.org/4pzuxV1

12/09/2025

As a lifelong entrepreneur, Jeremy approached his diagnosis like a business challenge. He created what he called an “MPN Life Plan,” complete with goals, measurable outcomes, and a mission statement. He tracked data, optimized his health, and committed to never giving up.

At MPN Research Foundation, we invest in bold, patient-driven science that transforms stories like Jeremy’s from uncertainty to empowerment.

💬 What’s one mindset shift that helped you through a challenge?

🔗 Support research that changes lives: https://goto.mpnresearchfoundation.org/4nBJZOE

12/05/2025

The American Society of Hematology (ASH) Annual Meeting is the world’s largest gathering of blood cancer experts. Every year, thousands of scientists and clinicians come together to share new discoveries, clinical trial updates, and advances that shape the future of care for people living with blood disorders.

For the MPN community, ASH is one of the most important moments of the year. Research presented at this meeting often reveals new ways of understanding myeloproliferative neoplasms, emerging treatment strategies, and insights that help doctors make more informed decisions for their patients.

MPN Research Foundation is proud to see members of our boards, advisory teams, and research award winners presenting their brilliant discoveries at 2025 ASH! Save travel and best of luck!

Want to learn more about the insights we found at ASH? Join our community today: https://goto.mpnresearchfoundation.org/3XzZs7i

Sign up to join our MPN Research Foundation community to receive our monthly e-newsletter, Under the Microscope, our print Newsletter, and other timely communications about what’s happening in the MPN community, including:

12/04/2025

We’re stronger together.

When people living with rare diseases like myeloproliferative neoplasms (MPNs) share their health data and experiences over time, it helps researchers see the bigger picture and expand understanding.

Enroll in the MPN PROGRESSion Registry™ and help give back to this determined community, working diligently toward change.

At this time of year when we focus on friends and family, being thankful, and giving — your time and data can make a real difference for those living with this rare disease now and in the future. One data point, one story, one breakthrough at a time.

👉 Learn more, sign up today and be part of the progress. https://goto.mpnresearchfoundation.org/3VSmaqq

12/03/2025

“What I love about what I do is that I can take the questions patients ask me in clinic and go back to the lab to start finding answers,” says Dr. Brandi Reeves, MD.

A 2024 MPN Challenge™ award recipient, Dr. Reeves is leading one of the first studies to understand why kidney disease affects so many people with MPNs and how to prevent it.

Her team’s early results suggest that a familiar therapy, interferon-alpha, may help protect the kidneys in addition to its other benefits. This research could one day allow doctors to detect and stop kidney disease before it causes harm. 💙

Your support fuels discoveries like this.
👉 Donate Today: https://goto.mpnresearchfoundation.org/4nBJZOE