02/11/2026
We will see our patients into adulthood, but many across the world fall through the cracks ♥️ 💜
CHD doesn’t end at age 18.
A birthday doesn’t suddenly make a congenital heart “fixed,” and adulthood doesn’t erase the complexity we carry.
Adults living with CHD need specialized providers who truly understand congenital hearts, not just acquired heart disease. We need lifelong monitoring, coordinated care, and support systems built for long-term survival, not short-term milestones.
Too often, the conversation stops after childhood. Pediatric care is strong, but the bridge to adulthood is fragile, underfunded, or missing altogether. Many of us are left navigating complex hearts in systems that weren’t designed for us.
We need providers trained in adult congenital heart disease, healthcare systems that plan for decades, not years, and research that reflects what it means to live, age, work, parent, and survive with CHD.
Awareness can’t stop at childhood.
It must grow with us, listen to us, and include us, because adults with CHD are here, and our lives matter. 💙