Dystonia Medical Research Foundation

12/26/2025

IMPORTANT UPDATE: Effective Dec. 24, 2025, the U.S. Postal Service now considers the postmark date as the date that mail was processed at a USPS processing facility, not the date that the sender mailed the item. To avoid missing the end of year deadline for tax deductions on charitable donations, please consider an online donation or go to the counter of a USPS location before Dec. 31 to ensure your mail is postmarked for 2025. https://dystonia-foundation.org/donate-other-ways/donate-online/

12/10/2025

DMRF-branded merchandise is an opportunity to promote dystonia awareness. Help us identify the merch you want to use for your awareness efforts. Fill out this two-question survey to let us know what types of merchandise you would like to see offered on our online store.

https://bit.ly/4pD1GP1

11/13/2025

We’re seeking passionate runners ready to take on 26.2 miles to raise awareness and funds for dystonia research in the NYC Marathon on Sunday, Nov. 1, 2026.
✅ Limited spots available!
💰 $3,000 minimum fundraising commitment for each runner
🎟️ Runners are responsible for their own race entry fee
Help us move one step closer to a cure - email us at events@dystonia-foundation.org today to express your interest before the Nov. 30 team application deadline!

11/05/2025

It is with great sadness that we report the death of Mark Hallett, MD. Dr. Hallett was a giant in the field of movement disorders, a global expert in dystonia, and a great friend to the DMRF. Learn more about Dr. Hallett’s legacy on the DMRF website: https://dystonia-foundation.org/dmrf-remembers-mark-hallett-md/

10/10/2025

Individuals diagnosed with dystonia commonly experience symptoms that affect more than how the body moves. The impact of dystonia can go far deeper than motor symptoms and may affect a person’s emotional and mental health. On and every day remember that it is OK to ask for help to address your non–motor symptoms. https://dystonia-foundation.org/living-dystonia/mental-health/

09/22/2025

Thank you to everyone who participated in the Dystonia Warrior Ride this weekend. Your support brings hope.

09/16/2025

Thank you Senator Jim Banks for supporting Dystonia awareness during Dystonia Awareness Month.

09/05/2025

The Dystonia Warrior Ride is a charity motorcycle ride on Saturday, Sept. 20 to raise money for dystonia research and to bring dystonia awareness/education to Northern Illinois and Southern Wisconsin.

🙏 A huge thank you to our amazing sponsors and supporters for helping make the 5th Annual Dystonia Warrior Ride & Bike Show possible! Your generosity fuels our mission and keeps this event rolling strong. 🏍💙

Join us Saturday, September 20th for a day of riding, community, and support for Dystonia Warriors!
All proceeds benefit Dystonia Medical Research Foundation

08/13/2025

The Angel’s Walk for Dystonia in support of the Dystonia Medical Research Foundation is coming Alvin P. Williams Memorial Park in Sewaren, NJ on Sept. 27. Sign up by the T-shirt registration deadline on Aug. 26 to guarantee having an official T-shirt for event day. https://bit.ly/451Yrs3

08/04/2025

Thank you to everyone who participated in the Portland Dystonia Zoo Day on July 26. The Dystonia Medical Research Foundation is especially grateful for the support of our volunteers and sponsors. Photos from the event are available online. https://bit.ly/4kSH5Ui

07/14/2025

If you have been diagnosed with cervical dystonia, you may qualify to participate in a clinical research study that is enrolling now. You may be eligible to join this study if you:
• Are 18–80 years old.
• Have been diagnosed with cervical dystonia.
• Have received botulinum injections anytime in the past 5 years
Those who qualify may receive: Compensation for your participation in the study; reimbursement for travel and accommodations; no-cost for study-related care and no-cost for study medication. Control starts with research. See if you qualify today. https://bit.ly/4lggkJY

05/14/2025

Escape to Antigua by bidding on a 7-10 night stay at the luxurious St. James’s Club! Enjoy premium accommodations for up to 3 rooms and unwind on beautiful beaches. This is your chance to discover your inner beach bum by participating in the online Dystonia Medical Research Foundation Auction for Action May 12-22.

💙 All proceeds go to dystonia research. https://onecau.se/dystonia-foundation