CURE Epilepsy

CURE Epilepsy CURE Epilepsy is a nonprofit organization dedicated to finding cures for epilepsy.

CURE Epilepsy's mission is to fund breakthrough research that will transform the lives of people living with epilepsy as we lead the search for a cure. We are the leading nongovernmental agency fully committed to funding research in epilepsy. CURE Epilepsy has been at the forefront of epilepsy research, raising more than $90 million to fund innovative research and other initiatives that will lead the way to a cure for epilepsy. CURE Epilepsy funds grants for young and established investigators and has awarded more than 285 cutting-edge projects around the world to date.

Ronaldo has lived a successful life, defining his destiny while living with epilepsy. In his own words:" 'You have epile...
01/28/2026

Ronaldo has lived a successful life, defining his destiny while living with epilepsy. In his own words:

" 'You have epilepsy.' Those three words, delivered with clinical coldness in a crowded hospital corridor when I was fifteen, shattered my world. At an age when my peers were looking toward the horizon, my horizon had suddenly closed. For the next decade, I lived in a state of angry denial—refusing medication, ignoring my limits, and gambling with my life."

"That recklessness nearly ended on January 1st, when a seizure struck while I was driving, flipping my car onto its side. I was twenty-two years old. The accident was my wake-up call, but true control would take another three years of discipline and two more seizures to achieve."

"For the next fifty years, I led a double life. In the professional world, I was a high-stakes executive. I earned a Harvard-structured MBA and rose to become the Country Head for global giants like FedEx and Chiquita Logistics. I managed multi-million-dollar operations across six countries and four continents, often working in high-stress environments where a single mistake could be catastrophic."

"But beneath the bespoke suits and the boardroom presentations was a man in “Observation Mode”. I developed a rigorous, data-driven management system for my own brain. I maintained complete professional secrecy for five decades, terrified that the “stigma” of my condition would dismantle the career I had fought so hard to build."

Read the rest of his story:
https://bit.ly/49IYXPf

01/26/2026

It's 1/26! It's a perfect time to share your story as one of 26 Americans who developed epilepsy. Submit your epilepsy story here: https://bit.ly/4k148xr

The generosity of our donors gives scientists the freedom to stay focused on what matters most: better treatments, bette...
01/16/2026

The generosity of our donors gives scientists the freedom to stay focused on what matters most: better treatments, better outcomes, and ultimately a cure. Check out this special message to our community from some of our grantees 💜
https://bit.ly/4jKJYYk

CURE Epilepsy researchers send a message of thanks to those who supported epilepsy research during 2025.

We had such an amazing time at Freezing Man with our friends at Joey's Song this past weekend in Madison, WI. From the i...
01/15/2026

We had such an amazing time at Freezing Man with our friends at Joey's Song this past weekend in Madison, WI. From the incredible music to the special appearance by our very own Miguel Cervantes, this was truly an epilepsy event to remember. 🥶🎸

01/08/2026

On this month’s episode of Seizing Life®, Dr. Elinor Ben-Menachem, epileptologist, researcher and professor at the University of Gothenburg, shares insights and experiences from her 40-plus years working on clinical trials and providing care to refractory epilepsy patients.

🎙️ Tune in now! https://bit.ly/3NzULbF

When it comes to medication access, people with epilepsy and caregivers often face a lot questions, decisions, and chall...
01/06/2026

When it comes to medication access, people with epilepsy and caregivers often face a lot questions, decisions, and challenges. Our latest Treatment Talk with Dr. Christina Briscoe of Boston Children’s Hospital and caregiver Michele Torres discusses:

🤝 Collaborating with pharmacists

💊 Managing multiple prescriptions

🤔 Understanding branded and generic drugs

🚧 Dealing with potential insurance company barriers such as prior authorizations, filing appeals, and requesting peer-to-peer reviews

Watch here: https://www.cureepilepsy.org/treatment-talks/working_with_your_doctor_on_epilepsy_medication_access/

This video was generously supported by SK Life Science.

This Treatment Talk discusses working with your doctor to access new epilepsy drugs or switch your anti-seizure medications, and includes information on collaborating with pharmacists, managing multiple prescriptions, understanding branded and generic drugs, and dealing with potential insurance comp...

Meet Hannah, a resilient woman with Tuberous Sclerosis Complex (TSC) whose life was forever changed by surgery..."I was ...
12/30/2025

Meet Hannah, a resilient woman with Tuberous Sclerosis Complex (TSC) whose life was forever changed by surgery...

"I was diagnosed with epilepsy related to TSC when I was two years old. I had begun having infantile spasms as early as four months old. I began having complex partial to tonic clonic seizures 2-3x weekly for the first 14 years of my life."

"At 14, I was found to be a candidate for a partial left temporal lobectomy which reduced my seizure frequency down to almost none."

"While I still take medication and have chosen not to drive in case of a breakthrough seizure, I am so thankful to my pediatric neurologists and neurosurgeon in Texas for a more independent life. With my seizures under control, I was able to go on to graduate high school and college (which my parents were told I would never make it through after the TSC diagnosis)."

"A cure for epilepsy would mean seizure freedom for the many friends I met at my epilepsy summer camp I was fortunate to get to attend for 4 years, as well as greater independence in our lives."

Tell your story here: https://www.cureepilepsy.org/personal-stories/

For many of our staff members, our mission is personal — including our Events Manager, Madeline Felipez:“From birthdays ...
12/29/2025

For many of our staff members, our mission is personal — including our Events Manager, Madeline Felipez:

“From birthdays to galas to baby showers, I love planning parties. As CURE Epilepsy’s Events Manager, I’m proud to bring people together in celebration and hope. This work is immensely personal for me as my sister, Hannah, navigates life with epilepsy. I invite you to join me in advancing the research that brings hope to families like mine."

“For more than 12 years, I’ve witnessed firsthand how epilepsy complicates even the best moments of Hannah’s life. I held her hand in the emergency room the night before our mom’s wedding after her rescue medications failed to stop a seizure. Our family beamed as she became a firefighter and Advanced EMT after a severe seizure-related injury delayed her career path. We spent hours on the phone discussing her dream of motherhood and the risks of starting a family while on antiseizure medication."

“Alongside each triumph, Hannah feels the weight of ‘what if’ on her shoulders – what if the medications stop working?; what if I have another seizure?; what if my dreams are interrupted?"

“With your year-end support, CURE Epilepsy funded research can reduce the ‘what ifs’ that so many families carry every day.”

Contribute to the future of epilepsy research here: https://bit.ly/3LfzQKd

Born just after Christmas in 2018, Amaliyah was only 10 days old when her parents witnessed her first seizures. What fol...
12/26/2025

Born just after Christmas in 2018, Amaliyah was only 10 days old when her parents witnessed her first seizures. What followed was a year filled with endless questions, hospital stays, fear, and even a misdiagnosis.

Amaliyah was eventually diagnosed with SCN2A, a rare and complex genetic form of epilepsy. For her family, the diagnosis was a turning point that meant finally understanding the “why,” and it opened the door to proper treatment and hope.

With the right medication, a supportive school, and a village of people who believe in her, Amaliyah has been seizure-free since 2019. Today she is a thriving vibrant, joyful, bright little girl whose personality fills every room. Her story is a powerful reminder that epilepsy does not define a child. Resilience, love, and community do.

Her journey inspires us to keep pushing for earlier diagnoses, better treatments, and more research so families like hers never have to face these battles alone. 💜✨

Have an epilepsy story of your own? We'd love to hear it!

Share yours today: https://bit.ly/3Gs9F0c

“I’ve had epilepsy since I was a baby…” That’s how Marie‑Claire's epilepsy story begins. She was diagnosed at just 18 mo...
12/24/2025

“I’ve had epilepsy since I was a baby…” That’s how Marie‑Claire's epilepsy story begins. She was diagnosed at just 18 months old. Her early seizures were dismissed as “nightmares,” but the reality was far more serious. Like so many people with epilepsy, she endured years of hospital visits, and even brain surgery at age 12.

But today she is seizure-free.

Marie-Claire is the first to tell us: the fight isn’t over. Because epilepsy doesn’t always disappear with the last seizure. It leaves uncertainty, questions, and a longing for acceptance, for understanding, for a cure.

If her journey teaches us anything, it’s this: epilepsy may test you, but it doesn’t define you. It takes hope to walk forward one day at a time. 💜

Have an epilepsy story of your own? We'd love to hear it!
Share yours today: 🔗 https://bit.ly/3Gs9F0c

“If I could tell 9-year-old me that his epilepsy diagnosis doesn’t define him, I would do it. There’s always a light at ...
12/23/2025

“If I could tell 9-year-old me that his epilepsy diagnosis doesn’t define him, I would do it. There’s always a light at the end of the tunnel, and there’s a million stars in every dark sky.” ✨

In 2014, Danny fled the devastation of war in Syria after his home was bombed. The next year when he was nine, Danny was diagnosed with epilepsy, and soon after, PTSD and anxiety.

What came next was years of uncertainty: MRIs, EEGs, daily medications, and the constant worry of another seizure. He missed most of sixth grade. He missed simple joys like biking and playing outside. He lost pieces of childhood that can never be replaced.

But Danny’s story didn’t end in the dark. With the support of his family and a dedicated medical team, his seizures are now under control and, nearly a decade later, he’s thriving.

Have an epilepsy story of your own? We'd love to hear it!
Share yours today 🔗: https://bit.ly/3Gs9F0c

Address

420 N. Wabash Avenue, Suite 650
Chicago, IL
60611

Opening Hours

Monday 8:30am - 5pm
Tuesday 8:30am - 5pm
Wednesday 8:30am - 5pm
Thursday 8:30am - 5pm
Friday 8:30am - 5pm

Telephone

+13122551801

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