CURE Epilepsy

03/26/2026

At six‑and‑a‑half, Kora should be focused on crayons and playground games—not seizures that can interrupt her day without warning.

Some may remember Kora’s story from last Giving Tuesday. Today, as we wear purple, her family wanted to share that while Kora still has seizures, she remains a joyful, creative little girl who loves to draw and fill her home with color.

After her diagnosis at just one year old, Kora’s family turned fear into action, starting with a small cookie fundraiser to support epilepsy research. That hope still fuels progress today.

Every gift helps move research forward so children like Kora can have more seizure‑free days. 💜 Every child deserves a childhood without epilepsy getting in the way. Please consider giving today here: https://bit.ly/4ssrqQ4

03/25/2026

Newborns with hypoxic ischemic encephalopathy (HIE) face devastating seizures, and, unfortunately, many do not respond to available medications. Dr. Shilpa Kadam received a 2022 Robert Withrow Wier Catalyst Award to investigate a novel approach to treating HIE that targets the chloride co‑transporter KCC2. Now, four years later, she updates us on ongoing work at Axonis Therapeutics that may lead to a breakthrough in stopping seizures that are resistant to existing treatments, while also supporting healthy brain development. This exciting research not only brings hope for babies with HIE, but may also open the door to new treatments for refractory seizures across multiple neurological disorders.

03/24/2026

We can't wait to for the Purple Day Expo! In addition to stopping by the CURE Epilepsy booth, be sure to join our breakout session. 💜

03/23/2026

150 epilepsy organizations are united behind the bipartisan Act (S.494 / H.R. 1189). We need your help to keep building momentum to move this legislation forward.

This bill will enable necessary federal coordination to facilitate better outcomes for people with epilepsy and prioritize development of more effective treatments.

Take 5 minutes to contact your members of Congress and ask them to sign on.

Your voice matters. 👉 Take action here: https://bit.ly/NP4E

03/19/2026

See if you qualify here: https://survey.cmix.com/608BE45B/7E305C4Q/en-US

For any questions, contact: FocalSeizureStudy@iqvia.com

Disclaimer: Paid placement by IQVIA. Does not constitute an endorsement by or affiliation with CURE Epilepsy.

03/18/2026

In our latest episode of Epilepsy Explains, we explore the topic of catamenial epilepsy. Dr. Alexa King answers the questions:
💜 What is catamenial epilepsy?

💜 How is catamenial epilepsy diagnosed?

💜 Who gets catamenial epilepsy?

💜 How can catamenial epilepsy impact treatment and management of seizures?

💜 What effect does catamenial epilepsy have on seizure frequency in pregnancy?

💜 What effect do perimenopause and menopause have on seizures in people with catamenial epilepsy?

💜 When should someone consider finding a specialist in catamenial epilepsy and how can she locate one?

💜 What research needs to be done on catamenial epilepsy?

Catch the episode on our website here: https://bit.ly/4cHrbvB

03/17/2026

Save the date! 💜 Night of Discovery is happening Saturday, September 19, 2026.

CURE Epilepsy's annual Chicago Benefit is an exciting evening of cocktails, dinner, and dancing that brings together more than 500 of Chicagoland’s leading business and philanthropic voices.

Come together with our dedicated community to celebrate our collective achievements, hear stories from people impacted by epilepsy, and raise critical funds for epilepsy research.

For more information about sponsorship opportunities, attending the event, or any questions, please contact events@CUREepilepsy.org or 312-626-1793.

When you sponsor this event, you are demonstrating your commitment to epilepsy research while elevating your brand, connect with the community, engage your employees, and show your generosity.

Learn more and add to your calendar here: https://bit.ly/4uAxpE0

03/12/2026

If you’ve ever wondered, “What epilepsy treatments are in the works? What new options might help me or my loved one?”, this webinar is for you. Join us next month for the first installment of our Pipeline of Progress webinar and Q&A series all about epilepsy medications in Phase 3 clinical trial.

You’ll get clear information, real insights, and a hopeful look at what the future of epilepsy treatment may hold. Register now here: https://us02web.zoom.us/webinar/register/4617730737695/WN_zeGoNN4lRHO2hoKViIFaqA

Webinar on epilepsy medications in Phase 3 trials, exciting ideas scientists are exploring, and a few promising treatments that may be getting closer to approval.

03/11/2026

Taking to the stage at CURE Epilepsy Takes Manhattan is...
Brian Johnson, original cast of Spring Awakening
Rebecca Naomi Jones, Hadestown
Ben Thompson, Waitress
Libby Winters, Momma Mia!

Tickets and sponsorships are available for this one-of-a-kind show here: https://bit.ly/40htPAP

ABOUT OUR PERFORMERS Join us on Monday, May 4th, 2026, for our third annual New York City benefit, CURE Epilepsy Takes Manhattan! Our host, Broadway star Miguel Cervantes is a dedicated epilepsy research advocate and longtime champion of CURE Epilepsy, working tirelessly with his wife Kelly in m...

03/05/2026

Arigato gozaimasu to our Tokyo marathon runner, Brooke! 🗼👟 Around mile 10, someone shared with her that their son has epilepsy and thanked her for racing to support epilepsy research. A great reminder that we can find community anywhere and inspire hope in each other. 💜

We'll be back in 2027 as a charity partner in Tokyo again! You can apply to join here: https://bit.ly/4cAjR4Z

03/04/2026

All's fair in love and epilepsy....okay, maybe not all. We sat down with What the Ef?! podcast host Landis Wiedner to get her perspective on life and love with epilepsy. Full episode now available on your favorite podcasting platform or here: https://bit.ly/4rHKTfe

03/02/2026

"A cure would mean freedom from the binds of epilepsy that literally have Ben tied to his bed, a couch, a seat, the supervision of an adult or family member familiar enough with his seizures to keep life threatening injuries at bay."

"It would mean the freedom to walk from one place to another (even over concrete!) without considerations of safety. It would mean enjoying sports, and just plain exercise again."

"It would mean accessing post secondary education and the possibility of living independently one day, having friends he’s sees outside of school or FaceTime."

"It would mean a roadmap for his future when mom and dad are not here to spot his every move in order to prevent life threatening falls. I mean, I don’t know how else to say it would mean a completely different life than the one he is currently living. It would mean everything."

Drop some support for Ben and his family in the comments and check out his story here: https://bit.ly/4beZSGL 💜