The LAM Foundation

The LAM Foundation Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from The LAM Foundation, Medical and health, 4520 Cooper Road, Suite 300, Cincinnati, OH.

The LAM Foundation is a non-profit, voluntary health agency whose primary goal is to find an effective treatment and ultimately a cure for lymphangioleiomyomatosis (LAM) through peer-review funding of promising research.

The recording for the latest LAMposium in Your Living Room Circle of Hope webinar is now available.Please watch this int...
12/22/2025

The recording for the latest LAMposium in Your Living Room Circle of Hope webinar is now available.

Please watch this interactive discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.

Watch now: https://youtu.be/wiHQxesHMfA

Registration is now open for the next LAMposium in your Living Room, Understanding Supplemental Oxygen, Device Options, ...
12/21/2025

Registration is now open for the next LAMposium in your Living Room, Understanding Supplemental Oxygen, Device Options, and Tips for Staying Active.

Join Susan Jacobs, MS, RN, FAAN, as she provides an overview of supplemental oxygen basics, assessing the need for oxygen, its importance, and how to integrate it into your daily routines.

Bring your curiosity and submit your questions in advance to patientservices@thelamfoundation.org by January 15, 2026.

Register Now: https://www.tfaforms.com/5206874

New Insights into LAM and Lung HealingIn women with LAM, abnormal cells known as LAM cells activate a “growth switch” ca...
12/19/2025

New Insights into LAM and Lung Healing

In women with LAM, abnormal cells known as LAM cells activate a “growth switch” called the mTOR pathway, leading to excessive cell growth and the formation of LAM nodules. These nodules produce harmful proteins that damage lung tissue, creating cysts that can cause lung collapse and breathing difficulties.

Recent research from Nottingham, UK, in collaboration with researchers from the UK and the US, explored whether LAM nodules hinder lung healing. The study revealed that LAM cells produce a protein called IL-6, which can cause nearby cells to become dysfunctional, impeding repair processes.

Encouragingly, treatments like sirolimus and tocilizumab showed promise in lowering IL-6 levels and enhancing lung cell repair. Continued research may lead to new therapeutic options for women with LAM.

Learn More: https://www.thelamfoundation.org/study-suggests-that-blocking-protein-il-6-may-help-protect-and-heal-lungs-in-lam-patients

The LAM Foundation believes in the power of collaboration to advance advocacy efforts. Recently, Cindy Beasley, Director...
12/18/2025

The LAM Foundation believes in the power of collaboration to advance advocacy efforts. Recently, Cindy Beasley, Director of Education and Advocacy, attended the EveryLife Foundation for Rare Diseases' Community Congress in Washington, DC. Through her participation on the Access & Value Committee, Cindy helps ensure that the LAM patient voice remains central in shaping national rare disease policy priorities.

Give a gift that gives back this holiday season! Check out our merchandise store featuring the popular “Can you say lymp...
12/17/2025

Give a gift that gives back this holiday season! Check out our merchandise store featuring the popular “Can you say lymphangioleiomyomatosis” t-shirts, Rosie mugs, and more. When you purchase these items, a portion of the proceeds goes to The LAM Foundation.

Spread the word and be sure to return often for new product additions!

https://tlf-merch.printify.me/category/all/1

12/16/2025

Let’s finish 2025 strong!

At The LAM Foundation, giving isn’t just a season; it’s what powers real hope every day.
Because of supporters like you, women with LAM find:
• Answers when symptoms are confusing
• Community when they feel alone
• Care that is life-improving — and life-saving

Jennifer is one of them. After repeated lung collapses and overwhelming fear, she found hope with The LAM Foundation.

“They connected me to doctors, the right treatment, and people who understood. They gave me back my life.”

As we close out the year, there are so many ways to make a meaningful 2025 gift:
• Give online: Fast & easy → thelamfoundation.org/donate
• Mail a check: Postmarked by Dec 31
• Give from your IRA (QCD), stock or securities, or your Donor-Advised Fund (DAF) thelamfoundation.org/yearend

Every gift supports the LAM community, advocacy, and research.

Let’s end 2025 stronger than ever, for every woman with LAM.

LAST CHANCE! Our Circle of Hope webinar is TONIGHT: Mon, Dec. 15, 7PM – 8:30PM ET.Please join us for a discussion with p...
12/15/2025

LAST CHANCE! Our Circle of Hope webinar is TONIGHT: Mon, Dec. 15, 7PM – 8:30PM ET.

Please join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way. Bring your curiosity and questions for this engaging session.

Register: https://www.tfaforms.com/5201758

Don't forget to register! Our Circle of Hope webinar is just a few days away: Mon, Dec. 15, 7PM – 8:30PM ET.Please join ...
12/13/2025

Don't forget to register! Our Circle of Hope webinar is just a few days away: Mon, Dec. 15, 7PM – 8:30PM ET.

Please join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way. Bring your curiosity and questions for this engaging session.

Register: https://www.tfaforms.com/5201758

Calling all creatives in our LAM community: your art can help shift how the world understands rare diseases. NCATS has l...
12/12/2025

Calling all creatives in our LAM community: your art can help shift how the world understands rare diseases. NCATS has launched the Rare Diseases Are Not Rare! Challenge, inviting patients to use digital art, videos, poetry, music, posters, or any creative medium to spotlight the power of collective rare disease research. With more than 10,000 rare diseases—and shared pathways that can accelerate treatments—your voice matters. This is your chance to inspire awareness, connection, and progress across the entire rare disease community.

Entries are due January 2.

Learn more: https://www.challenge.gov/?challenge=rare-diseases-are-not-rare-2025-challenge

12/11/2025

Thank you for your support of LAM patients like Jen. Watch her story of strength and hope.

When Jen’s lung collapsed at 28, she thought her life was over. Thanks to The LAM Foundation and supporters like you, Jen found the care and community that changed everything. Now she’s thriving — and helping others do the same.

If Jen’s story inspired you, please give today to support patient care, research, and community programs: thelamfoundation.org/donate

12/11/2025

Give a gift that gives back this holiday season! Check out our merchandise store featuring the popular “Can you say lymphangioleiomyomatosis” t-shirts, Rosie mugs, and more. When you purchase these items, a portion of the proceeds goes to The LAM Foundation.

Spread the word and be sure to return often for new product additions!
https://tlf-merch.printify.me/category/all/1

You have the power to change someone’s story, just like you changed Jennifer’s. Jennifer was just 28 when she was diag...
12/09/2025

You have the power to change someone’s story, just like you changed Jennifer’s.

Jennifer was just 28 when she was diagnosed with LAM after six lung collapses. When Jennifer found The LAM Foundation she also found hope.

“They connected me to doctors, the right treatments, even the right medicine. They held our hands through the whole thing.”

Today, Jennifer is thriving — working out, sharing her story, and inspiring others to stay strong.

Your support makes stories like hers possible.
And we’re not stopping until every woman with LAM can live with strength, hope, and a future with a cure.

This season, give in honor, in memory, or because you believe in a world without LAM.

Let’s Finish 2025 Strong. As Strong as Jennifer!

DONATE NOW: thelamfoundation.org/donate

Address

4520 Cooper Road, Suite 300
Cincinnati, OH
45242

Opening Hours

Monday 9am - 5:30pm
Tuesday 9am - 5:30pm
Wednesday 9am - 5:30pm
Thursday 9am - 5:30pm
Friday 9am - 5:30pm

Telephone

+15137776889

Website

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