The LAM Foundation

The LAM Foundation Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from The LAM Foundation, Medical and health, 4520 Cooper Road, Suite 300, Cincinnati, OH.

Our mission: To catalyze new treatments—and ultimately a cure—for LAM by advancing research, supporting compassionate care, and amplifying the voice of women with rare diseases.

Grant Study Section Patient Voice CommitteeApplications are now open to join the Patient Voice Committee (PVC). PVC memb...
03/16/2026

Grant Study Section Patient Voice Committee

Applications are now open to join the Patient Voice Committee (PVC). PVC members will review grant proposals alongside scientific reviewers, provide feedback from a patient perspective, and vote on which studies to fund. The PVC ensures the patient voice is heard and that research remains focused on studies that will most impact those living with LAM.

Details:

Who: 3 patients will be selected (US and International)

Commitment: 25-30 hours per year

Term: 3 years

Interested? If you are active in the LAM Community and want to shape the future of LAM research, we want to hear from you!

Learn more and apply: https://www.thelamfoundation.org/take-action/gss-patient-voice-committee/

Congratulations to Dr. Ildikó Krencz, MD, PhD, from Semmelweis University, for receiving the Pilot-Feasibility Award. He...
03/13/2026

Congratulations to Dr. Ildikó Krencz, MD, PhD, from Semmelweis University, for receiving the Pilot-Feasibility Award. Her research will focus on Cellular Plasticity and Microenvironmental Remodeling in LAM: A Digital Spatial Proteomics Approach.

03/12/2026

The Easy Breathers are at it again for their 13th Million Dollar Bike Ride! Join us in person in Philadelphia on Saturday, June 13, or virtually from your chosen location on your chosen date. Thanks to your generous support, The LAM Foundation's Easy Breathers has raised nearly $1 million over the last twelve years.

Join our team and create your fundraising page today!
https://ow.ly/SUuv50YoEYl

03/11/2026

Registration is now open!

Dr. Joel Moss and the LAM team from the National Institutes of Health (NIH) will discuss research being conducted in current and planned LAM protocols. They will describe what to expect when you participate in the protocols and will provide updates about ongoing clinical and translational research studies.

Bring your curiosity and submit your questions on this topic to patientservices@thelamfoundation.org by March 6, 2026.

Register: https://www.tfaforms.com/5210862

03/10/2026

Mark Your Calendars for COPD Foundation, OxyTalk
Wednesday, March 11, 4:00 pm - 5:00 pm ET

Join the COPD Foundation's oxygen community virtual coffee hour!! Please feel free to send any questions in advance to oxygen360@copdfoundation.org, or stop by to enjoy some time together!

OxyTalk is open to anyone on supplemental oxygen. It’s an opportunity to ask a respiratory therapist questions and hear from others on supplemental oxygen, and it occurs on the second Wednesday of every month. It is hosted by Mike Hess of the COPD Foundation.

Registration required: https://us06web.zoom.us/meeting/register/tZEvf-uhpjoqG9fhEov5dwfjSS__bf6BGfj0?fbclid=IwY2xjawQdQzhleHRuA2FlbQIxMABicmlkETFRNjNzUzRWMGtzaXVnMnhxc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHt1ivUW4u43PZNDmoghJQfwLXtUQekHF4AIuOJjtRbVqGwbFdDyyyYnkyMEQ_aem_3eCybI2BEx1n18XLt1u98g #/registration

THANK YOU! The LAM community does not disappoint. More than 25 of you stepped up and met the challenge to become monthly...
03/10/2026

THANK YOU! The LAM community does not disappoint. More than 25 of you stepped up and met the challenge to become monthly donors. You not only unlocked $15,000 of matching dollars, but you also provided The LAM Foundation with reliable funding all year long. That means that women with LAM will get the support, care, and life-improving research that they deserve.

Join this amazing group of donors with your recurring gift today!

https://give.thelamfoundation.org/give/761254/ #!/donation/checkout

Congratulations to Harriet Davidson, diagnosed with LAM in 2019, for completing 4 marathons in 4 days!"Despite having ra...
03/09/2026

Congratulations to Harriet Davidson, diagnosed with LAM in 2019, for completing 4 marathons in 4 days!

"Despite having rare lung condition Lymphangioleiomyomatosis, diagnosed in 2019, I successfully completed the distance of 4 marathons in 4 days, spelling out “LAM” on the map and truly defying the odds of lung disease. It feels incredibly surreal. I had the most amazing support around me of my husband Adam and best friend Lauren running with me; my mum in a support car, and a physio from Wiltshire who joined us on the evenings.

We spent months meticulously planning this event, going out in the depths of the winter in the horrific conditions to plan the route; checking roads and fields to ensure we could safely run down them, and to ensure spelling “LAM”. The rolling hills of Somerset and Wiltshire took true grit to get through. I developed a nasty blistered on day 2 which led to some extremely difficult foot pain. We also had the stress of our accommodation being cancelled on us two days before the event, leading to a stressful lead up to the event!

Over the course of the 4 days, we climbed over 2500m of altitude over the course of the four days, despite all of our aches and pains, had long and isolating moments on the Imber range and Salisbury plain, but the true determination and support from donations, positive messages and kind strangers truly got us through. Incredibly proud to say I am not defined by my lung disease, and I hope I have truly put “LAM” on the map. My body and mind so much more capable than I ever imagined. Starting off on mine and my husbands wedding anniversary, 25th February and ending on rare disease day, 28th February outside of the Salisbury cathedral, the success of completion was truly magnificent"

"Despite having rare lung condition Lymphangioleiomyomatosis, diagnosed in 2019, I successfully completed the distance of 4 marathons in 4 days, spelling out “LAM” on the map and truly defying the odds of lung disease. It feels incredibly surreal. I had the most amazing support around me of my husband Adam and best friend Lauren running with me; my mum in a support car, and a physio from Wiltshire who joined us on the evenings.

We spent months meticulously planning this event, going out in the depths of the winter in the horrific conditions to plan the route; checking roads and fields to ensure we could safely run down them, and to ensure spelling “LAM”. The rolling hills of Somerset and Wiltshire took true grit to get through. I developed a nasty blistered on day 2 which led to some extremely difficult foot pain. We also had the stress of our accommodation being cancelled on us two days before the event, leading to a stressful lead up to the event!

Over the course of the 4 days, we climbed over 2500m of altitude over the course of the four days, despite all of our aches and pains, had long and isolating moments on the Imber range and Salisbury plain, but the true determination and support from donations, positive messages and kind strangers truly got us through. Incredibly proud to say I am not defined by my lung disease, and I hope I have truly put “LAM” on the map. My body and mind so much more capable than I ever imagined. Starting off on mine and my husbands wedding anniversary, 25th February and ending on rare disease day, 28th February outside of the Salisbury cathedral, the success of completion was truly magnificent"

They made it! Huge congratulations to Harriet Davidson, her husband Adam and best friend Lauren Weetch for battling through the pain barrier and completing 4 marathons in the space of 4 days to raise funds and awareness for LAM Action.

“We climbed over 2500m of altitude over the course of the four days, despite all of our aches and pains and blisters, had long and isolating moments on the Imber range and Salisbury plain, but the true determination and support from donations, positive messages and kind strangers truly got us through.”

An awesome achievement – well done to you all!

And they’re not stopping there – a charity quiz on Friday night will keep the fundraising going, with an incredible amount of approximately £8,000 raised so far! Big thanks to everybody who has supported their fundraising, if you would like to help, please visit the link below:

https://www.justgiving.com/page/harriet-saunders-3?utm_medium=FR&utm_source=CL&utm_campaign=021&fbclid=IwY2xjawQSVFRleHRuA2FlbQIxMABicmlkETBNY2doakhUbVRtejRxcDNOc3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHtrZWnDCBbzcLUqI4F_P41F1kA-Onc4Z_wxhJB-NHctGbci9b-wzZIxxDRrA_aem_nJZAPl01PLGyAXOQFhQfnw

Well done again and thank you from all of us at LAM Action.

This month's LAMposium in Your Living Room is Thursday -- Don't forget to register! https://www.tfaforms.com/5210862
03/09/2026

This month's LAMposium in Your Living Room is Thursday -- Don't forget to register! https://www.tfaforms.com/5210862

Registration is now open!

Dr. Joel Moss and the LAM team from the National Institutes of Health (NIH) will discuss research being conducted in current and planned LAM protocols. They will describe what to expect when you participate in the protocols and will provide updates about ongoing clinical and translational research studies.

Bring your curiosity and submit your questions on this topic to patientservices@thelamfoundation.org by March 6, 2026.

Register: https://www.tfaforms.com/5210862

Congratulations to Dr. Roya Babaei Jadidi, PharmD, PhD, from the University of Nottingham, for receiving a 2025 Pilot Fe...
03/06/2026

Congratulations to Dr. Roya Babaei Jadidi, PharmD, PhD, from the University of Nottingham, for receiving a 2025 Pilot Feasibility Award from The LAM Foundation Grant Program. She will focus on Targeting IL-6 Signaling to Restore Alveolar Regeneration in Lymphangioleiomyomatosis.

Update: We still need 6 more people to start their monthly gift by 11:59 PM tonight to unlock the $15K match!
03/06/2026

Update: We still need 6 more people to start their monthly gift by 11:59 PM tonight to unlock the $15K match!

CHALLENGE EXTENDED! New $15,000 match available.

Thank you for celebrating Rare Disease Day with The LAM Foundation!

Because of the generous LAM community, we unlocked a $15,000 match from our anonymous donor by raising $15,000 on Rare Disease Day.

Now, we have the opportunity to receive an additional $15,000 in funding! 15 new monthly donors are needed by this Friday, March 6th, to reach our goal of 25 recurring donors.

Join us as a monthly donor today. No gift is too small. $5, $10, or $20 a month is a meaningful way to support The LAM Foundation.

Your steady support allows us to plan with confidence, invest in groundbreaking research, expand education and awareness, and ensure patients have access to trusted resources and expert care.

What makes your gift especially powerful is its reliability. Research doesn’t pause. Patient needs don’t wait. Because of you, neither do we.

Start your monthly donation today:

https://give.thelamfoundation.org/give/761254/ #!/donation/checkout

Address

4520 Cooper Road, Suite 300
Cincinnati, OH
45242

Opening Hours

Monday 9am - 5:30pm
Tuesday 9am - 5:30pm
Wednesday 9am - 5:30pm
Thursday 9am - 5:30pm
Friday 9am - 5:30pm

Telephone

+15137776889

Alerts

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