The LAM Foundation

04/06/2026

The LAM Foundation is pleased to share that a new LAM Clinic has opened at Inova Fairfax Hospital in Falls Church, VA. Dr. Zein Kattih serves as Clinic Director and is committed to providing informed clinical care for patients with LAM.

To locate a LAM Clinic in your area, visit https://www.thelamfoundation.org/find-support/locate-a-lam-clinic/

04/03/2026

Thanks to the amazing support from the LAM community and participation in a research survey conducted by the University of Washington, results from a study about urinary incontinence in LAM have been published in the Cardiopulmonary Physical Therapy Journal under the title “Stress Urinary Incontinence Is Prevalent in Women with Lymphangioleiomyomatosis”.

The study led by Dr. Brenna Lanton in the research laboratory of Dr. Mary Beth Brown found that urine leakage is very common in women with LAM, and most are not getting help for it.

Read the full article here: https://www.thelamfoundation.org/new-research-shows-urine-leakage-is-a-common-symptom-in-those-with-lam/

04/02/2026

Closing soon: Application to join the Patient Voice Committee (PVC).

PVC members will review grant proposals alongside scientific reviewers, provide feedback from a patient perspective, and vote on which studies to fund. The PVC ensures the patient voice is heard and that research remains focused on studies that will most impact those living with LAM.

Details:

Who: 3 patients will be selected (US and International)

Commitment: 25-30 hours per year

Term: 3 years

Interested? If you are active in the LAM Community and want to shape the future of LAM research, we want to hear from you!

Apply by April 4, 11:59 PM ET: https://ow.ly/ScFI50YzLES

04/01/2026

LAM Jerseys and Running Shirts Now Available!

Want to show team spirit in the fight to end LAM? Purchase your The LAM Foundation Easy Breathers jersey or shirt by April 24.

https://ow.ly/GFsb50Yzlxk

03/31/2026

It's here! The March edition of The LAM Foundation newsletter is now available. Click here to read the latest: https://mailchi.mp/thelamfoundation/heres-the-latest-the-lam-foundation-newsletter-8489603

03/31/2026

Don't forget to join today before registration prices increase tomorrow! Learn more and register: https://charity.pledgeit.org/MillionDollarBikeRide/teams/

🚴‍♀️ATTENTION MDBR RIDERS!
Registration prices for the Million Dollar Bike Ride are going UP on April 1st!

Lock in your spot at the current price of $65 before the non-fundraising option increases to $85.

Save money and show up on June 13th to support your rare disease team! 🧬💙
Register NOW at bit.ly/MDBR2026

03/30/2026

Registration is now open for our next webinar on WEDNESDAY 4/29!

After a lung transplant, careful monitoring is essential to protect the health and longevity of the transplanted lungs. Rejection can occur even when a patient feels well, so recognizing early warning signs and understanding how rejection is monitored are critical parts of post-transplant care. This session will discuss the different types of lung transplant rejection, common early symptoms, and the tests doctors use to detect changes as early as possible.

Bring your curiosity and submit your questions on this topic to Kkinsey@thelamfoundation.org by April 20, 2026.

Register: https://www.thelamfoundation.org/event/circle-of-hope-recognizing-and-monitoring-earl-signs-of-lung-transplant-rejection/

03/27/2026

Applications are now open to join the Patient Voice Committee (PVC). PVC members will review grant proposals alongside scientific reviewers, provide feedback from a patient perspective, and vote on which studies TLF should fund. The PVC ensures the patient voice is heard and that research remains focused on what matters most to those living with LAM. The deadline to apply is 11:59 PM ET on Sunday, April 5.

Learn more: https://www.thelamfoundation.org/take-action/gss-patient-voice-committee/

03/26/2026

Join team Easy Breathers before registration fees increase on April 1! Help raise funds for LAM in person at the Bike ride or virtually from a location of your choice.

Learn more and register: https://charity.pledgeit.org/manage/t/bvpm2v53vk

🚴‍♀️ATTENTION MDBR RIDERS!
Registration prices for the Million Dollar Bike Ride are going UP on April 1st!

Lock in your spot at the current price of $65 before the non-fundraising option increases to $85.

Save money and show up on June 13th to support your rare disease team! 🧬💙
Register NOW at bit.ly/MDBR2026

03/23/2026

The LAM Foundation is pleased to share that there is a new LAM Clinic at Northwestern Medicine Canning Thoracic Institute in Chicago, IL. Dr. Krishnan Warrior serves as Clinic Director and is committed to providing informed clinical care for patients with LAM.

To locate a LAM Clinic in your area, visit https://www.thelamfoundation.org/find-support/locate-a-lam-clinic/

03/20/2026

Congratulations to Dr. Khaled Tighanimine, PhD , from Harvard T.H. Chan School of Public Health, Boston, MA , for receiving the Pilot-Feasibility Award. His research will focus on Exploiting mTORC1-mediated changes in lipid metabolism to identify novel LAM treatments.

03/19/2026

Did you miss last week’s LAMposium in Your Living Room? We’ve got you covered! The recording is now available. Watch here: https://youtu.be/_x7GHe9HjHA