The LAM Foundation

02/04/2026

Mark your calendar! 📅

FDA's virtual is February 23, 2026. Together, we're prioritizing accelerating medical products for rare diseases and ensuring patient perspectives guide our decisions. Every rare disease matters.

Register now: http://www.fda.gov/RareDiseaseDay

02/04/2026

Register for Rare Disease Day! The National Institutes of Health (NIH) is hosting a free, hybrid event on Feb. 27.

Learn about scientific challenges and opportunities to advance treatment research. Details here: https://go.nih.gov/2gEWmK1

02/03/2026

Looking for ways to support those living with LAM on ? There are many ways to participate! Check out our special Rare Disease Day newsletter to learn how.
https://ow.ly/UHFr50Y8upW

01/29/2026

It's here! The January edition of The LAM Foundation newsletter is now available. Click here to read the latest: https://ow.ly/viGv50Y5Hra

01/29/2026

Ready to share your story and take part in rare disease advocacy? Join the EveryLife Foundation for Rare Diseases for a virtual session, “How to Get Involved,” on Thursday, February 12 at 6 PM ET. You’ll hear about our programs, events, and the many ways to engage in advocacy through the Foundation. Register now at: https://hubs.li/Q040VdMn0

Can’t attend in February? These sessions will be offered every other month on the second Thursday at 6 PM ET.

Want to start connecting now? Sign up for our newsletter so you never miss an opportunity: https://hubs.li/Q040Vjb50

01/28/2026

On 2/28, , the world pauses to recognize people living with rare diseases. But for women with LAM, every day is Rare Disease Day.

Every day brings symptoms they can’t ignore.

Every day brings uncertainty about the future.

Every day requires strength—and support.

Julie is one of those women. In 2020, a routine CT scan revealed LAM. Her doctor told her, “Don’t Google this. Call The LAM Foundation.”

She did both.

Google showed her the worst. The LAM Foundation showed her hope.

Because of you, Julie has access to treatment that slowed her disease. Today, she's a grateful donor to The LAM Foundation. She gives because another woman will hear “You have LAM” tomorrow.

To honor Rare Disease Day and the daily fight women with LAM face, an anonymous donor has stepped up with a powerful challenge: raise $15,000 by 2/28, and they will match every dollar.

Your gift fuels what women rely on every day—guidance at diagnosis, education for clinicians, connection to community, and research that drives progress.

Every gift counts. Every gift matters. And every gift brings us closer to unlocking the full match. On Rare Disease Day, will you stand with Julie and make a gift to keep hope alive?

https://ow.ly/PaUB50Y53Bi

01/27/2026

Did you miss last week’s LAMposium in Your Living Room? We’ve got you covered! The recording is now available. Watch here: https://youtu.be/9uXvQQeUCsM

01/26/2026

LAM Clinician Spotlight: Ali Ataya, MD

Dr. Ali Ataya has been advancing care for people living with LAM since 2016, when he helped establish the LAM Clinic at the University of Florida. With a longstanding interest in rare lung diseases and the guidance of dedicated mentors, Dr. Ataya has played a key role in building specialized, compassionate care for the LAM community.

He credits The LAM Foundation as an essential partner in connecting patients and providers, expanding a community of shared expertise, and reinforcing a shared commitment to delivering the best possible care. Today, as a co-chair of the Clinical Advisory Board, Dr. Ataya gives back by supporting new providers and helping strengthen and expand the LAM care network. “It has been an extraordinarily rewarding experience,” he shares, reflecting on the collective impact of collaboration, mentorship, and community.

Learn more about the LAM Clinic Network here: https://ow.ly/qWAR50Y3R54

01/20/2026

TOMORROW: LAMposium in your Living Room, Understanding Supplemental Oxygen, Device Options, and Tips for Staying Active.

Join Susan Jacobs, MS, RN, FAAN, as she provides an overview of supplemental oxygen basics, assessing the need for oxygen, its importance, and how to integrate it into your daily routines.

Register Now: https://www.tfaforms.com/5206874

01/19/2026

Don't forget to register for Wednesday's LAMposium in Your Living Room!
https://www.tfaforms.com/5206874

Registration is now open for the next LAMposium in your Living Room, Understanding Supplemental Oxygen, Device Options, and Tips for Staying Active.

Join Susan Jacobs, MS, RN, FAAN, as she provides an overview of supplemental oxygen basics, assessing the need for oxygen, its importance, and how to integrate it into your daily routines.

Bring your curiosity and submit your questions in advance to patientservices@thelamfoundation.org by January 15, 2026.

Register Now: https://www.tfaforms.com/5206874

01/14/2026

Our next LAMposium in your Living Room is just 1 week away!

Understanding Supplemental Oxygen, Device Options, and Tips for Staying Active.

Join Susan Jacobs, MS, RN, FAAN, as she provides an overview of supplemental oxygen basics, assessing the need for oxygen, its importance, and how to integrate it into your daily routines.

Bring your curiosity and submit your questions in advance to patientservices@thelamfoundation.org by January 15, 2026.

Register Now: https://www.tfaforms.com/5206874