Tri-State Bleeding Disorder Foundation

12/19/2025

Help NBDF and the bleeding disorders community call on Congress to lower patient copays. 2 minutes of your time could make all the difference!

Tell your member of Congress to support the HELP Copays Act! (H.R. 6423/S. 864)

12/08/2025

There is still time to sign up for tonight's "Dinner and a Movie"! Join us for the TSBDF viewing of "Dismissed" today, Monday, December 8th Theater
Registration will take place at 5:30 p.m.
Dinner and the viewing will follow starting at 6 p.m.

Click below to sign up and for more event details!

Join us for dinner and a movie! This event is open to all bleeding disorder patients, caregivers, and immediate family members.

12/03/2025

TSBDF Dinner & a Movie
Viewing of "Dismissed"
Monday, December 8th
Theater

Registration will take place at 5:30 p.m.
Dinner and the viewing will follow starting at 6 p.m.

The documentary, "Dismissed" focuses on the challenges women face with bleeding disorders like hemophilia, particularly the delayed diagnoses and inadequate treatment resulting from gender bias in medicine. The film follows the stories of several women, including a pregnant mother, a paralyzed woman, and a young advocate, highlighting the lack of understanding, treatment gaps, and misdiagnoses they have experienced.

Isabelle, the young advocate from Ohio who is featured in the film, will be in attendance to talk about her journey of living with a bleeding disorder.

This program is presented by Sanofi.

This program is for all bleeding disorder patients, caregivers and their immediate family members living in the same household.

Childcare will not be provided.

Join us for dinner and a movie! This event is open to all bleeding disorder patients, caregivers, and immediate family members.

12/02/2025

Families living with bleeding disorders face daily challenges—accessing treatment, navigating emergencies, and managing the emotional and financial strain. Your gift helps us provide critical support, education, and hope.

❤️ Every donation today goes directly toward empowering individuals and families in our bleeding disorders community.
👉 Donate. Share. Advocate. Together, we bring strength and support to every diagnosis.


https://secure.acceptiva.com/?cst=7248e7

12/01/2025

Tomorrow is ! Your donation helps create meaningful moments for our patients through programs like Camp NJoyItAll and the Tee Up Golf Clinic. Thanks to the generosity of our donors, these unforgettable experiences are offered at no cost to our patients and their siblings.

11/12/2025

Join us for a Hemophilia Education Program and Dinner at Jag's Steak and Seafood, tomorrow, November 13th.
Join us for us for dinner and education to learn about the benefits and safety of Sanofi’s portfolio of hemophilia treatment options, ALTUVIIIO, Qfitlia, and ALPROLIX.

This program is presented by Sanofi.

This program is for Hemophilia patients, caregivers and their immediate family members (18 and older) living in the same household.

Registration is required! Space is limited and available on a first come, first served basis. Click below to register today!

Join us for dinner and education! This event is open to Hemophilia patients, caregivers, and immediate family members.

11/10/2025

There are limited spots left for the VWD Education Dinner taking place this Wednesday, November 12th at Maggiano's. The program is for VWD patients and their immediate family members living in the same household. Click below to register today!

Join us for dinner and education! This event is open to VWD patients, caregivers, and immediate family members.

11/06/2025

Thank you to everyone who came out for our Ask the Doc/Annual Meeting last night! Dr. Maria Carter-Febres from CCHMC HTC, Dr. Kristine Karkoska from UC’s HTC, and Dr. Erin Espinoza from Tri-Health Hematology made up our panel for this event. All three physicians took the time to talk about current therapies and research, updates at all of the centers and then took questions from the audience.
We want to thank our sponsors who helped make this event possible:
Gold level: Pfizer and Novo Nordisk
Silver Level: Genentech and Sanofi
Accredo SP, Bayer, Cincinnati Children’s Hospital HTC, HEMA Biologics, Optum, Soleo Health, & Takeda

11/04/2025

Millions of Americans depend on the Affordable Care Act (ACA) for health insurance, over 26 million people, including many living with chronic conditions.

Right now, Congress is at a standstill whether to keep the tax credits that make this coverage affordable. Let’s be clear- this isn’t about refusing to compromise, it’s about ensuring that Americans are protected. Without these tax credits, insurance premiums will skyrocket, and many families will no longer be able to afford care.

What’s Changing:
Low-Income Special Enrollment (for people under 150% of the poverty line) ends August 25, 2025.
DACA recipients will lose Marketplace coverage that same day.
Some lawfully present immigrants will lose tax credit eligibility in 2026.
People who earn more than expected will have to repay all extra tax credits, with no repayment limit.
Plans may require payment of old premiums before reenrollment.
Auto-enrollment rules are changing, and some fees will apply.

Important Dates:
Nov 1: Open Enrollment begins
Dec 15: Last day to choose a plan for Jan 1 coverage
Dec 31: Last day to cancel unwanted auto-enrollment
Jan 15: Open Enrollment ends

What You Should Do:
Update your contact info on HealthCare.gov and with your insurance company.
Don’t auto-enroll without checking your 2026 premium, prices will change.
Turn off auto-pay until you confirm your new premium.
Cancel coverage by Dec 31 if you don’t want to be charged in January.
Log in again before Jan 15 to check if tax credits are extended or if plans change.

Call or email your Senators and Representatives today, tell them to protect ACA tax credits and keep health insurance affordable for all Americans.

Read more here: https://www.hemob.org/resource-library/10-31-2025

11/03/2025

Support for Patients During SNAP Lapse

As many of you know, Supplemental Nutrition Assistance Program (or SNAP) benefits lapsed this past weekend, creating additional hardship for families in our community. If you have been affected by this lapse, please reach out to your HTC social worker for assistance. TSBDF is providing Kroger gift cards that the social workers will distribute to patients on the SNAP program as needed.

Click below for a list of food pantries in the Tri-State area:

Food pantries and soup kitchens in Cincinnati provide perishable and non-perishable items to families in need and children who are hungry.

11/03/2025

There are just a few spots left for the TSBDF Ask the Doc/Annual Meeting taking place this Wednesday, November 5th Graduate Hotel.

We have added another chance to win a $200 gift card at the event. Simply get your sponsor passport stamped by every sponsor and be entered for a chance to win a $250 gift card! Must be present to win. Only one chance per family!

Registration will take place at 5:30 p.m.
Education and dinner will follow starting at 6:30 p.m.
Hear from Dr. Kristine Karkoska UC's HTC, Dr. Maria Carter-Febres from CCHMC's HTC, and Dr. Erin Espinoza from Tri-Health Hematology then have a chance to ask your bleeding disorder questions. Questions can be submitted ahead of time or asked at the event.
This event is open to all bleeding disorder patients and caretakers living in the same household.
Childcare is available for this event. Onsite parking is free for attendees.
Thank you to our sponsors for their support: Novo Nordisk, Pfizer, Sanofi, Genentech, Bayer, HEMA Biologics, Takeda, Accredo, CCHMC HTC, Infucare, Optum, & Soleo Health.

10/24/2025

Join us for us on Wednesday, November 12th at Maggiano's Little Italy for dinner and an educational program to learn about Vonvendi.
This is an interactive program where you can learn more about living with VWD. Explore what is means to live Vonvendi Vibrant and discover your own personal vision for the your treatment and future.
This program is presented by Takeda.

This program is for VWD, caregivers and their immediate family members living in the same household.

Registration is required! Space is limited and available on a first come, first served basis. Childcare will not be provided.
Click below to register today!

Join us for dinner and education! This event is open to VWD patients, caregivers, and immediate family members.