Epsy Health

11/14/2025

💜 “It took 5 years to get answers - but I’m not giving up.” 💜

Sophia’s journey with drug-resistant epilepsy (DRE) shows the strength, support, and hope behind every seizure. 🧠✨🐾

This Epilepsy Awareness Month, let’s raise awareness and listen to every story. 💜

Read more below! 👇

Diagnosed with epilepsy at 19, Sophia () shares her journey, challenges, and advocacy. Read her full story below.

11/06/2025

Meet Jaime Simpson () - epilepsy & VEDS advocate, mom, and service-dog trainer. 💜

🐶 With her amazing seizure-alert dog, Echo, she’s turned her journey into a message of hope, connection, and strength.

Read her full story and how she found her voice through Embracing ECHO ➡️

Jaime Simpson shares her experience living with epilepsy and VEDS, life with her service dog Echo, and building community through Embracing ECHO.

11/04/2025

💜 Epilepsy Awareness Month is here! 💜

We’re celebrating with on Instagram - a campaign to share real stories, raise awareness, and make an impact.

For every story shared, $5 will be donated to the Epilepsy Foundation of America (up to $5,000).

Here’s how to get involved 👇
📸 Share a photo, video, or artwork on Instagram that represents your journey
#️⃣ Use & tag
👥 Nominate 2 friends to join

Together, we can shine a light on epilepsy, build community, and create real change 💫

👉 Head to our Instagram () to see more and join in!

10/15/2025

Today is SUDEP Action Day, 💜 A moment to raise awareness and empower those living with epilepsy. 🧠

If you or someone you know is affected by epilepsy, it’s important to understand SUDEP (Sudden Unexpected Death in Epilepsy), what contributes to it, and what steps may help reduce risk. Learn more in our article:

Do you know about SUDEP in epilepsy? Sudden Unexpected Death in Epilepsy is a significant risk for some. Learn more about SUDEP

10/09/2025

Born at just 25 weeks and weighing only one pound, Loushay’s journey is one of faith, resilience, and strength. 💜

Now a healthcare advocate, model, and motivational leader, she proves that challenges can become purpose. ✨

Read Loushay's story here:

Loushay Davis, epilepsy advocate and model, shares her story of resilience, self-advocacy, and empowering others.

10/07/2025

Epilepsy is often misunderstood - and movies haven’t always helped. 🎬

⚡ Sometimes, seizures are used as plot twists or punchlines. But some films are getting it right, portraying epilepsy with honesty and care.

Here are 9 films that offer a more real and respectful look at life with epilepsy.

Take a look:

What movies about epilepsy do you know? Read about films and TV shows with authentic and sensitive representations of the condition

10/02/2025

If you or someone you know has epilepsy, it’s important to know about SUDEP (Sudden Unexpected Death in Epilepsy). 💜

💡SUDEP is rare, but serious - about 1 in 1,000 adults and 1 in 4,500 children with epilepsy die from it each year. Knowing the risks and how to reduce them can help you feel more in control.

👉 Learn more:

Do you know about SUDEP in epilepsy? Sudden Unexpected Death in Epilepsy is a significant risk for some. Learn more about SUDEP

09/24/2025

🚭 Va**ng & Seizures: Is there a link?

E-cigarette use is widespread in the USA, including among teens. Some reports suggest a possible connection between va**ng and seizures, but scientists aren’t sure yet. 🧠

⚠️ So far, no large studies confirm a direct link. If you have epilepsy - or are concerned about risks - it’s best to talk with your doctor.

Read more in our blog:

The use of e-cigarettes is on the rise. But can va**ng cause seizures? Read about current research and how it relates to people with epilepsy.

09/16/2025

Meet Abbey 💜- a devoted mom, nurse, and fierce advocate for her daughter Avery, who’s been bravely living with Lennox-Gastaut syndrome (LGS), a rare and complex form of epilepsy, since she was just a few months old.

Now almost 9, Avery is a true epilepsy warrior 💪✨- strong, funny, and resilient. And Abbey? She’s the powerhouse behind the scenes, managing care, sharing their story, and connecting with other families on Instagram to raise awareness and build community. 💬💕

From using the Epsy App to track seizures 📱 to finding specialists who get Avery’s needs, Abbey is all about informed, loving care - and reminding other parents they’re not alone. ☀️

💬 “You know your child best… Your strength is greater than you think.”

Read Abbey & Avery's full story here:

Abbey shares life with her daughter Avery, who lives with Lennox-Gastaut syndrome. Find strength, hope, and joy in their story. Read their journey.

09/11/2025

🧠 What type of epilepsy do you have? 💜

✨ Epilepsy is a word we use to describe any brain condition that causes someone to have two or more unprovoked seizures at least 24 hours apart.

⚡ But seizures aren’t all the same - people can have very different types, which need to be treated and managed in different ways.

🤯 Some people have generalized tonic-clonic seizures (what many imagine when they think of epilepsy): losing consciousness, falling over, and shaking on the ground.

💜 But epilepsy comes in many forms, and so do seizures — no two experiences are exactly alike.

Learn more epilepsy facts in our blog, link in bio > health blogs.
•
•
•
•
•
•
•

09/11/2025

1 in 26 people will develop epilepsy during their lifetime. 💜

🧠⚡ There are many different ways it can start - some are born with it, some get a fever that affects the brain, and others develop it after a stroke or brain injury.

🤔 But for many people, the cause of their seizures is still unknown.

Find out more epilepsy facts in our blog: https://www.epsyhealth.com/seizure-epilepsy-blog/10-facts-about-epilepsy-to-share

06/13/2025

🎯 Quiz time: Do you know how many anti-seizure meds (ASMs) need to be tried before being considered to have Drug-Resistant Epilepsy? 🧐

💊 Answer: Two or more ASMs.

🧠 Drug resistant epilepsy (DRE) is when a person has tried two or more appropriate epilepsy medications (or a combination), but they’re still having seizures.
•
•
•
•
•
•
•