Epsy Health

01/26/2026

Did you know that 1 in 26 people will develop epilepsy in their lifetime? 💜

Today we raise awareness of this important statistic and stand with the epilepsy community. 🙌

How has epilepsy touched your life or someone you know?

Share your story below- every voice helps break the stigma. 💡

01/20/2026

Do you attend any epilepsy support groups? 💜

Support groups can help you feel understood and connected - just remember to speak with your doctor first to make sure joining is right for you.

There are many options out there, from local meetups to online communities. You’re not alone. 💫

Read more here: https://www.epsyhealth.com/seizure-epilepsy-blog/how-to-find-epilepsy-support-groups

01/14/2026

New Year, Informed Decisions 💡

💊Supplements can boost performance, but some may interfere with seizure medication or increase risk. Ingredients like caffeine, ephedra, St. John’s wort, ginkgo biloba, and creatine may trigger seizures or reduce medication effectiveness.

👨‍⚕️👩‍⚕️ Always check labels and consult your doctor.

Learn more: https://www.epsyhealth.com/seizure-epilepsy-blog/epilepsy-and-workout-supplements-what-do-we-know

01/08/2026

✨ Tried different medications and still having seizures? ✨

You’re not alone 💜

Why don’t anti‑seizure meds work for everyone?

⚡ Side effects
⚡ The wrong dose
⚡ A treatment that doesn’t match your seizure type
⚡ Lifestyle factors like poor sleep or alcohol

If you’re concerned your treatment isn’t working, talk to your doctor and explore options at Epsy > https://www.epsyhealth.com/you/still-having-seizures.

12/23/2025

🎄✨ Happy Holidays from all of us at Epsy!

To everyone living with epilepsy, raising awareness, or supporting and caring for someone - we see you, we celebrate you, and we’re sending you all the love this season 💜

May your holidays be filled with joy, rest, and moments that make you smile. Here’s to a bright and hopeful year ahead!

12/17/2025

💜 Do you know what Drug‑Resistant Epilepsy is?

‘Drug resistant epilepsy’ (DRE) is when a person has tried two or more appropriate anti‑seizure medications (or a combination), but they’re still having seizures.

It’s also called:
🔹 Refractory
🔹 Intractable
🔹 Pharmacoresistant
🔹 “Uncontrolled seizures”

👉 Learn the signs, explore what additional treatment options may be available, and talk to your doctor. Read more: https://www.epsyhealth.com/seizure-epilepsy-blog/have-you-heard-of-drug-resistant-epilepsy

11/28/2025

Gordonnay’s Epilepsy Journey 💜

Her journey began at 16 with her first aura. By senior year, Gordonnay was diagnosed with epilepsy - her world flipped overnight.

She leaned into modeling, started her blog SeizeTheDay.e, and found a community that gave her hope. Life wasn’t easy - medication changes, losing her license, strained relationships - but she kept moving forward.

Today, Gordonnay is a first responder, jewelry business owner, still modeling, and preparing for law school. Just last week she had a seizure and fell down the stairs. And “somehow… I’m okay.” She’s still here, still proud, still choosing to move forward.

💜 “Epilepsy is something I can’t fully explain. But every day I fight to live a life I enjoy, because waking up is a blessing. Living is a blessing.”

11/27/2025

Coach Jon’s Story: My Epilepsy Journey. 💜

In January 2013, Jon woke up from a 4‑day coma with epilepsy. “No memory, no answers - just a blunt reality check that I was 336 lbs and needed to change.”

He felt like that moment became his turning point. Within 6 months, he lost over 100 lbs and found balance through Muay Thai. By 2018, he was the IKF International Amateur Cruiserweight Champion at 190 lbs. He later returned to ice hockey, learning to manage his epilepsy through diet, sleep, hydration, and medication.

Jon also discovered his personal triggers - “stress, lack of sleep, dehydration, and alcohol.” He’s now 8 months sober and seizure‑free.

“From a coma in 2013 to a life I once didn’t think I deserved - epilepsy didn’t end my story, it started my game clock.”

11/25/2025

Meet Karsen 👋💜 - a recent University graduate whose epilepsy journey began in 2018, during her sophomore year of high school.

What started as unexplained focal seizures led to over 300 seizures, including tonic-clonic seizures (formerly known as grand mal) that sent her to the ER. 😔💜 The diagnosis changed everything - she had to stop running track and cross country, and she lost her independence right after getting her license.

✨ “People say I’m strong, but my strength comes from the love and support I’ve had since day one.”

Karsen’s seizures came from her frontal lobe and part of her amygdala. After a surgical EEG in July 2025, she underwent brain surgery in August 2025 to remove the affected areas. 🧠✨

Today, she’s seizure-free - and deeply grateful. 💜🙏

11/20/2025

For Hunter, advocacy began with mental health - and grew into something even more powerful. 💜

After experiencing seizures and receiving an epilepsy diagnosis, he found strength in sharing his story and building community.

💬 “I just want people to know they’re not alone on their epilepsy journey.”
With support from his girlfriend, pets, and online community, Hunter continues to speak up - reminding us how far empathy and connection can go.

👉 Read his story:

Hunter shares his story of living authentically through epilepsy, advocacy, and community - finding hope, purpose, and strength along the way.

11/14/2025

💜 “It took 5 years to get answers - but I’m not giving up.” 💜

Sophia’s journey with drug-resistant epilepsy (DRE) shows the strength, support, and hope behind every seizure. 🧠✨🐾

This Epilepsy Awareness Month, let’s raise awareness and listen to every story. 💜

Read more below! 👇

Diagnosed with epilepsy at 19, Sophia () shares her journey, challenges, and advocacy. Read her full story below.

11/06/2025

Meet Jaime Simpson () - epilepsy & VEDS advocate, mom, and service-dog trainer. 💜

🐶 With her amazing seizure-alert dog, Echo, she’s turned her journey into a message of hope, connection, and strength.

Read her full story and how she found her voice through Embracing ECHO ➡️

Jaime Simpson shares her experience living with epilepsy and VEDS, life with her service dog Echo, and building community through Embracing ECHO.