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Platelet Disorder Support Association

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Platelet Disorder Support Association

PDSA is dedicated to enhancing the lives of people with ITP and other platelet disorders through education, advocacy, research, and support.
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03/17/2026

🍀 Just like a clover, every ITP journey is unique. 🍀
Every story unfolds differently, yet each one reflects remarkable resilience.

Today, we’re celebrating our good fortune: the ITP community that shows up for one another with empathy, shared experience, and connection. Together, we lift each other up through uncertainty and grow stronger as a community.

Leave a 🍀 in the comments if you’re cheering on others in the ITP community — or giving yourself a little extra encouragement today! Your support matters more than you know!

03/16/2026

🧬 Autoimmune diseases come in many forms — and ITP is one of them.

In ITP, the immune system targets the body’s own platelets, leading to low counts and symptoms like excessive bruising, bleeding, and fatigue. While it’s considered a rare autoimmune disorder, its impact on daily life is very real.

Autoimmune Awareness Month is a time to increase understanding, reduce stigma, and advocate for continued research. When we raise awareness, we help patients feel seen — and help the world better understand what living with ITP truly means.

Knowledge empowers. Awareness connects.

03/12/2026

March also marks Autoimmune Awareness Month, a time to highlight the impact of autoimmune diseases and recognize those navigating conditions like Immune Thrombocytopenia (ITP). Awareness starts with understanding — and understanding starts with all of us.

03/11/2026

Expand your ITP expertise with education built specifically for your clinical practice. Learn how chronic ITP affects patient quality of life and explore current and emerging treatments designed to support real‑world care.

This accredited CME activity reviews the impact of chronic ITP on daily living, outlines both established and emerging therapeutic options, and provides practical tools to address common patient concerns. Healthcare professionals across the care team can earn 1.0 CME/CE credit by completing this no‑cost program.

Visit pdsa.org/itp-cme for more information.

03/10/2026

Being diagnosed with ITP is challenging — especially for kids who face frequent needle sticks, fear, and medical visits. That’s why PDSA created the ITP Poke‑R Club, a free support program designed to bring comfort, courage, and a little fun to children managing ITP.

Each new member receives a Poke‑R Club kit:
🎒 A purple drawstring pouch
🎲 Poke‑R chips to track every “poke”
📋 A scorecard
🐝 A Buzzy® device — a drug‑free tool shown to help reduce needle pain by up to 50%.

Kids earn a chip for every needle “poke” and when they collect 10, they receive a special prize. It’s one small way to help make a tough journey feel a little less scary — and remind them they’re never alone.

Learn more or join the Poke‑R Club at pdsa.org. Adults interested in a Buzzy can visit The Platelet Store for their very own too!

03/05/2026

ITP Conference 2026 is more than a conference!

This premier patient event will be hosted in Salt Lake City, UT July 24-26th with world-renowned speakers, patients from around the world and YOU! Visit pdsa.org/conferences to learn more!

03/04/2026

ITP is one of many platelet‑related bleeding disorders, and while most cases are not life‑threatening, severe untreated cases can lead to serious, life‑threatening complications.

When we raise awareness, we pave the way for earlier recognition, which helps ensure better support for individuals living with these often invisible conditions.

These invisible symptoms often include:
• Fatigue
• Brain fog / low mental energy
• Easy bruising
• Easy or prolonged bleeding (gums, nose, or minor injuries)
• Petechiae — tiny red or purple spots from bleeding under the skin
• Heavy menstrual bleeding
• Internal bleeding in severe cases — including serious risks such as intracranial or organ bleeding when platelet counts are extremely low

For more information on ITP and other platelet disorders, visit pdsa.org — and sign up for our e‑news to receive the latest updates on research, resources, and upcoming events.

03/03/2026

🎓 Students with platelet disorders — your future is bright.
PDSA’s College Scholarship Program supports young people living with ITP and other platelet disorders as they pursue higher education.

Your diagnosis is only part of your story — your determination, talent, and goals matter just as much. If you’re heading to college or continuing your education, we encourage you to apply. Apply now at pdsa.org/scholarship.

03/01/2026

FACT: Researchers can’t fully understand how ITP develops, changes, or impacts daily life without patient data. Your experience fills in the gaps and helps build a clearer picture of this rare condition. By enrolling in the PDSA ITP Natural History Study Registry, you play a direct role in advancing research and improving the future of ITP care. Visit pdsa.org/registry to learn more about how you can make a difference.

02/28/2026

Today is Rare Disease Day! We stand with the millions of people affected by rare conditions—including those living with Immune Thrombocytopenia (ITP).

ITP is a rare autoimmune, bleeding disorder in which the body’s immune system attacks its own platelets, leading to low platelet counts. This can bring challenges others may never notice: sudden bruising or bleeding, overwhelming fatigue, and the emotional burden of navigating a chronic, unpredictable condition.

Today, we honor your strength. We advocate for your needs. And we commit to advancing awareness, research, and support.

02/27/2026

Tomorrow is Rare Disease Day.

As we prepare to recognize the 300 million people living with rare conditions worldwide, we’re also thinking about the ITP community and the unique challenges you face every day. Meet a few of our ITP warriors including Michael who joined us on our Bruised But Not Broken: Living with ITP podcast. Listen now on Apple, Spotify and pdsa.org/podcast to hear Michael's empowering journey.

02/26/2026

Rare Disease Day is almost here, and we’re getting ready to shine a light on the strength and stories within the rare disease community. As we count down to Saturday, take a moment to revisit our conversation with the CEO of NORD from last year’s podcast episode. It’s a powerful look at advocacy, awareness, and the work still ahead: https://pdsa.org/s1e12

Address

8751 Brecksville Road, Ste 150
Cleveland, OH
44141

Opening Hours

Monday	8am - 5pm
Tuesday	8am - 5pm
Wednesday	8am - 5pm
Thursday	8am - 5pm
Friday	8am - 5pm

Telephone

+14407469003

Website

https://www.facebook.com/groups/PlateletDisorderSupportAssociation, http://www.pdsa.org/

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