Learn more about TTTS, including TAPS, SIUGR and TRAP at www.tttsfoundation.org The Event schedule was as listed. Friday Night
July 27
4:00 PM Hotel Check-In
5:00 PM - 7:00 PM Conference Attendees Check-In
7:00 PM - 10:00 PM Meet and Greet with Dr. Julian De Lia, other Speakers and Attending Families
This conference gives the opportunity to meet Dr. Julian De Lia who cared about saving babies with TTTS before any other doctor in the world gave it a second thought! He created the laser surgery, which has now been performed thousands of times all across the world. He has given help and compassion to countless parents. We are honored to have him on our advisory board and our keynote speaker at the conference. A once in a lifetime moment to give thanks and encouragement to Dr. De Lia. Enjoy hors d’oeuvres, a children’s food table, live piano music by professional Michael Leamon, a cash bar, a children’s activity room: two 42” screens will be provided with a gaming system and movies, coloring stations, toys and more. There will be opportunities for photographs to be taken. To honor or remember our children, and to promote December’s International Awareness Month, you will be able to make a personalized ornament to hang on our twin Christmas trees. Saturday Morning
July 28
7:30AM-8:30AM Breakfast Buffet
9:00AM Conference Begins
Welcome and Introductions - Mary Slaman-Forsythe, BS, MNO, Founder and President The Twin to Twin Transfusion Syndrome Foundation
Remembrance Ceremony - Live Harp Music by Rosemarie Griffin - Prayer and tribute to all babies that have passed away from TTTS with a lighting of candles. Parents are welcomed on stage to share the names of their babies and/or a message while lighting a remembrance candle that will burn the length of the conference. Light a candle and take the lit candle back to your table. Morning Break
Keynote Speaker - Julian De Lia, MD, FACOG, FACS Medical Director, The International Institute for the Treatment of Twin to Twin Transfusion Syndrome
Questions/Answers
Saturday Afternoon
July 28
12:15 - 1:15PM
Buffet Lunch
1:30PM Afternoon Conference Begins – Additional Speakers/Schedule to be Announced
Mary Slaman-Forsythe, BS, MNO Founder and President, The Twin to Twin Transfusion Syndrome Foundation
Julian De Lia, MD, FACOG, FACS Medical Director, The International Institute for the Treatment of Twin to Twin Transfusion Syndrome
Khanh-Van Le-Bucklin, MD, FAAP, MOM
Afternoon Break
Filming for Video Awareness Campaign
Saturday Night
July 28
7:00 PM - 8:00 PM Deluxe Dinner Buffet
8:00 PM -11:00 PM Open Bar, Entertainment, Parent Testimonies, Slideshow, Silent Auction, presentation of donation to Dr. Julian De Lia and International Institute for the Treatment of TTTS
Sunday Morning
Sunday Morning
July 29
8:00 AM - 9:00 AM Breakfast Buffet
9:00 AM - 10:00 AM Closing Session
10:00 AM- 12:00 PM TTTS Awareness Walk for the Babies, Balloon Release at Lake Erie, Media Attention, Children’s Characters, Filming for Video Awareness Campaign
