Foundation Fighting Blindness

03/10/2026

It’s and we’re back to share an easy way to make your phone more accessible.

In partnership with Hadley, this video walks through how to use your iPhone to join a Zoom call without needing to navigate the Zoom app.
Follow along with the video for quick, step-by-step instructions you can try right away — and share with someone who might find this helpful.

Video Description: Begins with the text “Tech Tip Tuesday” at the top and an iPhone below. Below is the text “Zoom: One-tap Mobile” and the Hadley and Foundation Fighting Blindness logos at the bottom. A screenshot of a Zoom invitation on an iPhone appears and the step-by-step instructions are narrated. Ends with the logos again, followed by “Learn more at: HadleyHelps.org" and the finger pointing icon below.

03/08/2026

Meet Dr. Jillian Pearring.

She is one of the many dedicated scientists funded by the Foundation Fighting Blindness who is working to move us closer to treatments and cures.

This , we’re proud to recognize the women accelerating progress in vision science — researchers whose expertise, determination, and innovation are driving meaningful breakthroughs for our community.

Today, we celebrate the women whose leadership in science is helping transform possibility into progress for people with blinding diseases.

Video Description: Dr. Pearring works in her laboratory at the Kellogg Eye Center, looking at photoreceptor cells through a microscope, and then sits down to reflect on the importance of representation, the impact of Foundation support, and why she loves her work in science.

03/06/2026

The 2026 Winter Paralympics begin today!

We’re rallying behind visually impaired Team USA para Nordic skiers Jake Adicoff and Max Nelson as they compete on the world stage in Milano Cortina. Jake enters as the reigning world champion. Max is back and ready to push even further.

Their determination, discipline, and drive are powerful reminders that people living with vision loss continue to redefine what’s possible.
Let’s go, Team USA!

Image Description: Max Nelson skiing alongside his guide.

03/04/2026

Congratulations to our Spring VisionWalk Registration Challenge winner, Perry Williams!

VisionWalk season kicks off later this month in Dallas/Fort Worth and Arizona. Let’s keep the energy going and step closer to cures for blinding diseases. 💙

Video Description: Rachel Luehrs sits at a table wearing a blue "Team A. B. See" t-shirt, and speaks directly to the camera.

02/28/2026

Low vision may shift the process, but the music plays on. 🎵

Wyatt Edmondson shares a day in his life as a musician and songwriter living with retinitis pigmentosa (RP) — navigating creativity, independence, and purpose with every step.

From getting around town to working on a new album rooted in his experiences, Wyatt shows what adaptation, resilience, and passion can look like in real life.

During AMD & Low Vision Awareness Month, stories like Wyatt’s help bring greater understanding and visibility to the vision loss community.

If you'd like to learn more about Wyatt's music or how you can support him, visit his profile for details.

Video Description: Clips of Wyatt during a day recording music and performing, playing his guitar, showing him using a white cane on stage, and navigating daily life.

02/28/2026

Today is Rare Disease Day, a moment to raise awareness and accelerate research that drives treatments and cures for rare diseases.

For Eric, who has retinitis pigmentosa (RP), a rare blinding disease, finding the right information and community made all the difference. When he attended the Foundation Fighting Blindness VISIONS conferences in 2022 and 2024, he found connection, clarity, and hope grounded in science.

Meeting researchers, advocates, and people navigating RP and other blinding diseases reminded Eric that he’s not alone, and that real progress toward treatments and cures is happening.

That same spirit of connection and momentum continues at United in Vision 2026, where people from around the world come together with one shared purpose.

Join us on June 12–13 in Fort Worth, TX, and register today: https://bit.ly/4lxn3PL

Video Description: Eric talking directly to the camera, wearing a blue VisionWalk t-shirt, discussing his experience at past VISIONS conferences and why you should join him this year at United in Vision.

02/27/2026

At 43, Rosana was diagnosed with age-related macular degeneration (AMD). Over the years, her condition progressed to include wet and dry AMD and geographic atrophy, ultimately costing her both her pilot’s and driver’s license, losses that redefined the independence she had always cherished.

Instead of stepping back, she stepped forward.

Through advocacy and engagement with the Foundation Fighting Blindness, Rosana is helping ensure patient voices guide the development of treatments and cures for AMD and other blinding diseases.

Her story is a reminder that hope is built through progress, perseverance, and community.

Watch Rosana's full Beacon Story on our website at: www.FightingBlindness.org/stories/hope-is-right-around-the-corner-1189

This Beacon Story is sponsored by Johnson & Johnson.

Video Description: Rosana speaks directly to the camera about her experiences as a pilot and then about AMD.

02/27/2026

🎙️ We’re celebrating 100 episodes of the Eye on the Cure Podcast!

To mark this milestone, host Ben Shaberman revisits some of the most powerful conversations that have shaped the podcast and highlighted the momentum advancing treatments and cures for blinding diseases.

This special “Best Of” episode features insights from Dean Bok of UCLA, Michel Michaelides of Moorfields Eye Hospital, actor Ben Mehl, triathlete Michael Stone, and jazz keyboardist Matthew Whitaker — voices that reflect the resilience of our community and the promise of scientific progress.

Episode 100 is also Ben’s final as host, but Eye on the Cure continues. Stay tuned for what’s next!

Listen now and celebrate 100 episodes of conversations driving research forward. www.FightingBlindness.org/podcasts/eye-on-the-cure-podcast-episode-100-best-of-1024

Image Description: Dark blue background with Foundation Fighting Blindness logo in the top left and Eye on the Cure Podcast logo in the top right. Below is the text, "Celebrating 100 Episodes of Eye on the Cure." with '100' in enlarged green text. Beneath that is '99+ Guests, 1 Mission' on the left and 'Hosted by Ben Shaberman' on the right.

The urgent mission of the Foundation Fighting Blindness is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, age-related macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases. The Foundation....

02/26/2026

Exploring new places with vision loss often takes extra planning. 👁️‍🗨️

Eavan visits the Museum of Fine Arts, Boston, as part of her Doing Things series, sharing what it’s like to experience art with Stargardt disease. She prepared ahead by checking the museum’s accessible services and using an app with QR codes for audio descriptions — though not everything was perfectly accessible.

This February, during AMD & Low Vision Awareness Month, Eavan highlights how accessibility and preparation can open doors — and that adapting looks different for everyone.

How do you prepare for new experiences with low vision?

Video Description: Eavan starts on the subway with a friend and takes us on a trip to the Museum of Fine Arts, Boston, showing herself touring the museum and highlighting accessibility features around the art.

02/25/2026

Technology can play an important role in how people with low vision navigate everyday life. 📱

ReBokeh is a customizable video filter app designed to help people with low vision enhance what they see in real time — whether that means sharper contrast, brighter colors, or reduced glare.

As part of AMD & Low Vision Awareness Month, ReBokeh founder and CEO Rebecca Rosenberg shares how the app puts personalized vision support at your fingertips. We’re proud to partner with ReBokeh to help expand access to tools that support daily living with low vision.

Watch to learn more about how ReBokeh works. www.Rebokeh.com

Video Description: Black background with the ReBokeh logo, then fades into Rebecca Rosenberg speaking directly to the camera, discussing accessibility options and how ReBokeh helps those with low vision, while showing clips of the app in use.

02/24/2026

Confidence isn’t always about what you see. 💙

Natasha walks us through how she does her makeup with achromatopsia, using tools like color-scanning apps, a magnified mirror, and support from others to choose products that work for her.

For AMD & Low Vision Awareness Month, Natasha reminds us that even if she can’t see every detail, she still feels beautiful — and that’s what matters.

What tools or support help you feel your best?

Video Description: Clips of Natasha doing her makeup all shown in black and white. At the end, she reveals her makeup look in full color.

02/23/2026

The Foundation Fighting Blindness community mourns the loss of Karen Petrou, our Board Chair, who passed away after a private battle with liver cancer. Throughout her many years of service to the Foundation, Karen was an extraordinary force for progress, advocacy, and hope for everyone affected by inherited retinal diseases.

Read more about Karen’s legacy on our website:

Remembering Karen Petrou, whose strategic vision, personal courage, and unwavering commitment helped shape the future of inherited retinal disease research.