02/04/2026
👋 Meet Nolan.
Nolan’s story began quietly, before his parents would ever know how loud and life-changing it would become.
On day two of his life, Nolan stopped having dirty diapers. “As a brand-new mom, I trusted what I was told—that he had simply ‘overexerted himself the day before.’ We took our sweet baby home, believing everything would be okay,” his mom shared.
But over the next six months, something never felt right. Nolan’s tiny stomach would become painfully distended, and he struggled to pass bowel movements on his own. Nolan’s life became a cycle of emergency room visits and hospitalizations as his parents searched for answers to his recurring stomach pain. After six months of searching for answers, a biopsy finally confirmed: Nolan had Hirschsprung Disease. Just two days later, he underwent surgery for a colostomy.
But that surgery was only the beginning. Since then, Nolan has endured twelve additional surgeries. Despite everything, his smile remained, but after his most recent surgery, his quality of life began to decline.
“Watching your child hurt, knowing you would do anything to fix it, is a feeling no parent should have to carry,” shared Nolan’s mom. “But in November 2025, hope finally found us.”
Nolan was approved to be seen at Nationwide Children's Center for Colorectal and Pelvic Reconstruction in Columbus, Ohio, more than 800 miles from his home in Tulsa, Oklahoma, under the care of Dr. Richard Wood.
“From the very beginning, the CCPR team was nothing short of incredible. Every single person—from the clinical staff to scheduling, social work, therapy, and the countless resources they provided—walked beside us with compassion and purpose. Thanks to support like Miracle Flights and the Ronald McDonald House, we were able to focus fully on Nolan during our weeks in Columbus.”
The family returned home after treatment hopeful, yet cautious. “Improvement wasn’t immediate, but the CCPR team never stopped supporting us—even from miles away. They checked in, adjusted plans, and reassured us when progress felt slow.”
One month later Nolan’s parents are excited to share that his quality of life has improved so much.
“We went from not even being able to attempt potty training to being nearly 100% potty trained in less than a week. His pain has drastically improved. He is happier, more comfortable, and finally able to be a kid without constant suffering.
For the first time ever, we are hopeful that Nolan will return to school—and maybe even start sports. Dreams that once felt impossible are now within reach.”
His mom continued, “We can never fully express our gratitude to Dr. Wood and the entire CCPR team. They didn’t just treat a diagnosis—they changed our son’s life. And for that, we will be forever thankful.”