03/25/2026
💛We are Sibs for Life: Emme & Mirabel 💛
Emme is one truly “Kool” sibling! Her older sister, Mirabel, was diagnosed with Koolen-de Vries Syndrome (KdVS) as an infant—and together, they are part of a community of amazing “Kool Kids” and equally incredible “Kool sibs.”
For the past 11 years, Emme has been so much more than a sister to Mirabel—she’s a playmate, friend, advocate, cheerleader, and even a teacher. While having a sibling with complex needs can bring challenges, Emme has met each moment with empathy, love, and a spirit that lifts everyone around her.
Emme’s impact goes far beyond her family. As a buddy for Mirabel’s Miracle League baseball team, she shows up not just for her sister, but for all of the players—greeting them by name, sharing encouragement, and making sure everyone feels included and celebrated.
At school, Emme continues to lead with kindness. She intentionally connects with students of all abilities, even choosing to spend more time with peers in resource rooms so she can build friendships and support others. She is a true friend and champion for inclusion in every space she’s in.
Her love for the Koolen-de Vries community was especially evident at the Patient Advocacy Summit, where she spent days connecting with children, supporting families, and even contributing to research efforts to help advance understanding of KdVS.
Emme’s heart, energy, and dedication make a lasting impact on everyone she meets. She is a powerful example of what it means to be a sibling who leads with love and creates a world where everyone belongs.
💛 We are so proud to celebrate Emme as a sibling who truly makes a difference. 💛
