GBS-CIDP Foundation International

04/16/2026

Please join us in welcoming our newest Board Members—Terry, Brian, Amanda, and Cindy—to the GBS | CIDP Foundation International!

Pictured here with them is our Board President, Corbin. While Amanda and Cindy aren’t in the photo, we’re excited to have all four of them join our leadership.

Each brings unique insight and a shared commitment to advancing our mission to support, educate, and advocate for the GBS, CIDP, and MMN community.

We’re grateful to have them as part of our leadership—welcome! 💙

04/07/2026

Today on World Health Day, we stand with our global community of patients, caregivers, and healthcare professionals impacted by GBS, CIDP, and related conditions.
Access to timely diagnosis, treatment, and ongoing care is essential—and together, we continue to support, educate, and advocate for those navigating these rare conditions.
Help us raise awareness of our rare conditions this . https://www.gbs-cidp.org/join-be-the-bridge/

04/07/2026

Join us on Medlive for a live patient education program on CIDP clinical trials. Experts and a patient advocate will explain how clinical trials work, what to expect, and how to talk with your doctor. You can also ask questions in real time.

Live on April 7 at 3:00 PM ET.
Save your spot now: https://bit.ly/3PFBAOX

03/27/2026

At the AANN Conference in Dallas, our Health Navigator Morgan Duhe and Board Member Shane Sumlin represented the Foundation on a patient panel. Shane shared his personal GBS journey—offering insight, hope, and a powerful reminder of why patient voices matter.

We’re grateful to be part of conversations that move awareness and care forward.

03/25/2026

Nancy Di Salvo, our Director of International Affairs, and Daria, a dedicated volunteer from the Polish Allied Support Group Axon - Stowarzyszenie na rzecz Chorych na CIDP, GBS, MMN, are representing our community at the 25th European Congress of Physical and Rehabilitation Medicine.

From sharing insights to building meaningful connections, their presence helps amplify the voices of those affected by GBS, CIDP, MMN, and related conditions around the world.

03/13/2026

Cheering Luke and his team on as they head to the National Championship Tournament!! Your GBS|CIDP community is wishing you the best of luck.

Learn more about Luke & his team: https://news.valleychildrens.org/fresno-wheelers-reflect-on-first-season-of-competitive-wheelchair-basketball/

03/07/2026

We’re excited to share a milestone in the Principles of Care (PoC) for CIDP initiative — the first follow-up interview has officially taken place.

Building on insights from the 2025 workshops, these interviews are an important next step in capturing deeper perspectives from patient advocates and healthcare professionals to help shape a more patient-centered framework for CIDP care.

Every conversation helps move us closer to defining what quality, coordinated care should look like for people living with CIDP.

Learn more about the PoC project:
https://www.gbs-cidp.org/2025/12/principles-of-care-for-cidp-workshops-2025-summary-and-next-steps/

Thank you to our sponsors: Argenx, CSL Behring, and Pfizer.

03/03/2026

This past Saturday, our global community came together for Rare Disease Day. 💙🌍

From Belgium, Hungary, and Gibraltar, volunteers hosted meetings, joined awareness events, and even got moving with Zumba — showing that advocacy can be both powerful and uplifting.

We’re so proud of our international family at GBS|CIDP Foundation International for raising awareness and shining a light on GBS, CIDP, MMN, and related conditions.

02/28/2026

Showing she cares for the rare, our International Liaison from the Dominican Republic, Rosa Valero, raised awareness about GBS on a local radio talk show this Rare Disease Day. 💙

Watch now: https://youtu.be/dwcJAvYva3E

02/28/2026

"I will never stop as long as these legs keep on walking and this heart keeps on beating.'

Thank you, Nancy. Your Voice matters. Your story inspires.💙

Read more: https://www.gbs-cidp.org/patient-stories/nancy-di-salvos-story/

02/28/2026

Rare Disease Day reminds us that behind every diagnosis is a person, a family, and a story of strength. GBS, CIDP, and MMN may be rare — but our community is powerful.

From the Dominican Republic, Mexico, Argentina,and Guatemala, our volunteers and patient advocates are leading with courage—raising awareness, supporting newly diagnosed patients, and building connection where it’s needed most.

Because when a condition is rare, community matters even more.

For more information on Rare Disease Day visit https://www.gbs-cidp.org/2026/02/rare-disease-day/

02/27/2026

Sharing news as we wrap up our MMN awareness month regarding the research of Professor Simon Rinaldi and Dr. Nicolas Dubuisson, and celebrating a major new $600,000 grant, the Foundation is honored to have helped support their progress in their fight against inflammatory neuropathies.

Read more:

To mark Rare Disease Day on 28 February, we’re highlighting the research of Professor Simon Rinaldi and Dr Nicolas Dubuisson, and celebrating a major new $600,000 grant to progress their fight against inflammatory neuropathies.