GBS-CIDP Foundation International

11/08/2025

Cheers to the Land down Under! An amazing turnout at our 2025 Melbourne Regional Conference!
The day was filled with community, connection and openness to learning new ways of healing and coping. Thank you to our presenters, volunteers and the patients & caregivers that took the time to connect with others & share in our community event. 🌏🗺️💚💙🧡

11/08/2025

Have MMN? Learn About Clinical Trials Join us online Friday, Nov 14 at 11:00 AM ET to learn what clinical trials are, how they work, and why they matter. Hear from experts and a patient who’s been through it. Get clear info on safety, your rights, and how to join a trial.

👉 https://www.medlive.com/patient/show/25-10-29-mmn_cidp-clinical-tr?refCode=par_GBSCIDP_111425_argenx_MMN_Clinical_Trials_social_prelive

11/07/2025

🌍 Our team is all over the world this week, impacting patient care and outcomes!

From the Regional Conference in Melbourne, Australia, to ongoing collaboration in Barcelona, Spain, we’re advancing global dialogue and innovation for those living with GBS, CIDP, and related conditions.

In Barcelona, our President & CEO Lisa Butler and Chief Strategy Officer Richard Sperry are leading the KOL portion of our “From Problem to Promise” Principals of Care initiative — gathering global experts to identify key priorities in CIDP research, care standards, and access. This follows last month’s powerful patient forum in Berlin, ensuring both patient and clinical perspectives guide the path forward.

We also appreciate our colleagues at EPODIN for their partnership in supporting this important work toward better outcomes worldwide.

Learn more about our POC initiative in Europe: https://www.gbs-cidp.org/2025/07/from-problem-to-promise-charting-a-better-path-for-cidp-patients-worldwide/

11/07/2025

Day 2 at our Asia Pacific Workshop with our volunteers and allied organizations. Special guest and speaker Prof. Gareth Parry.
The team is working hard to identify and create local solutions to common unmet across the region 🌏💡💚

11/05/2025

Here we go! Day One of our listening tour in the Asia-Pacific region with our allied organizations and volunteers. Excited for a day of collaboration, connection and community 💚💙🧡

10/31/2025

Our sincere thanks to Argenx for hosting Lisa Butler, President & CEO, and Richard Sperry, Chief Strategy Officer (and patient living with MMN), together with Dr. Chafic Karam (University of Pennsylvania) and Dr. Ingemar Merkies (Curaçao Medical Center; Maastricht University), at the AANEM symposium on MMN and CIDP.

We’re grateful for opportunities like this to unite patient perspectives and clinical expertise in advancing care and innovation for the GBS, CIDP, and MMN community.

10/25/2025

It’s Causes Day at , and we’re honored to be Taylor Sanbothe's non-profit beneficiary this season! 💙

10/22/2025

Echoing our colleagues at the National Health Council, we at the GBS|CIDP Foundation International urge legislators to act to end the government shutdown and pass meaningful legislation, such as a permanent extension of the Affordable Care Act, and enhanced advance premium tax credits (eAPTCs). As always, our commitment lies in preserving and enhancing patient access to high-quality, affordable healthcare. To read the full letter from NHC: https://nationalhealthcouncil.org/letters-comments/nhc-submits-letter-to-congress-on-government-shutdown/

10/15/2025

Physical therapist Maria Harris, PT, DPT, shared how small, personalized adjustments to your movement routine can make a big difference—reducing fatigue, preventing falls, and helping you regain confidence in daily life.

✨ If you weren’t able to join us live on this webinar, you can still learn more:

In this episode, we focus on the role of physical therapy (PT) in the recovery and long-term management of Guillain Barré syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN), and related variants. The discussion explores how PT supports patien...

10/11/2025

Day 2 of our International African-European Volunteer & Allied Organization Workshop in Berlin 🇩🇪

We started the day with an energizing yoga and mindfulness session led by Eef and Ursina 🧘‍♀️

It was an honor to welcome our GMAB member Dr. Claudia Sommer and GBS survivor Dr. Felix Wachter, who shared inspiring presentations followed by a shared Q&A sessions.

We wrapped up the day with smiles, laughter, and a joyful closing dinner — celebrating connection, learning, and community 💫

10/10/2025

Today, on World Mental Health Day, we’re reminded that caring for our minds is just as important as caring for our bodies.

For those living with GBS, CIDP, MMNand variants, emotional health is a key part of healing. That’s why we hosted a Speaker Series webinar on Mental Health & Integrated Care for the GBS|CIDP Community.

Missed it? Catch the recording here:

Living with Guillain-Barré Syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), Multifocal Motor Neuropathy (MMN), or related conditions can take a toll on both physical and mental well-being. While treatment often focuses on managing neurological symptoms, the impact on mental...

10/10/2025

Day One of our International African and European Workshop is underway in Berlin 🇩🇪

🌍We’re bringing together our dedicated volunteers and allied organizations to collaborate, share insights, and strengthen our global network. Exciting discussions ahead!