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Monday 9am - 5pm Tuesday 9am - 5pm Wednesday 9am - 5pm Thursday 9am - 5pm Friday 9am - 5pm

AlphaNet, Inc.

Not-for-profit health management organization assisting individuals with Alpha-1 Antitrypsin Deficie AlphaNet has a mission.

The heart of this mission is simple — to improve the lives of individuals affected by Alpha-1 Antitrypsin Deficiency. As a not-for-profit organization that is governed by, employs and serves Alphas, AlphaNet is uniquely able to develop and offer programs and services based on a very personal understanding of how Alpha-1 affects the lives of Alphas. In keeping with this mission, AlphaNet provides a wide range of specialized programs and services designed to meet the specific needs of the Alphas it serves.

02/20/2026

Learn more about Pseudomonas in our latest From Our Medical Team article, "Ask the Med Team: What is Pseudomonas and How Common is it in Alphas?," now available on the Subscriber Portal.

Visit the Subscriber Portal: https://subscriber.alphanet.org/s/story/a2SPV000002WH7p2AG/cms289

02/18/2026

Next week is Rare Disease Day! Did you know that 300 million people worldwide live with a rare disease? Let’s come together to raise awareness and support those affected.

02/17/2026

How you manage the disease is also similar, but with some differences. Some people with Alpha-1 COPD get augmentation therapy or other treatments to boost their alpha-1 antitrypsin levels. To learn more, please visit bfrg.alphanet.org or the Subscriber Portal to access the Big Fat Reference Guide (BFRG).

02/14/2026

Happy Valentine's Day!

02/13/2026

Learn more about Sandy in "Board Spotlight: Robert "Sandy" Sandhaus, MD, PhD, FCCP" now available on the Subscriber Portal.

Visit the Subscriber Portal: https://subscriber.alphanet.org/s/story/a2SPV000002U2ZV2A0/cms288

02/10/2026

To learn more, please visit bfrg.alphanet.org or the Subscriber Portal to access the Big Fat Reference Guide (BFRG).

02/09/2026

This American Heart Month, we highlight the importance of heart health and proactive management, especially for individuals living with alpha-1 antitrypsin deficiency (Alpha-1). Did you know that about half of those with COPD will develop cardiovascular disease in their lifetimes? Both conditions can cause shortness of breath and difficulty exercising, and can lead to other complications. Find out more about the connection between COPD and heart disease and find ways to learn about early detection methods in the article, "COPD and Cardiovascular Disease: Double Trouble," available on the subscriber Portal and AlphaNet.org.

Visit the Subscriber Portal: https://subscriber.alphanet.org/s/story/a2S6R00000GFFfDUAX/cms125
Visit AlphaNet.org: https://www.alphanet.org/community/from-our-medical-team/copd-and-cardiovascular-disease-double-trouble/

02/06/2026

Since the launch of AlphaNet's Subscriber Portal (and before then, the publication of the AlphaNetter), our AlphaNet Communications Team has been reaching out to members of our community to learn their Alpha-1 diagnosis journeys, interests, hobbies, and advice to fellow Alphas. Find out our team has taken away from interviewing Alphas in our latest article, "What We Have Learned From Alphas Over the Years," now available on the Subscriber Portal.

Visit the Subscriber Portal: https://subscriber.alphanet.org/s/story/a2SPV000002Rq9R2AS/cms287

02/04/2026

On World Cancer Day, we recognize the importance of cancer awareness, early detection, and coordinated care for patients in communities across the globe. Learn about the possible connection between cancer and Alpha-1 from AlphaNet's Medical Team in "Is There a Link Between AATD and Cancer?" available on the Subscriber Portal.

Visit Subscriber Portal: https://subscriber.alphanet.org/s/story/a2S6R00000GFGF6UAP/cms136

02/03/2026

Fluid and salt that is absorbed from the intestines goes into the body’s circulation by entering the portal vein. Hypertension (high blood pressure) in the portal vein results from scarring of the blood vessels in the liver. As a result, fluid accumulation in the abdomen occurs. At early stages of disease, abdominal swelling is often thought to be due to fat or extra gas in the intestines. However, when fluid in the peritoneal cavity (a space between the intestines in the abdomen) forms it is called ascites. Ascites will continue to increase or decrease based on fluid and salt intake. Ascites can also press on other large blood vessels in the abdomen causing fluid retention in the ankles and legs. This fluid retention is called edema.

To learn more, please visit bfrg.alphanet.org or the Subscriber Portal to access the Big Fat Reference Guide (BFRG).

02/02/2026

This week, we recognize and honor all those living with alpha-1 antitrypsin deficiency (Alpha-1). AlphaNet is committed to supporting your health management journey and we appreciate the trust you place in our organization and our dedicated AlphaNet Coordinators every day. To learn how to better advocate for your Alpha-1 health and educate the healthcare providers in your lives, read “How to Discuss Alpha-1 with Your Doctor” available on the Subscriber Portal and AlphaNet.org.

Visit the Subscriber Portal: https://subscriber.alphanet.org/s/story/a2S6R00000FyHIMUA3/cms92
Visit AlphaNet.org: https://www.alphanet.org/how-to-discuss-alpha-1-with-your-doctor/

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01/30/2026

Read AlphaNet Subscriber Roy Menken’s inspirational story of perseverance and triumph after receiving a double-lung transplant. Access the full article through the Subscriber Portal.

Visit the Subscriber Portal: https://subscriber.alphanet.org/s/story/a2SPV000002NfSj2AK/cms283

Address

3300 Ponce De Leon Boulevard
Coral Gables, FL
33134

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Website

http://www.alphanet.org/

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