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Monday 9am - 5pm Tuesday 9am - 5pm Wednesday 9am - 5pm Thursday 9am - 5pm Friday 9am - 5pm

AlphaNet, Inc.

Not-for-profit health management organization assisting individuals with Alpha-1 Antitrypsin Deficie AlphaNet has a mission.

The heart of this mission is simple — to improve the lives of individuals affected by Alpha-1 Antitrypsin Deficiency. As a not-for-profit organization that is governed by, employs and serves Alphas, AlphaNet is uniquely able to develop and offer programs and services based on a very personal understanding of how Alpha-1 affects the lives of Alphas. In keeping with this mission, AlphaNet provides a wide range of specialized programs and services designed to meet the specific needs of the Alphas it serves.

11/12/2025

World Pneumonia Day raises awareness about the importance of prevention and the potential seriousness of lung infections that this illness can cause.

To better understand pneumonia, especially as an Alpha, check out “Is it Pneumonia?” in our Big Fat Reference Guide (BFRG) accessible via bfrg.alphanet.org or the Subscriber Portal.

Visit bfrg.alphanet.org: https://bfrg.alphanet.org/s/article/2-4-4-is-it-pneumonia
Visit the Subscriber Portal: https://subscriber.alphanet.org/s/article/2-4-4-is-it-pneumonia

11/11/2025

Happy Veterans Day! Today, we recognize all of our military veterans, including those in our very own AlphaNet family. Thank you for all you have done and all you continue to do to make the world a better place.

AlphaNet team members featured from left to right:

Charles "Tim" Frost - AlphaNet Board Member
Mike Benn - AlphaNet Canada Manager
Mike Dempsey - AlphaNet Coordinator
Jean McCathern - AlphaNet IT Manager
Robert Colvin - AlphaNet Coordinator

11/10/2025

Located in your brain stem, the medulla oblongata senses carbon dioxide levels in the blood and sends impulses to the diaphragm and the intercostal muscles. The nerves located here make the muscles contract and relax. If you injure your medulla oblongata, the diaphragm and intercostal muscles can't function on their own.

To learn more, please visit bfrg.alphanet.org or the Subscriber Portal to access the Big Fat Reference Guide (BFRG).

11/10/2025

Lung Cancer Awareness Month emphasizes the significance of lung screenings and the importance of maintaining respiratory health.

To learn more about the relationship between cancer and alpha-1, please visit “Is There a Link Between AATD and Cancer?” on our Subscriber Portal: https://subscriber.alphanet.org/s/story/a2S6R00000GFGF6UAP/cms136

11/07/2025

When traveling with Alpha-1, there can be a lot for you to consider: packing medications, planning supplemental oxygen needs, and managing your infusion schedule. What you should also account for is your diet, as what you eat may directly affect your energy levels, immune function, and your ability to manage respiratory symptoms. This guide offers a simple diet to follow while dining at restaurants, traveling, and includes snack suggestions you can bring along.

Visit the Subscriber Portal: https://subscriber.alphanet.org/s/story/a2SPV0000029ryP2AQ/cms267

11/04/2025

The opposite is also true. Without enough AAT circulating in the blood, your lungs are at higher risk for disease with as few as 100 smoked ci******es in a lifetime. You may develop COPD, particularly if you have other risk factors. Therefore, family testing is important to protect those who may not know about their risks.

To learn more, please visit bfrg.alphanet.org or the Subscriber Portal to access the Big Fat Reference Guide (BFRG).

For more information about family testing, visit: https://www.alphanet.org/what-is-alpha-1/get-tested

11/01/2025

Chronic Obstructive Pulmonary Disease (COPD) Awareness Month fosters understanding of its prevention and available treatment options. It is a time to raise awareness, take action, and support the millions of people living in the US with COPD.

Visit our Subscriber Portal or the AlphaNet.org Blog to read “The First Visit After Your Alpha-1 COPD Diagnosis” and gain insight into Alpha-1-related COPD.

Visit the Subscriber Portal: https://subscriber.alphanet.org/s/story/a2SPV000000DOnh2AG/cms179
Visit AlphaNet.org: https://www.alphanet.org/blog/the-first-visit-after-your-alpha-1-copd-diagnosis/

11/01/2025

November is designated as Alpha-1 Awareness Month. Each year, we use this time to celebrate the Alpha-1 community, raise awareness about this rare genetic condition, and emphasize the importance of family testing to identify more individuals living with Alpha-1.

To learn how to help spread awareness and educate others about Alpha-1, please read “How to Educate Others About Alpha-1,” available on our Subscriber Portal.

https://subscriber.alphanet.org/s/story/a2SPV000001XlFh2AK/cms241

10/31/2025

Today, both men are thriving and sharing their story to inspire hope and awareness for the Alpha-1 community. Learn more about their incredible story in "A Long Nap and a New Life: An Alpha-1 Living Liver Donation Story," now available on AlphaNet's Subscriber Portal and AlphaNet.org.

Visit the Subscriber Portal: https://subscriber.alphanet.org/s/story/a2SPV0000027xVF2AY/cms266
Visit AlphaNet.org: https://www.alphanet.org/community/our-alpha-1-stories/a-long-nap-and-a-new-life-an-alpha-1-living-liver-donation-story/

10/31/2025

Happy Halloween! Here are some tips to make sure you keep the very last day of this month both spooky and safe:

Halloween Tips for Those with Alpha-1

If You’re Going Out:
- Check the air quality and skip smoky decorations or fog machines.
- Dress warmly — a scarf or mask can help you better deal with cold air.
- Keep routes short and take breaks.
- Avoid crowds or wear a mask to reduce your risk of infection.

If You’re Staying In:
- Keep indoor air clean — no incense or fog. Opt for LED candles and fragrance-free décor.
- Try fun indoor options like pumpkin painting or a movie night.
- Hand out candy safely with spaced-out treats or a candy chute.

No matter your plans, continue to take your medications as prescribed, rest up, and enjoy a healthy, happy Halloween!

10/29/2025

It is with deep sadness that we share the news that AlphaNet Coordinator Lisa Riddle passed away on Monday, October 27, 2025, in Oklahoma City, Oklahoma. Lisa worked as an AlphaNet Coordinator for over 12 years and brought warmth, positivity, and laughter to the role.

Learn more about Lisa when you visit AlphaNet.org: https://www.alphanet.org/lisa-riddle/

Address

3300 Ponce De Leon Boulevard
Coral Gables, FL
33134

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

Website

http://www.alphanet.org/

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