HDSA Western PA Chapter

11/20/2025

Two weeks from today! Mark your calendar.

11/19/2025

is only two weeks away, and your support has never mattered more. A longtime friend of HDSA will match every donation — up to $75,000 — doubling your impact instantly! Stand with HD families and let's create a ripple of hope that reaches wide and far.

Add to your calendar by using the link below:
https://www.addevent.com/event/0t041k2yc3b5
Make an impact that echoes. Use the link below:
https://give.hdsa.org/campaign/724348/donate

11/18/2025

In an effort to provide additional support, HDSA will be hosting another session today, Tuesday, November 18th, at 6 PM EST. This session is open to anyone under the age of 35 years old who wants to ask additional questions and/or discuss the most recent news from uniQure and the FDA.

This session will be facilitated by MaryAnn Emerick, LMSW and Katie Dykman, LISW.

To join us, please visit: https://www.heypeers.com/meetings/47329/details

If you are not able to make this session, check out additional support group opportunities: https://hdsa.org/.../community.../hdsa-support-groups/

11/18/2025

HDSA is planning the path ahead for the next three years, and your feedback can help guide the way.

If Huntington’s disease touches your life, we’d love to hear your perspective.

Take our quick survey at: https://fs22.formsite.com/hdsa/olqg4bsvru/index to help guide HDSA’s work through the year 2028.

11/18/2025

Pre order your Amaryllis now! Deliveries begin tomorrow, Tuesday, November 18th!

Featuring over 20 amazing products to choose from, with vibrant amaryllis varieties and fragrant paperwhites! 🌺 Shop with confidence knowing that FP (FlowerPower) guarantees all products will grow beautifully. 🌼

Don't forget to credit your order to your chapter or affiliate at checkout! Give a gift that blooms this season!

Click: http://HDSA.fpfundraising.com to learn more.

11/17/2025

In an effort to provide additional support, HDSA will be hosting another session tomorrow, Tuesday, November 18th, at 6 PM EST. This session is open to anyone under the age of 35 years old who wants to ask additional questions and/or discuss the most recent news from uniQure and the FDA.

This session will be facilitated by MaryAnn Emerick, LMSW and Katie Dykman, LISW.

To join us, please visit: https://www.heypeers.com/meetings/47329/details

If you are not able to make this session, check out additional support group opportunities: https://hdsa.org/find-help/community-social-support/hdsa-support-groups/

11/16/2025

11/15/2025

In an effort to provide additional support, HDSA will be hosting another session this Tuesday, November 18th, at 6 PM EST. This session is open to anyone under the age of 35 years old who wants to ask additional questions and/or discuss the most recent news from uniQure and the FDA.

This session will be facilitated by MaryAnn Emerick, LMSW and Katie Dykman, LISW.

To join us, please visit: https://www.heypeers.com/meetings/47329/details

If you are not able to make this session, check out additional support group opportunities: https://hdsa.org/find-help/community-social-support/hdsa-support-groups/

11/14/2025

In 30 Minutes, at 4 PM EST HDSA will be hosting a session that will be open to anyone from the HD community who has additional questions and/or would like to discuss the most recent news from uniQure and the FDA.

This session will be hosted by Dr. Tamara Maiuri and MaryAnn Emerick, LMSW.

To join us, please visit: https://heypeers.com/meetings/49247/details

If you are not able to make this support group, check out additional support group opportunities: https://hdsa.org/find-help/community-social-support/hdsa-support-groups/

11/14/2025

The Time is NOW!

Join the Fight to Bring Hope to HD Families: Urge the FDA to Uphold Accelerated Approval!

HDSA, Help4HD, HD Reach, HDF and HDYO have joined forces on a petition directly to the FDA.

Key Asks of the FDA:
- Honor Your Previous Guidance: Fully uphold the previously agreed-upon accelerated approval pathway for AMT-130, including the use of external control data from natural history studies.
- Recognize the Urgency: Acknowledge the dire, unmet medical need in the HD community and act with the expediency that Breakthrough Therapy and RMAT designations demand.
- Expedite Review: Make the review and approval of AMT-130, and any other future HD therapies, a top priority to get this potentially life-altering therapy to patients without further delay. Every day of delay is a day a family can't get back.

Sign the Petition NOW! Click the link below:
https://c.org/vfJyPMKbQM
And make sure to confirm your email - your voice only counts if your do.

11/13/2025

Pre order your Amaryllis now! Deliveries begin next week, November 18th.

With over 20 amazing products to choose from, with vibrant amaryllis varieties and fragrant paperwhites! 🌺 Shop with confidence knowing that FP (FlowerPower) guarantees all products will grow beautifully. 🌼

Don't forget to credit your order to your chapter or affiliate at checkout! Give a gift that blooms this season!

Click: http://HDSA.fpfundraising.com to learn more.