HDSA Western PA Chapter

HDSA Western PA Chapter HDSA Western PA Chapter provides services locally to families affected with Huntington's disease. The chapter serves families in the Western PA area.

HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease and their families. Family and Friends meetings are held in Oakland, Pittsburgh on the first Thursday of every month.

Join us this Friday, January 23rd for a live Webinar with HD Genetics!This webinar will offer individuals and families a...
01/21/2026

Join us this Friday, January 23rd for a live Webinar with HD Genetics!

This webinar will offer individuals and families affected by Huntington’s disease a clear, supportive introduction to the role of genetic testing.

This session will explain: what testing can and cannot tell you, why you may decide to test, the different testing options, how results may impact medical care, research, and future planning, the many emotions one may have, and why working with a genetic counselor is essential for informed, confident decision-making.

Join us to learn the benefits, considerations, and available resources and support to help guide your journey.

To learn more, and register, visit:
https://hdsa-org.zoom.us/webinar/register/4517683204267/WN_FM03YpXyRsysW3vDWscGyQ

It's the last few days to cast your vote!Help us pick the next Team Hope Walk T- Shirt for 2026!🗓️ Online voting is open...
01/20/2026

It's the last few days to cast your vote!

Help us pick the next Team Hope Walk T- Shirt for 2026!

🗓️ Online voting is open until this Friday, January 23rd!

Visit: https://fs22.formsite.com/hdsa/zs5gdyk81j/index to vote for your favorite T- Shirt.

Join us next Friday, January 23rd for a live Webinar with HD Genetics!This webinar will offer individuals and families a...
01/16/2026

Join us next Friday, January 23rd for a live Webinar with HD Genetics!

This webinar will offer individuals and families affected by Huntington’s disease a clear, supportive introduction to the role of genetic testing.

This session will explain: what testing can and cannot tell you, why you may decide to test, the different testing options, how results may impact medical care, research, and future planning, the many emotions one may have, and why working with a genetic counselor is essential for informed, confident decision-making.

Join us to learn the benefits, considerations, and available resources and support to help guide your journey.

To Register, visit:
https://hdsa-org.zoom.us/webinar/register/4517683204267/WN_FM03YpXyRsysW3vDWscGyQ

There’s still time to join the movement! Add your name to the Hope on Hold petition by THIS Sunday, January 18th to ensu...
01/15/2026

There’s still time to join the movement!

Add your name to the Hope on Hold petition by THIS Sunday, January 18th to ensure you are included before HD Reach, HDF, HDSA, Help4HD and HDYO head to DC soon to formally submit this petition to the FDA.

Link to sign: https://bit.ly/Hope4HD

Help us choose the next Team Hope Walk T-shirt!With four new options to choose from, we need your input!🗓️ Online voting...
01/14/2026

Help us choose the next Team Hope Walk T-shirt!

With four new options to choose from, we need your input!

🗓️ Online voting is open until January 23rd!

Visit: https://fs22.formsite.com/hdsa/zs5gdyk81j/index to cast your vote.

Our community powers everything we do—and this is a fun one. 💙Help us choose the next Team Hope Walk T-shirt!🗓️ Online v...
01/12/2026

Our community powers everything we do—and this is a fun one. 💙

Help us choose the next Team Hope Walk T-shirt!

🗓️ Online voting: 1/9–1/23

Visit: https://fs22.formsite.com/hdsa/zs5gdyk81j/index to cast your vote.

🗳️ Help choose the next Team Hope Walk T-shirt!Vote for your favorite design #1– #4 now through 1/9–1/23.✅ Vote here: h...
01/10/2026

🗳️ Help choose the next Team Hope Walk T-shirt!

Vote for your favorite design #1– #4 now through 1/9–1/23.

✅ Vote here: https://fs22.formsite.com/hdsa/zs5gdyk81j/index (only votes through the voting link count!)

Which one are you picking? 👇💙

Remember, our helpline is always available. Call 412.833.8180.
01/01/2026

Remember, our helpline is always available. Call 412.833.8180.

We need your voice!Take Action Now, Stand Up for AMT-130AMT-130, a promising gene therapy for Huntington’s disease, is a...
12/27/2025

We need your voice!

Take Action Now, Stand Up for AMT-130

AMT-130, a promising gene therapy for Huntington’s disease, is at risk of not getting a full, fair FDA review. After decades without a treatment that slows or stops HD, families cannot afford delays.

Ask your Members of Congress to urge the FDA to allow AMT-130 to move forward to a science-driven review.

Your message right now can help keep hope moving forward.

🔗 hdsa.org/advocacyhome/TakeAction

HDSA is planning the path ahead for the next three years, and your input can help lead the way.If Huntington’s disease t...
12/26/2025

HDSA is planning the path ahead for the next three years, and your input can help lead the way.

If Huntington’s disease touches your life, we’d love to hear your perspective.

Take the quick survey at: https://fs22.formsite.com/hdsa/olqg4bsvru/index to help guide HDSA’s work through the year 2028.

Address

PO Box 1196, 1140 Thorn Run Road
Coraopolis, PA
15108

Telephone

+18887794372

Website

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May Awareness

May is Huntington’s Disease Awareness Month. Please share your HD story here and support our May events to bring awareness to Huntington’s Disease and find a treatment and cure.