Pacific Northwest Bleeding Disorders

11/12/2025

11/11/2025

Mark your calendars: December 2 is Giving Tuesday!
Every gift counts! Help us reach our goal of $5,000 and empower the bleeding disorders community in Oregon and SW Washington. Your generosity fuels hope, connection, and care.
www.pnwbd.org

11/11/2025

Tomorrow is PANDA EXPRESS DAY for PNWBD!

Support our community simply by enjoying a meal. Order lunch, dinner, or even an afternoon snack through the Panda Express app or website. Just enter code 9009223 at checkout, and 28% of your order will be donated to PNWBD, helping families across Oregon and Southwest Washington affected by bleeding disorders.

Enjoy something delicious—and make a difference at the same time!

11/05/2025

NOW stands for National Outreach for von Willebrand. Over the years, von Willebrand Disease (VWD) has always been "lumped" in with hemophilia. Well, NOW is the time to focus exclusively on von Willebrand Disease! NOW is a national educational symposium for individuals and families who are living wit...

11/05/2025

Walk Wednesday! To all our Unite Walk Teams...From the bottom of our hearts, thank you for walking, fundraising, sharing our mission, and standing proudly with the bleeding disorders community. 💙
We truly appreciate you—today and every day.

11/05/2025

Federal judges ruled that the Trump Administration must at least partially fund SNAP during the federal government shutdown.

What you need to know:

- November SNAP benefits have not been issued yet. The federal government has not released the funds to the states yet.

- You may not get your full November benefits right away. The Trump Administration is only partially funding November SNAP benefits for now. We hope that we will still be able to issue full November SNAP benefits when the federal government shutdown ends, but we will need direct federal approval.

- SNAP benefits have never been paused before. Some states and vendors, including Oregon and our EBT vendor, don’t currently have systems that can send partial benefits. We are already working on updates so we can send the partial benefits when we get them.

- Watch out for scams! We heard that, since the court rulings on Friday, some people have been seeing text, email, and social media posts telling them to click a link to get their SNAP benefits. Do NOT do this. It is a scam. Only trust information about your benefits from official ODHS sources. Learn more about protecting yourself from benefits theft: https://www.oregon.gov/odhs/benefits/Pages/protect.aspx

We know this situation is stressful. We are working to get answers and will share information as quickly as we can.

If you need food now, visit https://needfood.oregon.gov to find free food markets, food banks, meal programs and more.

11/05/2025

Please share and spread the word — let’s make November 12th a big success!
Thank you for being part of our community.

11/04/2025

Giving Tuesday is coming up on Tuesday, December 2nd. Please consider supporting PNWBD.

11/03/2025

11/03/2025

BioMarin will out-license ROCTAVIAN, its gene therapy for adults with severe hemophilia A, to another company with greater hematology and gene therapy expertise.

The decision is not related to safety or effectiveness, and patients currently receiving ROCTAVIAN will continue treatment during the transition.
NBDF will continue monitoring updates on ROCTAVIAN and other emerging therapies.

🔗 Read more: https://bit.ly/3JrgMrK