Team Cannon CAN

Team Cannon CAN A mom on a mission to save her bestie from a rare genetic disease called Sanfilippo Syndrome šŸ’œ

Cannon likes to be busy, and when the weather gets nicer it’s almost impossible to keep him inside… and obviously, we ca...
04/25/2026

Cannon likes to be busy, and when the weather gets nicer it’s almost impossible to keep him inside… and obviously, we can’t be outside ALL of the time, so I’m always trying to find new things to keep him occupied inside - I didn’t have everything I needed to make homemade play dough, so we improvised and made bread dough with food coloring - it was a huge mess and I’m still scraping it off the kitchen table (why I didn’t put a plastic tablecloth down I don’t know!) but Cannon loved it! Love seeing that smile šŸ’œ

At our old house, we had rocks in the landscaping, here, we have mulch - and it is going to be the death of me šŸ˜‚ Cannon ...
04/17/2026

At our old house, we had rocks in the landscaping, here, we have mulch - and it is going to be the death of me šŸ˜‚ Cannon is always digging and ā€œplantingā€ things in the mulch, and needless to say I am always out there sweeping the driveway and sidewalk…. But to see this little face so content makes my heart happy. The weather is finally getting nicer, and Cannon is able to be in his happy place - outside! I love this boy more than words and I simply cannot imagine a world without him šŸ’”

Cannon was so excited that the Easter Bunny came! He wasn’t too into looking for eggs, he found one and proclaimed ā€œI wo...
04/06/2026

Cannon was so excited that the Easter Bunny came! He wasn’t too into looking for eggs, he found one and proclaimed ā€œI won!ā€ - not sure what he thought he was winning, but if Cannon is happy, that works for me! The Easter Bunny knew just what Cannon was hoping to get in his basket… it’s almost like Cannon keeps a running Amazon list that he updates daily šŸ˜‰ He was a little hesitant to dye eggs at first, but we tried something new this year and used cool whip with food coloring and it was a win! Clean up is a thousand times easier, and Cannon enjoyed doing some taste testing. After an incredibly rainy Spring Break, he enjoyed getting outside to play today even though it was a bit chilly. We are counting down till summer over here! It’s back to the daily grind tomorrow - the next 8 weeks are crazy busy, but then it’s summer time and we are ready to soak up the sun, hit the pool and go on some adventures šŸ’œ I continue to be so grateful that Cannon continues to thrive. This is an incredibly ugly disease and life can change in the blink of an eye - so we soak up every smile, every giggle, and make sure there is always holiday magic. Life with Can is crazy, but I couldn’t imagine any other life šŸ’œ

Cannon had SO much fun hanging out with his cousins yesterday! He got to play at the park, have an egg hunt, and run aro...
03/29/2026

Cannon had SO much fun hanging out with his cousins yesterday! He got to play at the park, have an egg hunt, and run around with a house full of people. If you know Cannon, you know he is always quick to invite everyone over to his house - he loves being around people … but he hates goodbyes. This little guy loves big, and he is so lucky to have cousins who love him fiercely and show him patience and care while still treating him just like one of the gang! He passed out last night with a happy heart and is already talking about the next time he can see his cousins šŸ’œ

This little guy has been absolutely loving the nicer weather and has been taking advantage of every minute he can spend ...
03/22/2026

This little guy has been absolutely loving the nicer weather and has been taking advantage of every minute he can spend outside. While we love the nice weather and being able to get out of the house, Cannon struggles with the barometric pressure change and sleep becomes a daily battle. The past several nights Cannon has been up ALL night and will fall asleep between 4 and 6 AM - which makes mornings complicated as you can imagine. Mama is tired from lack of sleep but I still soak up every minute with this little guy, because even when he’s up all night, he’s happy and happy moments with Cannon are the best moments šŸ’œ

This little guy was up all night - happy as can be, just awake, with no desire to sleep. But now that it’s time to start...
03/18/2026

This little guy was up all night - happy as can be, just awake, with no desire to sleep. But now that it’s time to start the day, he’s decided he will sleep! I have to wake him to take Cooper to school, so it’s up in the air if he will be mad and insist on coming back home to ā€œshhhhā€ (his word for sleep) or if he will decide an hours sleep was all he needed and he’s going to school… it’s truly 50/50 so we will see! And yes, he lines his super heroes up at night to watch over him while he sleeps šŸ™‚

Life has been chaotic to say the least and I’ve been bad about posting… but we’re just over here living by the motto ā€œit...
03/10/2026

Life has been chaotic to say the least and I’ve been bad about posting… but we’re just over here living by the motto ā€œit’s okay to fall apart sometimes. Tacos fall apart and we still love them!ā€

Through all of the ups and downs, and chaos, Cannon continues to thrive. Cannon is our daily reminder that even on the worst of days, there is something to be thankful for šŸ’œ

It was Winter Fest at the boys school tonight - Cannon has never gone as he gets easily over stimulated but he’s been do...
02/28/2026

It was Winter Fest at the boys school tonight - Cannon has never gone as he gets easily over stimulated but he’s been doing so well lately with various little outtings so I decided to take him. I brought big sister for back up šŸ˜‚

Cannon was definitely over stimulated, and had zero interest in participating in any of the activities - but he did eat, because Cannon is never going to pass up an opportunity to eat! I love seeing how sweet kids are to him, and his excitement over seeing all of the teachers and staff who he genuinely loves so much. Even though he clung tightly to me the majority of the evening, he lasted an hour and a half before he said he was ready to go home. Doing things like this used to almost always end in a meltdown, or having to leave within minutes because Cannon couldn’t handle the noise, chaos, etc…. This boy continues to amaze me and make me so proud of his willingness to try new things and work through those moments that are out of his comfort zone.

Keep letting your light shine, bestie šŸ’œ

The last few months have been stressful and I let go of my work out routine - and falling asleep on the stairs was Canno...
02/24/2026

The last few months have been stressful and I let go of my work out routine - and falling asleep on the stairs was Cannon’s way of reminding me to get back to the gym …. Because carrying 64.2 pounds of dead weight up the stairs to bed is no easy task šŸ™‚

This face. While those crocodile tears break my heart, the reason behind them fills my heart with so much love and grati...
02/14/2026

This face.

While those crocodile tears break my heart, the reason behind them fills my heart with so much love and gratitude.

Cannon has the most amazing, God sent teacher and paraprofessional. These women advocate for Cannon, love him through his challenging moments, and give him a place that is safe to be unapologetically Cannon. Cannon has thrived in their care, and continues to gain new skills and vocabulary despite statistics telling us the opposite should be happening.

Yesterday, Cannon’s teacher was out, and so when he came home he kept telling me to ā€œcall the yi-aā€ (police) because they needed to help ā€œteachaā€ because clearly something was wrong if she wasn’t at school! Today, I had prepared him that ā€œteachaā€ would be back but his paraprofessional would not be there today. I also let him know that his teachers boys would be at school today and he was so excited for her ā€œbabiesā€ to be there, but then he insisted his paraprofessionals ā€œbabiesā€ needed to come ā€œhelp Cannon Walshā€ too. (If you haven’t noticed, Cannon genuinely believes it’s his world, and we are all just living in it!) Cannon ended up having a great day at school, his teachers kids are elementary aged too, and some of the sweetest little boys, Cannon loved having their attention šŸ’œ When I picked him up, he was telling everyone to come over to his house (if you know Cannon, you know he loves company!) I thought all was well in the world, until Cannon got home and pulled out a picture of him and his para, and the crocodile tears came. ā€œTell her no leave Cannon Walsh. Tell her come back.ā€ He sobbed, for several minutes because his little heart missed his ā€œschool momā€ so much today.

I know so many families struggle to ensure their children with special needs are being treated well, and in an environment they will succeed in. Every single day, when I see Cannon’s face light up when he gets to school, when I see how comfortable he is, when I see how well his team understands him and communicates with him, and even when I see his heart hurt because he misses them, I am reminded that there are truly Angels among us, and I am so thankful that this little guy has so many people in his corner. Whenever people tell me ā€œI don’t know how you do itā€, I always let them know, it takes a village, and there’s no village quite like Cannons šŸ’œ

Cannon and I share a bed. We have since he turned 3. He used to have horrible sleep apnea before having his tonsils and ...
02/12/2026

Cannon and I share a bed. We have since he turned 3. He used to have horrible sleep apnea before having his tonsils and adenoids removed, and I would move him throughout the night so he could breathe better. Cannon also used to elope… A LOT. He has no concept of danger, and despite numerous different types of child locks, Cannon would find a way out of the house - whether it was learning how to undo the child lock, or climbing through a window, Cannon found a way… hence why he began sleeping with me. Cannon no longer struggles with sleep apnea (thankfully!) and he still will elope from time to time when it’s warm out, but we’ve come a long way! However, Cannon still sleeps with me - and I wouldn’t have it any other way. I know my time with Cannon will never be long enough, and I will take every snuggle I can get…. But in addition to sharing a bed with Cannon, I also share a bed with his ā€œfriendsā€, and I have 3 elves watching me. Not pictured is the dog, who also sleeps with us every night. This is a King sized bed, yet every night, I’m hanging on for dear life šŸ˜‚ I love this little guy, and I will forever be grateful for all of the snuggles šŸ’œ

Cannon believes in ringing in the New Year topless and stuffing his face with ice cream. As we head into another year I ...
01/01/2026

Cannon believes in ringing in the New Year topless and stuffing his face with ice cream.

As we head into another year I am thankful that Cannon continues to do well in so many ways. He is still fortunate to have full mobility and loves running, jumping, dancing and being outside. He continues to add words to his vocabulary and continues to be incredibly resourceful when it comes to communicating his needs. We have introduced a communication device, but because Can has always been incredibly resourceful when it comes to communicating his wants & needs, he’s been a bit resistant with using this device - but we know getting him used to this now will help communication in the future. We had a rough patch where Cannon was really struggling to regulate his emotions and had become incredibly aggressive. He was struggling at school and coming home absolutely exhausted. His team worked with him, and he now has his favorite ā€œschool momā€ as his one on one para - her and Can’s teacher do an amazing job at advocating for Cannon, adjusting his day to meet him where he’s at, and working with me so we can all try to problem solve on the difficult days. His school day looks different than most kids, as he doesn’t spend too much time on academics, but what Cannon gains is much greater. He is able to interact with his peers which helps him to maintain (and grow!) his vocabulary. He spends a lot of time being active, and keeps those muscles working hard! He enjoys doing various projects, engaging with all of the staff, and simply being around people he loves so much. He sees his geneticist in a few weeks, and we have some small concerns we will address with his doctor but overall he is doing well. Thank you for your continued love & support. It means the world šŸ’œ
Here’s to an amazing 2026!

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Crown Point, IN
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