Team Cannon CAN

Team Cannon CAN A mom on a mission to save her bestie from a rare genetic disease called Sanfilippo Syndrome šŸ’œ

Cannon had SO much fun hanging out with his cousins yesterday! He got to play at the park, have an egg hunt, and run aro...
03/29/2026

Cannon had SO much fun hanging out with his cousins yesterday! He got to play at the park, have an egg hunt, and run around with a house full of people. If you know Cannon, you know he is always quick to invite everyone over to his house - he loves being around people … but he hates goodbyes. This little guy loves big, and he is so lucky to have cousins who love him fiercely and show him patience and care while still treating him just like one of the gang! He passed out last night with a happy heart and is already talking about the next time he can see his cousins šŸ’œ

This little guy has been absolutely loving the nicer weather and has been taking advantage of every minute he can spend ...
03/22/2026

This little guy has been absolutely loving the nicer weather and has been taking advantage of every minute he can spend outside. While we love the nice weather and being able to get out of the house, Cannon struggles with the barometric pressure change and sleep becomes a daily battle. The past several nights Cannon has been up ALL night and will fall asleep between 4 and 6 AM - which makes mornings complicated as you can imagine. Mama is tired from lack of sleep but I still soak up every minute with this little guy, because even when he’s up all night, he’s happy and happy moments with Cannon are the best moments šŸ’œ

This little guy was up all night - happy as can be, just awake, with no desire to sleep. But now that it’s time to start...
03/18/2026

This little guy was up all night - happy as can be, just awake, with no desire to sleep. But now that it’s time to start the day, he’s decided he will sleep! I have to wake him to take Cooper to school, so it’s up in the air if he will be mad and insist on coming back home to ā€œshhhhā€ (his word for sleep) or if he will decide an hours sleep was all he needed and he’s going to school… it’s truly 50/50 so we will see! And yes, he lines his super heroes up at night to watch over him while he sleeps šŸ™‚

Life has been chaotic to say the least and I’ve been bad about posting… but we’re just over here living by the motto ā€œit...
03/10/2026

Life has been chaotic to say the least and I’ve been bad about posting… but we’re just over here living by the motto ā€œit’s okay to fall apart sometimes. Tacos fall apart and we still love them!ā€

Through all of the ups and downs, and chaos, Cannon continues to thrive. Cannon is our daily reminder that even on the worst of days, there is something to be thankful for šŸ’œ

It was Winter Fest at the boys school tonight - Cannon has never gone as he gets easily over stimulated but he’s been do...
02/28/2026

It was Winter Fest at the boys school tonight - Cannon has never gone as he gets easily over stimulated but he’s been doing so well lately with various little outtings so I decided to take him. I brought big sister for back up šŸ˜‚

Cannon was definitely over stimulated, and had zero interest in participating in any of the activities - but he did eat, because Cannon is never going to pass up an opportunity to eat! I love seeing how sweet kids are to him, and his excitement over seeing all of the teachers and staff who he genuinely loves so much. Even though he clung tightly to me the majority of the evening, he lasted an hour and a half before he said he was ready to go home. Doing things like this used to almost always end in a meltdown, or having to leave within minutes because Cannon couldn’t handle the noise, chaos, etc…. This boy continues to amaze me and make me so proud of his willingness to try new things and work through those moments that are out of his comfort zone.

Keep letting your light shine, bestie šŸ’œ

The last few months have been stressful and I let go of my work out routine - and falling asleep on the stairs was Canno...
02/24/2026

The last few months have been stressful and I let go of my work out routine - and falling asleep on the stairs was Cannon’s way of reminding me to get back to the gym …. Because carrying 64.2 pounds of dead weight up the stairs to bed is no easy task šŸ™‚

This face. While those crocodile tears break my heart, the reason behind them fills my heart with so much love and grati...
02/14/2026

This face.

While those crocodile tears break my heart, the reason behind them fills my heart with so much love and gratitude.

Cannon has the most amazing, God sent teacher and paraprofessional. These women advocate for Cannon, love him through his challenging moments, and give him a place that is safe to be unapologetically Cannon. Cannon has thrived in their care, and continues to gain new skills and vocabulary despite statistics telling us the opposite should be happening.

Yesterday, Cannon’s teacher was out, and so when he came home he kept telling me to ā€œcall the yi-aā€ (police) because they needed to help ā€œteachaā€ because clearly something was wrong if she wasn’t at school! Today, I had prepared him that ā€œteachaā€ would be back but his paraprofessional would not be there today. I also let him know that his teachers boys would be at school today and he was so excited for her ā€œbabiesā€ to be there, but then he insisted his paraprofessionals ā€œbabiesā€ needed to come ā€œhelp Cannon Walshā€ too. (If you haven’t noticed, Cannon genuinely believes it’s his world, and we are all just living in it!) Cannon ended up having a great day at school, his teachers kids are elementary aged too, and some of the sweetest little boys, Cannon loved having their attention šŸ’œ When I picked him up, he was telling everyone to come over to his house (if you know Cannon, you know he loves company!) I thought all was well in the world, until Cannon got home and pulled out a picture of him and his para, and the crocodile tears came. ā€œTell her no leave Cannon Walsh. Tell her come back.ā€ He sobbed, for several minutes because his little heart missed his ā€œschool momā€ so much today.

I know so many families struggle to ensure their children with special needs are being treated well, and in an environment they will succeed in. Every single day, when I see Cannon’s face light up when he gets to school, when I see how comfortable he is, when I see how well his team understands him and communicates with him, and even when I see his heart hurt because he misses them, I am reminded that there are truly Angels among us, and I am so thankful that this little guy has so many people in his corner. Whenever people tell me ā€œI don’t know how you do itā€, I always let them know, it takes a village, and there’s no village quite like Cannons šŸ’œ

Cannon and I share a bed. We have since he turned 3. He used to have horrible sleep apnea before having his tonsils and ...
02/12/2026

Cannon and I share a bed. We have since he turned 3. He used to have horrible sleep apnea before having his tonsils and adenoids removed, and I would move him throughout the night so he could breathe better. Cannon also used to elope… A LOT. He has no concept of danger, and despite numerous different types of child locks, Cannon would find a way out of the house - whether it was learning how to undo the child lock, or climbing through a window, Cannon found a way… hence why he began sleeping with me. Cannon no longer struggles with sleep apnea (thankfully!) and he still will elope from time to time when it’s warm out, but we’ve come a long way! However, Cannon still sleeps with me - and I wouldn’t have it any other way. I know my time with Cannon will never be long enough, and I will take every snuggle I can get…. But in addition to sharing a bed with Cannon, I also share a bed with his ā€œfriendsā€, and I have 3 elves watching me. Not pictured is the dog, who also sleeps with us every night. This is a King sized bed, yet every night, I’m hanging on for dear life šŸ˜‚ I love this little guy, and I will forever be grateful for all of the snuggles šŸ’œ

I *hate* Roblox…. However, what I love is watching Cannon act like ā€œone of the boysā€ā€¦. He’s playing Roblox with Coop and...
02/06/2026

I *hate* Roblox…. However, what I love is watching Cannon act like ā€œone of the boysā€ā€¦. He’s playing Roblox with Coop and his friends and hearing them talk to him like he’s one of the boys melts my mom heart. Cannon doesn’t always understand how to respond because he has limited vocabulary but the smile on his face is priceless. šŸ’œ

Sometimes I look at this little guy when he’s sleeping, and I wonder about his dreams…. If you know Cannon, you know he ...
01/27/2026

Sometimes I look at this little guy when he’s sleeping, and I wonder about his dreams…. If you know Cannon, you know he always has ā€œan ideaā€ and you know the wheels in that little mind are always turning. Last year, when we had to put our dog, Tank, down, Cannon became aware of the concept of death. Ever since then, he will make comments in reference to wanting Tank back, and he will often tell me, in regards to our other dog, Payton, ā€œPay Pay no die. Pay Pay no leave Cannon.ā€ Of course, that is always heart breaking to hear… but the other day, what Cannon said tore my heart in pieces. We were goofing around and laughing, and suddenly Cannon said ā€œI no want to die. I want to stay with mommy.ā€ Cannon is NOT aware he terminally ill, this is said in regards to the fact he has gained awareness that our dog died, and isn’t coming back. But in that moment, my heart broke. I’ve always found comfort in the fact Cannon doesn’t comprehend he is sick… and that because of that, he doesn’t fear death - but his comment struck me to my core. This little boy wants to be here - living, and experiencing all of the things life has to offer! He loves being around his family and friends, he is fascinated by animals, he is curious, adventurous, daring, and filled with so much love. I absolutely cannot imagine a world without Cannon in it. He is a light for so many, and his life is absolutely a life worth saving šŸ’œ Life may not look like how I envisioned it to be, but I know I was meant to be this boys mom, and I will never stop fighting to give him the life he deserves.

This little guy did great at his Genetics appointment today! In the past he’s been incredibly anxious at the hospital an...
01/14/2026

This little guy did great at his Genetics appointment today! In the past he’s been incredibly anxious at the hospital and I’ve had to carry him through the hospital, but not today! He was excited to see the fish tank, and that prompted him wanting to get a fish tank at home. So his ā€œdoctor appointmentā€ became a ā€œscreening to see if he was ready to be a fish ownerā€ - he showed his muscles off to the doctor, peed in a cup like a champ, and willingly took his hat off for them to meaaure his head, although he did let them know he would NOT be getting a haircut šŸ˜‚ He did shed a couple crocodile tears when they drew his blood, but we reminded him even super heroes cry sometimes. It turned out he is in fact ready to be fish owner šŸ˜‰ whatever it takes to keep this boy smiling… He will be having his hearing tested, as we do have some concern he’s had some loss of hearing, and he will also be having an MRI of his brain and spine, as well an EKG in the coming weeks. His new doctor seems to be very thorough, and we are hopeful his labs and testing don’t cause any reason for concern. Cannon continues to live up to his name, he is a ā€œcannonballā€ in every way…. He loves life and life loves him back. Keep showing the world your life is a life worth saving, bestie. I love you BIG šŸ’œ

Cannon believes in ringing in the New Year topless and stuffing his face with ice cream. As we head into another year I ...
01/01/2026

Cannon believes in ringing in the New Year topless and stuffing his face with ice cream.

As we head into another year I am thankful that Cannon continues to do well in so many ways. He is still fortunate to have full mobility and loves running, jumping, dancing and being outside. He continues to add words to his vocabulary and continues to be incredibly resourceful when it comes to communicating his needs. We have introduced a communication device, but because Can has always been incredibly resourceful when it comes to communicating his wants & needs, he’s been a bit resistant with using this device - but we know getting him used to this now will help communication in the future. We had a rough patch where Cannon was really struggling to regulate his emotions and had become incredibly aggressive. He was struggling at school and coming home absolutely exhausted. His team worked with him, and he now has his favorite ā€œschool momā€ as his one on one para - her and Can’s teacher do an amazing job at advocating for Cannon, adjusting his day to meet him where he’s at, and working with me so we can all try to problem solve on the difficult days. His school day looks different than most kids, as he doesn’t spend too much time on academics, but what Cannon gains is much greater. He is able to interact with his peers which helps him to maintain (and grow!) his vocabulary. He spends a lot of time being active, and keeps those muscles working hard! He enjoys doing various projects, engaging with all of the staff, and simply being around people he loves so much. He sees his geneticist in a few weeks, and we have some small concerns we will address with his doctor but overall he is doing well. Thank you for your continued love & support. It means the world šŸ’œ
Here’s to an amazing 2026!

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Crown Point, IN
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