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Team Cannon CAN, Crown point, Crown Point, IN (2025)

12/24/2025

Another pre-diagnosis Christmas pic, Cannon found this headband in the house and would wear it around - he’s never been one to worry what anyone thinks 🙂 Tomorrow is Cannon’s favorite day of the year! The house has been decorated since the beginning of November, but this morning I’m turning it into a complete Christmas Wonderland while Cannon is at his besties. I can’t wait to see his little face when he walks in the door. Seeing him believe in the magic of Christmas makes my 💜 so happy.

12/23/2025

Just a boy and his dog snuggling up on the couch watching Paw Patrol. Payton is the absolute best dog, she is so protective of Cannon and their bond is truly unbreakable 💜

12/20/2025

I am so incredibly proud of this little guy! Public places are hard for him and he is not a fan of going to his big sisters hockey games - it’s too cold and too loud for Cannon’s liking (he also frequently shouts “be nice!” as his big sister is the only girl on the team and Can isn’t a fan of the roughness!) today I had no choice but to bring Cannon and I figured we’d end up in the car waiting for the game to be over - this little guy watched and cheered the entire game! Making it even more amazing is the fact Cannon did this without wearing headphones, he never utilized his chewy necklace that typically doesn’t leave his mouth when he’s struggling to regulate or overwhelmed, and he only used his iPad for a distraction for maybe 10 minutes. This may not sound like a big deal to many, but this was a huge step for Cannon. Keep moving mountains, Bestie. Big sis loved seeing (and hearing) Can in the stands, and the way he ran up to her after the game to hug her melted my mom heart. This little boy has so much determination, and a whole lotta heart. I love you BIG bestie.

12/20/2025

Throwback to one of my favorite pics of Can at Christmas 💜 he has ALWAYS loved Christmas and he’s so excited to be on break now and do all the fun Christmas things!

12/17/2025

I told Cannon the dog could not come in the car with us.

Spoiler alert. The dog came in the car with us. Cannon handed me my phone to take their picture as if to remind me it’s Cannon’s world, and I’m just living in it 💁🏼‍♀️

Keep ruling the world, bestie. Keep letting that smile light up a room. And never let anyone dull your sparkle.

12/16/2025

This is Cannon. Cannon lives his life unapologetically, and rightfully so. Cannon is outgoing, creative, silly, loving and not to mention loud! I don’t take Cannon to things where his loudness and other behaviors may be disruptive, as I accept some things are simply not the best fit for him, and that’s okay! I can’t change Cannon’s loudness, or the way his little mind works - and even if I could, I wouldn’t. Some days are challenging, some days Cannon really struggles to regulate his emotions. But even on the most challenging of days, I am grateful. I’m grateful because I don’t know how long I have with Cannon, and I will soak up every moment. With that being said, I will not apologize for Cannon being Cannon. If you see a child struggling to control emotions, or being loud, or acting in a way that you don’t understand, maybe stop and think would you want someone judging your book without reading your story? I am always happy to educate anyone about Cannon’s battle with Sanfilippo Syndrome. My child is not less than. My child is not an inconvenience. My child is fighting a battle no child should ever have to fight. I will NEVER dull his sparkle to make you feel more comfortable.

Live your life out loud Bestie, mamas got you - always & forever 💜

12/12/2025

Yesterday morning was rough. Cannon wanted a specific stuffed animal and after looking through every bin, we couldn’t find it. It was time to leave for school, and Cannon sat down in one of the tubs of stuffies and refused to get up. Most days, I have a lot of patience, but yesterday I was struggling to maintain that patience. After I finally got him to school and came home and cleaned up the stuffed animals laying all over the playroom, I remembered how some day I’ll wish I was picking up his stuffies. Someday I’ll wish I was hearing his sassy voice yelling “sorry!” (As in tough luck, mom!) as I try to get him moving faster so we can get to school on time. Someday, all I’ll have is the memories. The days bring many challenges that most people will never truly understand, but if there’s one thing I can say this journey has taught me it’s that life goes quickly, soak up the small moments, look for that little bit of joy on even the most challenging days, love fiercely, and never let go of hope. 💜

12/06/2025

It only took 937 tries, but I finally got a picture of all the kids looking at the camera! Even the simplest things, are a challenge with Cannon. A lot of times people see the happy photos or Cannon and don’t realize what was going on leading up to that happy photo - it’s Cannon’s world, and we are just living in it!

12/01/2025

Cannon has spent the last week sick and he’s finally feeling better and so excited to get back to school
tomorrow…. And as much as I love hanging out with my bestie, I’m ready for him to be back at school and back in routine.

Can is so excited for Santa to come! He has left milk, cookies and even money under the tree in hopes Santa will come. Tonight, he set up his toys to secure the perimeter and capture Santa …. I love how his little mind works and I love that we get to continue to experience the magic of the holidays 💜

Cannon believes and so do we 💜

11/27/2025

Flash back to Cannon’s first time meeting Santa Claus… Cannon loves Christmas! If it was up to him we would keep our tree up year round. We continue to add lights almost daily to our outdoor display because Cannon gets so excited every time he sees all of the lights. He is consistently trying to come up with ideas of how he can catch Santa Clause in action, and is always leaving anything from milk and cookies to cash under the tree to try to lure Santa…. This is such a fun time of year in our house as we all do whatever we can to bring the magic of Santa to Cannon each day 💜

11/16/2025

Today is World Sanfilippo Awareness Day.

Today and everyday, we fight to spread awareness, and bring hope for Cannon and all of his fellow MPS warriors fighting this incredibly cruel disease.

Cannon is a force to be reckoned with. He is outgoing, fiesty, curious, determined, strong, charismatic, silly and incredibly loving. He loves his friends and family, has never met a stranger, and proudly tells everyone “I Cannon Walsh!” He enjoys being outside, loves any reason for a party, and is the proud owner of hundreds of stuffed animals, all of which are accounted for!

Cannon brings so much joy to everyone he meets, but he’s also fighting a battle no child should have to fight. I look at Cannon and I think, how can this child who is running, jumping, singing and smiling - actually be dying? What a cruel world where this child who lives life with so much passion is actually going to have everything taken from him slowly - the ability to speak, walk, and eat…. The ability to play with his friends and sing his favorite songs…. And ultimately be taken from us entirely too soon?

Show your support Can and his Sanfilippo siblings today and wear your purple! Share Cannon’s story and help us spread awareness & hope.

We will never stop fighting for you bestie 💜💜

10/19/2025

Cannon loved meeting our neighbors chickens yesterday…. However he cried for over an hour afterwards because he wanted me to “order” chickens online - after we weren’t successful at finding baby chickens to order on Amazon, he decided we should try the Walmart app… he didn’t understand why every time we typed “chicken” in the search bar, all that came up was chicken breasts - he clarified to me “I want chicken no die” 😂 It’s frustrating trying to explain to Cannon why we can’t have baby chickens, especially when he has a solution for everything. When I tell him the dogs will eat the chickens, he explains to me how he will build a house for the chickens. When I tell him the cats will chase the chickens he tells me “Cannon Walsh one eye chickens” (that’s his way of saying he will babysit the chickens - and he always refers to himself by first and last name 😉) As challenging as these moments are because he is crying and unable to regulate his emotions, which leads to meltdowns, throwing things, etc… I can’t help but smile at the way his little mind works and feeling a sense of relief at the way his mind continues to problem solve and think things through. Cannon is my daily reminder that everything is “figureoutable” - and sometimes that reminder is what gets me through the day 💜

Team Cannon CAN

12/24/2025

12/23/2025

12/20/2025

12/20/2025

12/17/2025

12/16/2025

12/12/2025

12/06/2025

12/01/2025

11/27/2025

11/16/2025

10/19/2025

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