DFW EDS and HSD Support Group

DFW EDS and HSD Support Group Local EDS and HSD Support Group in DFW, TX metro providing support, advocacy, and education.

Happy National Caregivers Day!Thank you to those who are caregivers to someone with EDS or HSD. Caregivers who prioritiz...
02/20/2026

Happy National Caregivers Day!
Thank you to those who are caregivers to someone with EDS or HSD. Caregivers who prioritize their own needs tend to experience less burnout.
What strategies to prioritize self care and build resilience work best for you as a caregiver?

Complicated-The Movie Virtual Worldwide Premier is TODAY Sun 2/15 @ 2pm EST (1pm CST)Tickets 🎟 https://gathr.com/events/...
02/15/2026

Complicated-The Movie Virtual Worldwide Premier is TODAY Sun 2/15 @ 2pm EST (1pm CST)

Tickets 🎟
https://gathr.com/events/60654f28/complicated-worldwide-screening-panel-discussion

The Film
Medical mystery meets true crime in this rollercoaster real-life drama. Filmed over seven years, COMPLICATED follows the stories of children battling Ehlers-Danlos syndrome, a complex, misunderstood illness. As these young people face extreme health challenges and medical gaslighting, many parents searching for answers suddenly find themselves accused of child abuse and risk losing custody.

Title COMPLICATED
Release 2025
Runtime 85 minutes
Rating Not Rated
Genre Documentary
Director Andrew Abrahams
Origin United States
Language English

Live Q&A with panelists after.

(Info and image from the website https://gathr.com/events/60654f28/complicated-worldwide-screening-panel-discussion )

This week is Children’s Mental Health Awareness Week. Life with rare or undiagnosed conditions can be isolating, especia...
02/09/2026

This week is Children’s Mental Health Awareness Week. Life with rare or undiagnosed conditions can be isolating, especially for kids. It’s essential to meet emotional *and* medical needs alike for children with EDS & HSD.
Share what’s helped your family strike that balance!

February is Rare Disease Awareness Month, dedicated to advocating for research, treatments, & policies that improve live...
02/07/2026

February is Rare Disease Awareness Month, dedicated to advocating for research, treatments, & policies that improve lives.
Unfortunately each of the 13 subtypes of EDS are underdiagnosed & often misdiagnosed, making increased awareness crucial.
Read more:
https://www.facebook.com/share/1C3FtEbUDF/

Don’t forget about the Women’s Health Summit in March! Register today at:
01/29/2026

Don’t forget about the Women’s Health Summit in March! Register today at:

Join the virtual Female Health Summit on 3/7, for those with EDS &HSD, including:• Periods⁠• Pregnancy & postpartum⁠• Pe...
01/25/2026

Join the virtual Female Health Summit on 3/7, for those with EDS &HSD, including:
• Periods⁠
• Pregnancy & postpartum⁠
• Pelvic pain & intimacy⁠
• Bladder dysfunction⁠
• Menopause⁠
⁠
Live Zoom access & lifetime on-demand access.

Register here: https://www.ehlers-danlos.com/female-health-summit/

Not sure how to request a workplace accommodation or disclose a disability? The JAN resource, "Frequently Asked American...
10/03/2025

Not sure how to request a workplace accommodation or disclose a disability? The JAN resource, "Frequently Asked Americans with Disabilities Act (ADA) and Accommodation Process Questions," offers answers to common questions.

https://www.facebook.com/share/p/1634DL6VDw/

Stress increases inflammation and pain sensitivity and can worsen endometriosis symptoms. Accommodations such as flexibl...
09/30/2025

Stress increases inflammation and pain sensitivity and can worsen endometriosis symptoms. Accommodations such as flexible or reduced scheduling may help relieve symptoms including pain and fatigue.

https://www.facebook.com/share/p/1KDXuzsg6w/

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