Bronchiectasis News

01/24/2023

BioNews, parent company of Bronchiectasis News Today, invites the members of our rare disease communities to join us in recognizing Rare Disease Day in February by answering the question, “Why does rare disease awareness matter to you?” Email your 150-200-word response to raredisease2023@bionews.com along with two high-quality pictures of yourself that capture your “why.” We encourage you to share your response on your personal social media accounts tagging BioNews and using the hashtag . Throughout February, your submission could be featured on our social media channels! More info: https://buff.ly/3GTFXxH

10/25/2019

New Post: Can I Be a Morning Person with Endometriosis? https://buff.ly/363MN0g

Columnist Jessica Duffin has struggled for years with getting out of bed in the morning. Today, she is slowly training her body to adjust to her fatigue.

07/25/2019

New Post: P. aeruginosa Adapt in Lungs to Make Mucus Harder to Clear, Study Finds https://buff.ly/2Gty7fQ

A common source of lung infection, Pseudomonas aeruginosa can take on a mucoid state in the lungs to become stiffer and harder to clear, a study finds.

07/18/2019

New Post: European Initiative Targets Diagnosis, Treatment of Rare Diseases https://buff.ly/2O1Wk3f

Learn more about the EU's €101 million initiative to speed the diagnosis of rare diseases and accelerate development of therapies in 35 countries.

07/18/2019

New Post: Life Quality in Bronchiectasis Patients Greatly Affected by Activity Levels, Mental Health and Inflammation, Study Says https://buff.ly/2LWzBmk

A life quality study found patients did poorly if their physical activity and leg strength was limited, and inflammation and anxiety or depression evident.

07/11/2019

New Post: SmartVest Treatment Reduces Exacerbations, Antibiotic Use, and Stabilizes Lung Function, Study Shows https://buff.ly/2NOZoPX

Treatment with SmartVest reduces exacerbations, hospitalizations, and antibiotic use in bronchiectasis, and stabilizes lung function, a study shows.

07/04/2019

New Post: World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients https://buff.ly/2NvSLlu

Parent and rare disease activist Gordana Loleska got her native North Macedonia to issue the world's first Alport syndrome postage stamp.

06/27/2019

New Post: Preclinical Data Supports Development of Inhaled Form of Murepavadin to Fight P. Aeruginosa Infections https://buff.ly/31TkQGu

Preclinical data suggest that the experimental antibiotic murepavadin is both safe and effective at fighting restistant bacterial lung infections.

06/26/2019

New Post: NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala https://buff.ly/2J8mQlF

Read about the individuals, nonprofit groups and pharmaceutical companies honored June 22 at NORD's Rare Impact Awards gala in Houston.

06/21/2019

New Post: Eurordis Unveils Integrated-care Initiative for Rare Disease Patients https://buff.ly/2FowcbI

Eurordis, Europe's allance for rare disease organizations, unveils an initiative aimed at achieving integrated care for patients and caregivers by 2030.

06/20/2019

New Post: Bronchiectasis Patients Unlikely to Transmit Bacteria to Others Through Coughing, Study Suggests https://buff.ly/2WTQqoT

Although bronchiectasis and COPD patients release bacteria during coughing, this process does not appear to spread infection to others, a study shows.

06/17/2019

New Post: ‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy https://buff.ly/2XVCRBI

Eurordis, the European alliance of rare disease organizations, uses a 10,000-member patient and caregiver database to conduct surveys on public policy.