08/17/2023
I'm very displeased by the fact that the Mayo Clinic was offered so much funding and was unable to innovate. My own doctor would not diagnose me even though I brought in all the documentation needed to confirm my symptoms of chronic fatigue syndrome/myalgic encephalomyelitis. I was just accepted into the Long COVID clinic at Mayo because I felt like no one was listening to me. It was my family that encouraged me to push on and not consider myself broken so I cancelled the appointment. The very next day, the report came out about the MASSIVE NIH RECOVER failure.
I am on limited income, I was fired from my job that I was very good at, and just the plane ticket to the Jacksonville Florida Mayo location was $450 which I don't have. I am very angry and I've never felt this helpless before.
I've spent a career taking care of the most complicated patients and now my attention has turned to Long COVID. One of my patients was a high level programmer for chatGPT and has offered to help. I am assembling other resources and people also. The methodology for rapid research mentioned by the author is what I am looking to reproduce. I want to find accurate results in the most efficient way.
If anybody has experience and interest with designing high quality research studies, please contact me. My contact information can be found at ADHD2.com also.
I'm very displeased by the fact that the Mayo Clinic was offered so much funding and was unable to innovate. My own doctor would not diagnose me even though I brought in all the documentation needed to confirm my symptoms of chronic fatigue syndrome/myalgic encephalomyelitis. I was just accepted into the Long COVID clinic at Mayo because I felt like no one was listening to me. It was my family that encouraged me to push on and not consider myself broken so I cancelled the appointment. The very next day, the report came out about the MASSIVE NIH RECOVER failure.
I am on limited income, I was fired from my job that I was very good at, and just the plane ticket to the Jacksonville Florida Mayo location was $450 which I don't have. I am very angry and I've never felt this helpless before.
I've spent a career taking care of the most complicated patients and now my attention has turned to Long COVID. One of my patients was a high level programmer for chatGPT and has offered to help. I am assembling other resources and people also. The methodology for rapid research mentioned by the author is what I am looking to reproduce. I want to find accurate results in the most efficient way.
If anybody has experience and interest with designing high quality research studies, please contact me. My contact information can be found at ADHD2.com also.
Unless you have constructive feedback, please don't reply to this post because I have very few productive hours in the day as it is.
I'm very displeased by the fact that the Mayo Clinic was offered so much funding and was unable to innovate. My own doctor would not diagnose me even though I…