National Scleroderma Foundation Tri-State Chapter

01/12/2026

⭐️Join the Tri-State Chapter on our first virtual webinar of 2️⃣0️⃣2️⃣6️⃣!⭐️

We will be hosting the “Importance of Estate Planning” featuring
Dedra Sibley, Esq.

TOPIC: A Unique Collaborative Estate Planning Experience
DATE: Friday, January 23, 2026
TIME: 3:00 p.m. EST

This session will cover key aspects of estate planning, including how to ensure your wishes are honored, the role of a durable power of attorney, healthcare power of attorney, and other important considerations.

Whether you’re just getting started or looking to review your plans, this webinar will offer helpful guidance and peace of mind.

Register by scanning QR code or click the link

https://us02web.zoom.us/webinar/register/WN_wa8ac73ST_m3hLqhkdC92w

01/09/2026

The Metro 5 Scleroderma Support Group meeting for NYC Area, Long Island, Bergen County & Northern New Jersey invite you to our first Support Group Meeting of 2️⃣0️⃣2️⃣6️⃣! Let’s catch up after the Holiday hiatus!

Date: Thursday, February 5, 2026

Time: 7:00 pm - 8:30 pm EST

Topic: Open Discussion

Scan the QR code or Register at

https://us02web.zoom.us/meeting/register/rVH1now0SMi2up9pxNCllA

All are welcome from any location! Join us!

12/30/2025

Looking for a New Year's resolution?

Make 2026 the year you get involved and volunteer with the Foundation.

From supporting events to sharing your voice and experience, every role helps strengthen our community.

✨ Take the first step by filling out our volunteer interest form: https://ow.ly/mk0850XNJpL

12/30/2025

We're already setting our sights on 2026! 🏛️

Our team is hard at work shaping priorities to make an even bigger impact for the scleroderma community.

Want to see what’s ahead and get involved?

Check out our advocacy efforts here: https://scleroderma.org/our-priorities/

12/30/2025

Hope begins with one gift - yours!

Give now to advance research, compassionate support and education for those affected by scleroderma.

https://ow.ly/Bhwv50XNp32

👉 Before the year ends, make a meaningful impact with your generous gift to light the way forward and move us closer to a cure!

12/25/2025

Wishing you a holiday season filled with peace, comfort, and moments that brighten your spirit.

The holidays are a time to slow down, reflect, and appreciate the people and connections that make life meaningful.

Happy Holidays from all of us to you. ❄️💙

12/25/2025

Receiving a scleroderma diagnosis can feel overwhelming, but you’re not alone.

Our Resource Center is a great place to start.

Explore clear, trusted information about treatment, daily living, support options, and what to expect along the way.

Whether you’re seeking answers or community, we’re here to walk with you every step of the journey.

https://scleroderma.org/resources-center/

12/25/2025

Our offices will be closed December 25–January 1, but support is always within reach. 💙

You can still make donations, memorials, and tributes during normal business hours, and access resources anytime at scleroderma.org.

If you need support, our HOPE line is available at 800-722-HOPE (4763).

Thank you for an incredible year and wishing you a joyful holiday season and a happy new year. ✨

12/25/2025

Ready to help lead meaningful change?

We’re now accepting applications through January 16, 2026, for our Patient Advisory Board.

https://ow.ly/WtjX50XKs5W

This group helps shape the Foundation’s priorities, strengthens patient education, and ensures our community’s needs are heard loud and clear.

If you’re passionate about helping others living with scleroderma and want to play a role in guiding future programs and research, we’d love to hear from you.

12/20/2025

12/20/2025

Scleroderma doesn’t follow a single path - it can appear at any age, from childhood through later adulthood.

Still, it most often begins between ages 25 and 55, a time when many people are building careers, raising families, and navigating major life changes.

By sharing facts like these, we help others recognize symptoms earlier, support loved ones more fully, and build a stronger, more informed community.

Learn more about scleroderma, its signs, and how to get involved in raising awareness at www.scleroderma.org

12/20/2025

As we head into the holiday season, many of our support groups have adjusted their schedules.

Take a moment to look ahead to January and see when you can reconnect with your community in the new year. 💙

https://scleroderma.org/events/month/2026-01/