National Scleroderma Foundation Tri-State Chapter

04/26/2026

This year we adopted a new fundraising platform, Funraisin. Because this is a brand-new system, all participants and teams will need to create new accounts; team information can’t be transferred from the previous platform, but you can use the same information, team name, etc. Your old username and password will not work but you can create your account with those same details.

Once you register, please be sure to confirm your email when prompted to ensure your account activates properly. Failure to take this step will not complete your participation. If you register others, you will need to inform them that they too need to check their email to sign the waiver and finalize their participation.

Guides have been created that go step-by-step through the registration process.

Scribe Guides

Scroll View - https://scribehow.com/viewer/Registering_for_a_Stepping_Out_to_Cure_Scleroderma_Event_and_Personalization__mW-3byicRDiZ7Kx5fTw2Pw

Movie Clip -
https://scribehow.com/embed-preview/Registering_for_a_Stepping_Out_to_Cure_Scleroderma_Event_and_Personalization__mW-3byicRDiZ7Kx5fTw2Pw?as=video&size=flexible

Slide View -
https://scribehow.com/embed-preview/Registering_for_a_Stepping_Out_to_Cure_Scleroderma_Event_and_Personalization__mW-3byicRDiZ7Kx5fTw2Pw?as=slides&size=flexible

04/20/2026

🔗: https://ow.ly/eQjW50YJSgu

Have you been thinking about joining us for National Conference this July? 💙

Don’t wait - early bird pricing ends May 15! Take advantage of discounted rates while you still can.

Register now and secure your spot (and your savings)!

04/20/2026

🔗: https://ow.ly/uGvu50YJWCe

If you missed our latest webinar on Raynaud’s and Scleroderma, the recording is now available to watch. 🎥

Watch the full recording to learn how Raynaud’s impacts those living with scleroderma.

Feel free to share with anyone who might benefit and let us know your biggest takeaway in the comments!

04/16/2026

The Tri-State Chapter is excited to announce the Stepping Out to Cure Scleroderma Long Island, NY Walk will be on June 20, 2026! Join us this year as we celebrate and honor those with , their families, and caregivers.

Create a Team, Join a Team and Register here:

https://events.scleroderma.org/event/solongislandny2026

Stay tuned for upcoming dates to an area near you!

We can’t wait to with you soon! 😊

04/15/2026

The Metro 5 Scleroderma Support Group meeting for NYC Area, Long Island, Bergen County & Northern New Jersey invite you to our Support Group Meeting on

Date: Wednesday, May 6, 2026

Time: 7:00 pm - 8:30 pm EST

Scan the QR code or Register at

https://us02web.zoom.us/meeting/register/BdpKzqnsTuexICO7Mxi0rQ?bbeml=tp-JWRarjDScUO0zGLKk5a83g.j88vuWEYC-ka00N5VmaWWZw.r1PV87JbiD0mt3vEVGRFXRQ.ly0nUxxW4gEiatbMbSr9BUA&os

All are welcome! Join us!

04/15/2026

The Tri-State Chapter is excited to announce the Stepping Out to Cure Scleroderma Rochester, NY Walk will be on JULY 11, 2026! Join us this year as we celebrate and honor those with , their families, and caregivers.

Create a Team, Join a Team and Register here:

https://events.scleroderma.org/event/sorochesterny2026

Stay tuned for upcoming dates to an area near you!

We can’t wait to with you soon! 😊

04/15/2026

The Tri-State Chapter is excited to announce the Stepping Out to Cure Scleroderma Rockland, NY Walk will be on JUNE 27, 2026! Join us this year as we celebrate and honor those with , their families, and caregivers.

Create a Team, Join a Team and Register here:

https://events.scleroderma.org/event/sorocklandny2026/home

Stay tuned for upcoming dates to an area near you!

We can’t wait to with you soon! 😊

04/15/2026

The Tri-State Chapter is excited to announce the Stepping Out to Cure Scleroderma Ridgefield Park, NJ Walk will be on MAY 30, 2026! Join us this year as we celebrate and honor those with , their families, and caregivers.

Create a Team, Join a Team and Register here:

https://events.scleroderma.org/event/soridgefieldparknj2026/home

Stay tuned for upcoming dates to an area near you!

We can’t wait to with you soon! 😊

04/15/2026

The Greater Rochester Scleroderma Support Group invite you to their next IN PERSON Support Group Meeting

Date: Saturday, May 16, 2026

Time: 1:00 pm ~ 3:00 pm

Location: Irondequoit Library
1290 Titus Ave, 2nd Floor, Rochester, NY

TOPIC: Moving Forward

Facilitators: Marilyn Sibley and Diane Reynolds

Note A formal meeting notice will be forwarded by the National Scleroderma Foundation.

For more information contact:
Greater Rochester Support Group Facilitator
Marilyn A. Sibley
(585) 723-1026 or (585) 406-9858
Email: msibley@scleroderma.org

04/15/2026

🔗: https://ow.ly/5iWH50YH1PF

Our advocates are true beacons of hope! 💙

Thank you for raising your voices during Virtual Hill Days and sharing your powerful stories with lawmakers.

Together, we’re driving awareness, advancing research, and inspiring real policy change for everyone affected by scleroderma. 🙌

Your courage is making a difference!

04/15/2026

🔗: https://ow.ly/7G9X50YCWgG

We are accepting abstract submissions for Poster Hall presentations at our 2026 National Conference in Baltimore! 📊

We welcome original research and clinical studies (IRB approval required; recruitment or general promotion is not allowed).

Translational science and patient-centered work related to scleroderma and autoimmune conditions are also encouraged.

📅 Submission Deadline: Monday, May 4, 2026.

04/15/2026