National Scleroderma Foundation Tri-State Chapter

02/22/2026

We are counting down to on February 28!

Our partners National Organization for Rare Disorders, Inc. (NORD) are asking you to by wearing a zebra cap, shirt, face paint or anything you’d like.

Then, tag them and use the hashtag on Feb. 28!

Learn more on how to get involved: https://rarediseases.org/rare-disease-day/

02/22/2026

Thinking about attending our National Conference? Don’t let cost be the reason you miss out. 💙

Scholarships are available for those who need financial assistance to attend.

⏰ Applications are due by March 30 at 5:00 p.m. ET.

🔗 Apply today at https://ow.ly/59LC50Yi7Yw

02/22/2026

We are now accepting abstract submissions for Poster Hall presentations at our 2026 National Conference in Baltimore! 📊

We welcome original research and clinical studies (IRB approval required; recruitment or general promotion is not allowed).

Translational science and patient-centered work related to scleroderma and autoimmune conditions are also encouraged.

📅 Submission Deadline: Monday, May 4, 2026.

🔗 Apply today at https://ow.ly/oktW50YhMbk

02/22/2026

We know many in the scleroderma community are eager to learn more about CAR-T cell therapy and clinical trials. 🧬

Novartis has recently launched a new page to share insights about trials in this exciting area of research: https://ow.ly/3T9E50YcOmH

The Foundation does not endorse clinical trails or studies, but we do share information to keep our community informed.

Keep up to date with the latest news in clinical trials by subscribing to our Clinical Trials Connections newsletter: https://ow.ly/Gg7e50YcOmJ

02/19/2026

We’d love to hear your thoughts Tri-Staters 🩵

In honor of Valentine’s Day, we’re celebrating the heart of the scleroderma community...YOU. 💙

Your strength, compassion, and support for one another help make this community a place of connection and hope!

What do you love most about the scleroderma community?

Tell us in the comments and help spread the love. 💬💕

02/19/2026

Sign up for our Clinical Trials newsletter and stay connected to the research driving progress in scleroderma. 🚨

Stay in the loop on the latest scleroderma research, clinical trial opportunities, and much more.

Don’t miss the next edition - sign up today: https://ow.ly/Iove50YemjR

02/19/2026

🔁 Resharing for awareness 🧬

We know many in the scleroderma community are interested in learning more about CAR-T cell therapy and ongoing clinical trials. Novartis has launched a page with information about research and trials in this evolving area.

While we do not endorse specific clinical trials or studies, we share updates to help keep our community informed. You can also stay current on trial news by subscribing to our Clinical Trials Connections newsletter.

We know many in the scleroderma community are eager to learn more about CAR-T cell therapy and clinical trials. 🧬

Novartis has recently launched a new page to share insights about trials in this exciting area of research: https://ow.ly/3T9E50YcOmH

The Foundation does not endorse clinical trails or studies, but we do share information to keep our community informed.

Keep up to date with the latest news in clinical trials by subscribing to our Clinical Trials Connections newsletter: https://ow.ly/Gg7e50YcOmJ

02/16/2026

The Orange County Support Group Meeting is IN-PERSON and invite local members to join us on

Date : Thursday, March 5, 2026 at 1:00 pm EST
Place: Josephine-Louise Public Library, 5 Scofield Street, 2nd Floor Community Room, Walden, NY.

Please reach out to the Support Group Facilitator, Jodi Lynn at jo.lynn78@gmail.com with any questions. Hope to see you!

02/11/2026

The Metro 5 Scleroderma Support Group meeting for NYC Area, Long Island, Bergen County & Northern New Jersey invite you to our Support Group Meeting on

Date: Wednesday, March 4, 2026

Time: 7:00 pm - 8:30 pm EST

Scan the QR code or Register at

https://us02web.zoom.us/meeting/register/soeATdncT4yrn3JxkpOA6A

All are welcome from any location! Join us!

02/09/2026

Let’s bust a common myth together! Scleroderma is NOT contagious.

It is a rare autoimmune connective tissue disease in which the immune system mistakenly attacks healthy tissue.

Sharing accurate information helps dispel myths and encourages understanding and support for those living with scleroderma.

What’s one misconception about scleroderma you wish more people understood? 💬

02/09/2026

Valentine’s Day, but make it cozy 💕

From fleece favorites to warm accessories, these gifts do more than feel good - they help support our mission and community!

Shop with purpose this Valentine’s Day 💙

www.scleroderma.org/store

02/09/2026

We’re headed to Rare Disease Week in Washington, D.C.! 📣

From Feb. 24–26, we will join advocates on Capitol Hill to raise awareness, share stories, and meet with lawmakers.

Together, we’re making sure the scleroderma community is heard!

Are you attending? 📧 Email us at apruett@scleroderma.org. We'd love to connect!

Learn more at: https://ow.ly/b7qc50Ya7yf