MG Holistic Society

11/10/2025

11/10/2025

“Showing up for people is the most important thing.” A heartfelt thank you to Niki Grossheim, our inspiring MG Wisconsin support group leader, who had a chance to speak at the NORD conference.

Navigating life with a rare disease, or caring for someone who is, can often feel isolating and emotionally challenging.

Whether you’re personally impacted by a rare disease or seeking to support someone who is, here are some tips for building a strong, supportive rare village:
▶️ Start by calling to check in on someone or simply lend an ear to someone’s story – it’s a wonderful way to give the gift of feeling seen and heard.
▶️ Allow others to help you, and communicate your needs. It can be tough to ask for support, but remember, people genuinely want to be there for you. You are not in this fight alone.
▶️ Invite people to support groups where they can be surrounded by others who truly understand their journey.


Together, we can create a community where everyone feels connected and empowered. Let’s keep showing up for each other! Thank you Niki!

11/10/2025

What a great way to end the

11/08/2025

11/08/2025

Exciting News ‼️

We are thrilled to announce the launch of The MG Simulator™️ at the American Academy of Neurology conference in fabulous Las Vegas!

After three years of hard work and dedication, it’s finally here!

For the very first time, neurologists, nurse practitioners, and pharmaceutical representatives had the opportunity to experience The MG Simulator™️ firsthand! 🥽This groundbreaking tool will revolutionize how we connect with physicians, nurses, medical schools, public service professionals, caregivers, and so much more.

But that’s not all! We’re keeping the momentum going with the MyMGLife™️ Challenge, which has already proven to be impactful. Together, we’re paving the way for a brighter future in MG awareness ! 💪💙

Stay tuned for more updates and join us on this incredible journey!

11/06/2025

We are extremely proud of Alicia and leaps she is taking not only for herself but for others as well.

https://www.facebook.com/share/1A8NtiEaU2/?mibextid=wwXIfr

11/04/2025

Join Us for Our MG Meeting!

🗓️ Date: 11/10/25
🕡 Time: 6:30 PM
📍 Location: Attend in person at 4147 Chamblee Dunwoody Rd. Atlanta GA 30341
or online from anywhere in the world!

🔹Special Guest: Meg Sheedy, RN, PMHNP-BC
A Clinical Educator from Johnson & Johnson with over 20 years of experience in immunology and neurology, Meg will enlighten us on generalized myasthenia gravis (gMG), IMAAVY™ clinical data, and the treatment journey. We know you are curious about this new treatment. Bring your questions, caregiver and family members to this meeting.

🍽️ Dinner: If you’re joining us in person, please let us know so we can have a plate ready for you!

🔑 Important Note: For those attending in person, we will be using a different entrance and room. Look for clear signage indicating the new door on the far left side of the building. We will have plenty of signs!

📩 Register Now for this meeting:
https://us06web.zoom.us/meeting/register/R6W4yfjcQZOhkhK11awpVg

Link is also available at www.MG-Georgia.org

11/04/2025

Sharing various food resources with the community. We are thankful to these organizations for helping now and always! If you are in a position to donate please do so.

11/04/2025

Our meetings and events this month kick off with the AAN Conference in Las Vegas. If you are in the Las Vegas area let’s connect. Email us.. Check out our other opportunities to engage with our MG community.

11/02/2025

Shouting happy birthday to our national support group leader Alexis Rodriguez on another year around the sun. 🔆Thank you for being an amazing leader in the MG community! 🫶🙌🏾💗

10/31/2025

10/30/2025

POV: Meet Regina, a devoted mom to her adorable 5-year-old daughter diagnosed with Myasthenia Gravis. 🌟 She’s a fierce warrior advocating for her little girl!👧🏾💗

Regina’s story serves as a vital reminder that Myasthenia Gravis can affect anyone, at any age. By sharing her perspective, she helps raise awareness for this often-overlooked condition.

While many of us are familiar with MG in adults, Regina’s concerns about the lack of research focused on children are incredibly valid. Most treatments are currently designed for adults, and it’s time we challenge researchers and grantors to prioritize our children affected by MG.

Thank you, Regina, for opening up and sharing part of your journey as a courageous MG Warrior caregiver. Together, let’s advocate for a brighter future for all those impacted by Myasthenia Gravis‼️🙌🏾❣️