New England Hemophilia Association

03/24/2026

Family Camp will begin three months from today! Applications to attend this summer will be accepted until THIS FRIDAY, March 27.

Take a look through the photos below to relive the magic from last year, then submit your application today to be part of the fun this summer. Learn more and apply: www.nehafamilycamp.org.

03/24/2026

Last week, advocates in New Hampshire came together to recognize Bleeding Disorders Awareness Month in the Granite State!

They gathered outside the State Capitol with a proclamation from Governor Kelly Ayotte before heading to dinner--all while The Hotel Concord was illuminated in red in support of the bleeding disorders community. Thank you to our New Hampshire advocacy state leads, Susi von Oettingen and Mary Fitzpatrick, for making this possible!

03/23/2026

At any stage of life, it’s never too late to invest in your education and pursue new opportunities. The John W. Cavanaugh Adult Education Scholarship was created to help adults in our community return to school, complete a degree or certificate, or begin training for a new career path that supports a brighter future.

To honor John’s memory, we are proud to once again partner with his daughter, Jane, to offer this scholarship to adults pursuing college, trade school, or continuing education opportunities. Applications will be accepted until Friday, April 3. Learn more and apply below!

The New England Hemophilia Association (NEHA) is excited to offer this scholarship to adults in the New England bleeding disorders community who are looking to continue to their education via college, trade school, or continuing education classes.

03/22/2026

The Massachusetts Legislature has officially declared March as Bleeding Disorders Awareness Month in the Bay State!

We’re grateful to Representative Joe McKenna for making this possible and for supporting efforts to raise awareness in our community!

03/21/2026

In our latest newsletter, Lindsey shares her family’s experience living with mild hemophilia—a powerful reminder that every journey, whether mild, moderate, or severe, deserves to be recognized and heard.

As she so clearly puts it: “Advocacy isn’t only about the most severe cases. It’s about ensuring that all individuals and families living with hemophilia feel seen, supported, and informed.” Read the full story: bit.ly/lr-winter25

03/20/2026

This upcoming Thursday, March 26, we're coming together for an early World Hemophilia Day celebration in Biddeford, ME!

Wear something red and join us for a delicious dinner and family-friendly, hands-on activities at the Lincoln Hotel. Sign up to join us below.

On Thursday, March 26 at 6 PM, we are coming together to celebrate World Hemophilia Day! Wear something red and join us at The Lincoln Hotel in Biddeford, ME for dinner and family-friendly, hands-on activities.

03/20/2026

Earlier this week, Mayor Frank Picozzi issued a resolution recognizing Bleeding Disorders Awareness Month in the City of Warwick, Rhode Island.

As March continues, our advocacy leaders are raising awareness for our community at every level of government around New England—from Governors’ offices to state legislatures, and locally with mayors and town councils. Thank you for helping our community be heard!

03/19/2026

Applications close in just a few weeks, on Friday, April 3, for NEHA’s Travel Scholarship to attend the National Bleeding Disorders Foundation (NBDF) Annual Bleeding Disorders Conference (BDC), this August in Orlando, FL.

With more than 100 educational sessions and presentations, BDC offers a valuable opportunity to learn about your condition, explore current and emerging treatment options, and connect with the national bleeding disorders community. Don’t miss your chance to apply, register, and learn more below!

NBDF is hosting their 78th Annual Bleeding Disorders Conference (BDC) in Orlando, FL, from August 13-15.

03/18/2026

Last year’s layoffs at the CDC eliminated much of the Division of Blood Disorders staff and ended the Advisory Committee on Blood and Tissue Safety and Availability, weakening federal oversight of the U.S. blood supply.

Brown University School of Public Health recently highlighted this issue, featuring advocates like Shanthi Hegde, one of Rhode Island’s NEBDAC State Leads, who warned that these cuts dismantle safeguards created after the 1970s–1990s contamination crisis, when thousands of people with hemophilia were infected with HIV and Hepatitis C through tainted blood products. Read the article below.

With mass layoffs at the CDC dismantling decades of oversight born from the HIV/AIDS crisis, blood safety advocates like MPH student Shanthi Hegde warn that repeating the deadly mistakes of the past threatens maternal health, trauma care and national security.

03/17/2026

Earlier this month, Governor Phil Scott issued a proclamation to declare March as Bleeding Disorders Awareness Month in the Green Mountain State!

Thank you for helping us raise awareness in Vermont, Governor!

03/17/2026

One month from today is World Hemophilia Day! Join us on Friday, April 17 at 6 PM at Stockyard Restaurant in Brighton, MA for a special evening of dinner and family-friendly, hands-on activities.

Together, we’ll celebrate the strength of our community and the bold choices and shared support that are helping reshape what life with a bleeding disorder can look like. Enjoy a creative goal-setting craft, take part in a fun photo activity, and connect with others who share the journey.

On Friday, April 17 at 6 PM, we are coming together to celebrate World Hemophilia Day! Wear something red and join us at Stockyard Restaurant in Brighton, MA for dinner and family-friendly, hands-on activities.

03/16/2026

Applications are now open for the 2026–2027 Joe Pugliese Educational Award from the Hemophilia Alliance Foundation. This scholarship supports individuals diagnosed with an inherited bleeding or thrombotic disorder who are pursuing post-secondary education, including technical or vocational school, undergraduate study, or graduate programs.

Four recipients will each receive $12,500 to use toward tuition or other qualified educational expenses within one academic year. Apply before April 10 by clicking below.

HEMOPHILIA ALLIANCE JOE PUGLIESE EDUCATIONAL AWARD APPLICATION Description: The Hemophilia Alliance, The Alliance Pharmacy, and the Hemophilia Alliance Foundation are pleased to support the 2026-2027 Joe Pugliese Educational Award. This award is a scholarship provided annually to individuals diagnos...