New England Hemophilia Association

12/02/2025

Giving Tuesday is a day focused on giving back and supporting organizations that you care about. Today, we are asking you to invest in our community by renewing your yearly NEHA Membership or joining as a new member!

With your support, we can continue on our mission of fostering an inclusive community that uplifts and empowers families through education, advocacy, and support.

Can you help us reach our goal of getting 30 memberships today before midnight? Learn more and invest in our community at: www.nehamembership.org.

12/01/2025

Fritz is loving his Wicked Strong Family mug. Today, on Cyber Monday, you can grab one for yourself or a loved one from our online store! You’ll also find aprons, blankets, hats, shirts, and plenty of other great gifts for everyone on your holiday list.

Explore all our available items and place your order at www.nehastore.org.

12/01/2025

Today is Cyber Monday! Looking for the perfect gift? Our online store is filled with great options for everyone in your family, from cozy sweatshirts and blankets to mugs, aprons, and more.

When you shop at www.nehastore.org, you’re not just checking a gift off of your list, you’re supporting your Wicked Strong Family. Click below to explore all our newest items and find something special today!

When you purchase one of the items from the NEHA Store, you are supporting the New England bleeding disorders community. A portion of all sales support our programs and services like our Emergency Assistance Program and Family Camp.

12/01/2025

Today is , a time to honor and remember those in our bleeding disorders community who contracted HIV/AIDS from contaminated clotting factor.

We invite you to explore this interactive timeline, which highlights the tireless advocacy that helped strengthen the safety of our nation’s blood supply and ensure that a tragedy like this is never repeated. Learn more: bit.ly/HFATimeline

11/28/2025

The National Bleeding Disorders Foundation (NBDF) is hosting their first-ever Unite For Bleeding Disorders Walk T-shirt Design Contest!

All are welcome to submit their ideas by this Sunday, November 30. View the contest guidelines and submit a design at: www.uniteforbleedingdisorders.org/tshirtcontest

11/27/2025

Over the past year, your dedication and support have been at the heart of our growth and success. Your passion, resilience, and commitment continue to inspire us every step of the way.

Thank you for standing by our mission of education, support, and advocacy. The progress we’ve made together is something to be proud of, and it wouldn’t have been possible without you.

We are truly grateful to have you as part of our Wicked Strong Family. Wishing you and your loved ones a very Happy Thanksgiving!

11/26/2025

Applications to attend Washington Days with the National Bleeding Disorders Foundation (NBDF) are now being accepted! This year, we are happy to provide travel scholarships for six families to attend—one from each state in New England.

Join us to represent New England as you share your story about living with a bleeding disorder with your elected officials, while also asking them to support programs that the bleeding disorder community relies on. Training will be provided, and new advocates will be paired with seasoned advocates or staff members for their meetings. Learn more and register below!

NBDF is hosting their Annual Washington Days program in Washington, DC from Wednesday, March 4 to Friday, March 6.

11/25/2025

At FallFest earlier this month, we presented Jonathan Lima with our Young Adult Award, which recognizes a young community member who has dedicated significant time and energy to strengthening NEHA’s programs.

Since becoming a Family Camp counselor in 2018, Jonathan has led youth programming, volunteered at countless events, and consistently stepped up wherever help was needed. His leadership, kindness, and commitment inspire everyone around him. We’re deeply grateful for all he has contributed to our community.

11/24/2025

Our Couples Retreat is one of our most popular events of the year, and we are already 80% full. Register today to join us from Saturday, January 17 to Sunday, January 18 in Portsmouth, NH.

Throughout the weekend, attendees will learn skills to strengthen communication, implement balance in their lives, and increase their vulnerability with their partner. Couples will build deeper connections and leave with practical tools to maintain them. You will also enjoy a hands-on nutrition session to inspire healthier, more intentional eating habits at home. Sign up below!

Our Annual Couples Retreat will be held from Saturday, January 17 to Sunday, January 18 at the Sheraton Portsmouth Harborside Hotel in Portsmouth, NH.

11/23/2025

Still procrastinating making those holiday cards? It's not too late! Design your cards now while also supporting your Wicked Strong Family!

When you use Minted to design your cards, you will receive 20% off your order and Minted will donate 10% to NEHA! All you need to do is enter code "FUNDRAISENEHA" at the end of your purchase at minted.com.

11/22/2025

It’s that time of year again: open enrollment for health insurance plans. This already complex process is even more challenging this year due to federal uncertainty around renewing enhanced premium tax credits and how that could affect monthly insurance costs.

In our quarterly Advocacy Email that came out earlier this week, we share a variety of resources to help guide you through each step, including a refreshed insurance toolkit from the National Bleeding Disorders Foundation, information on Washington Days 2026, and more. Read our newsletter below!

Open Enrollment Toolkit The open enrollment period for most marketplace health insurance plans ends on Monday, December 15. It is crucial that you prepare early to avoid a lapse in coverage. The National Bleeding Disorders Foundation (NBDF) has released a refreshed version of their Insurance Toolki...

11/21/2025

Earlier this month at FallFest, we hosted a screening of Dismissed—a new documentary from Believe Ltd that shares the powerful stories of women navigating life with bleeding disorders. Their experiences reveal longstanding gaps in care and underscore the urgent need for change.

Watch a trailer of the film below, and visit www.dismissedfilm.com to watch the film today.