New England Hemophilia Association

11/03/2025

With Halloween behind us, now is the time to get a jump start on designing your holiday cards! This year, you can do so while also supporting your Wicked Strong Family!

When you use Minted to design your cards, you will receive 20% off your order and Minted will donate 10% to NEHA! All you need to do is enter code "FUNDRAISENEHA" at the end of your purchase at minted.com.

10/31/2025

En Español: El miércoles 3 de diciembre a las 7 PM, NEHA organizarán una presentación educativa de forma virtual junto a Sanofi en español.

Después de la presentación, la comunidad decorará casas de jengibre. Les pedimos que se registren antes del 17 de Noviembre para que la Asociación pueda enviarles por correo una caja con los materiales para decorar la casa de jengibre. Se enviará una por familia: www.newenglandhemophilia.org/events/esp-dec25

10/24/2025

Tune in to Celebrity Wheel of Fortune TONIGHT to see Alex Borstein spin the wheel for the National Bleeding Disorders Foundation (NBDF)!

Every spin helps raise awareness and funds for people and families living with bleeding disorders. Good luck, Alex!

10/23/2025

It may be hard to believe, but registration is now open for our Annual Holiday Parties!

Families will enjoy a holiday themed lunch, arts and crafts activities and a gift from Santa for children under the age of 12. Join the festive fun by registering below.
🎁 Northern New England: Saturday, December 6 at 12 PM at Seasons Restaurant in Bangor, ME (bit.ly/hol-n)
🎅 Southern New England: Sunday, December 7 at Kirkbrae Country Club in Lincoln, RI. (bit.ly/hol-s)

Our Annual Holiday Party South will be held on Sunday, December 7 at 11 AM in Lincoln, RI.

10/22/2025

This weekend, Brands of Portugal hosted a sold-out wine tasting event in Rumford, RI, raising $1,500 to benefit NEHA!

Guests enjoyed a curated selection of nearly forty wines from across Portugal—each with its own unique story and perfect for any holiday table or gift list—paired with delicious snacks, live music and warm company. Thank you to Chris and Nelly Saraiva for organizing this creative event and for their continued support of our community.

10/21/2025

Every year, CSL Behring hosts the Gettin’ in the Game Junior National Championship: the first national sports competition for children with bleeding disorders.

This year, NEHA can send three children, ages 7-18, who wish to participate in golf, baseball, basketball or swimming. Travel and hotel accommodations will be provided. Learn more and apply below!

Each Fall, CSL Behring hosts the Gettin’ in the Game Junior National Championship (JNC): the first national, and currently the only, sports competition for children with bleeding disorders.

10/20/2025

We are proud to share that Waylon Page, from Higganum, CT, was honored with the Ryan White Youth Award by the National Bleeding Disorders Foundation (NBDF) for his outstanding leadership and advocacy within the bleeding disorders community.

In our latest newsletter, Waylon shared how his initiative to place Stop The Bleed kits in public buildings became law in Connecticut. Read his inspiring story here: bit.ly/wp-summer25

10/16/2025

In our recent newsletter, Madison shared her story about being a woman with hemophilia. Sadly, far too many women, like Madison, have their symptoms and needs dismissed due to outdated beliefs that only men have hemophilia.

By sharing her story, she hopes to make others aware of the journey that she, and so many other women with bleeding disorders go through. Read her story: bit.ly/md-summer25

10/15/2025

It is never too early to begin your holiday shopping! We’re thrilled to announce that our NEHA Store is stocked full of possible gifts for every member of your family.

Our North Face fleeces are in stock once again, and the store also features items like: Wicked Strong Mom & Dad sweatshirts, t-shirts, mugs, journals, f***y packs, and more. Explore our store at:

When you purchase one of the items from the NEHA Store, you are supporting the New England bleeding disorders community. A portion of all sales support our programs and services like our Emergency Assistance Program and Family Camp.

10/14/2025

Next week, we’re hosting three educational dinners designed to help our community learn more about Sanofi’s treatment options for hemophilia A and B. Click below to learn more and register to join us at one of the following locations.
📍 Tuesday, October 21 in New Haven, CT
📍 Wednesday, October 22 in Warwick, RI
📍 Thursday, October 23 in Andover, MA

We are hosting three educational dinners to help our community members learn more about Sanofi's products to treat hemophilia A and B.

10/10/2025

October 10 is Factor X Day! Today, we're raising awareness and celebrating the strength of our community members living with this rare bleeding disorder.

Factor X deficiency may be rare, but no one faces it alone. Together, we stand united in support, advocacy, and hope for a future with greater understanding and better treatments.

Today is Factor X Day! Recognize someone who’s supported you, or share a quote or words of encouragement to inspire others affected and their loved ones to keep going.