Kayven’s Helping Hands

03/13/2026

Feature Friday: Wichita’s Littlest Heroes 💛

This week we are highlighting Wichita's Littlest Heroes, an incredible organization supporting Kansas children facing life threatening or complex medical conditions.

They provide families with financial assistance, resources, enrichment activities, and a supportive community so families do not have to face these challenges alone.

We love collaborating with local organizations to help bring resources to kids who need them. We will be attending their Superhero on April 25th to provide Kayven’s Care Kits for children with epilepsy and books for all kids who attend. 💜

https://www.facebook.com/share/1aCrJztrMq/

Send a message to learn more

03/11/2026

🌷 Our Spring Newsletter Is Here! 📚💜

There is a lot happening at Kayven’s Helping Hands, and we are excited to share our March and Spring updates with you. From new Little Free Library news and upcoming events to ways you can support kids and families in our community, our newsletter keeps you connected to the impact you are helping make possible.

Want to stay in the loop and be the first to hear about upcoming events, volunteer opportunities, and ways to get involved?

👉 Sign up for our email list today:
https://www.kayvenshelpinghands.org/

03/08/2026

💜 Introducing the Purple Hearts Committee 💜

Kayven’s Helping Hands is growing our epilepsy outreach efforts, and we are looking for volunteers who want to help make a difference in the epilepsy community.

The Purple Hearts Committee is a group of volunteers who help us identify needs within the epilepsy community, share ideas for new programs, provide feedback on current efforts, and help connect families with resources, education, and awareness.

Our epilepsy work includes community education events, Kayven’s Care Kits, support groups, seizure first aid training, distributing educational resources, and more. As we continue to grow these programs, we would love to have more voices and helping hands involved.

There are many ways to participate. Some volunteers help with ideas and planning while others help with events, projects, or sharing resources in the community. You can be involved as much or as little as your schedule allows. You don't have to be local to be involved.

If you are interested in learning more about the Purple Hearts Committee, please fill out this short interest form and we will send additional information.

💜 Sign up here: https://form.jotform.com/260664016670152

Together we can continue building awareness, education, and support for children and families living with epilepsy.

03/07/2026

Hey KHH fam! 💜

We need your t-shirts!!

We are starting a new project and are looking for new or gently used cotton T shirts donated. If you have shirts from a 5K, race, event, or any other t-shirt sitting in a drawer collecting dust, we would love to give them a new purpose.

Please only donate shirts that are 100 percent cotton or at least a 50/50 cotton blend. We cannot use shirts that are distressed, acid washed, bleached, or too worn out.

If you have some to share, please send us a message. Thank you for always supporting the work of Kayven’s Helping Hands and helping us turn everyday items into something meaningful. 💜

03/05/2026

Just in case you have ever wondered what a garage full of 1,600+ books looks like… here it is! 😄📚

But seriously, when these two schools reached out and said they wanted to do a book drive, we had no idea it would be this BIG.

We are incredibly thankful to Primrose School of Wichita West and Primrose School of Wichita East and all the families for this generous donation. Kayven was a Class of 2019 preschool alumni, and he loved the school and his teachers there. Seeing this support means so much to our family and to the mission of Kayven’s Helping Hands.

A big thank you as well to the little helpers who helped load the books, and to our buddy Michael who helped us unload them.

As Mr. Rogers once said: " look for the helpers. You will always find people who are helping."

We definitely found a lot of helpers. 💜📚

03/05/2026

Calling all medical professionals 👩‍⚕️👨‍⚕️

Partners Against Mortality in Epilepsy is a leading educator on Sudden Unexpected Death in Epilepsy and offers free online training for clinicians.

Through a partnership with VuMedi, medical professionals can access important SUDEP education and join more than 650,000 clinicians worldwide learning through this platform.

If you are a medical professional, create a free account and explore the training here ⬇️
https://www.vumedi.com/channel/partners-against-mortality-in-epilepsy/?utm_source=PAME&utm_medium=partner

Please consider sharing to help raise awareness and education about SUDEP 💜

We have partnered with Vumedi to raise awareness of SUDEP among clinicians worldwide! Vumedi is the leading video education platform for doctors, hosting over 90,000 videos created by nationally recognized clinicians and academic partners, featuring the latest medical trends and expertise.

Are you a medical professional? Register for a free account to access PAME content, and join over 650,000 clinicians worldwide who learn through Vumedi: https://www.vumedi.com/channel/partners-against-mortality-in-epilepsy/?utm_source=PAME&utm_medium=partner

03/04/2026

Big changes happen with small steps and GIANT SIGNS 💜✨

If you are near Intrust Bank Arena this month, take a look at the Purple Day marquee shining bright for the 1 in 26 people living with epilepsy 💜 It is an incredible sight and a powerful reminder that awareness matters.

If you spot it, snap a photo 📸 share it, and tag the Epilepsy Foundation of Missouri and Kansas. We would also love to know if you can see it from Kellogg?!?!? 👀

Thank you to Intrustbankarena for helping shine a light on epilepsy awareness 💜 and to the Epilepsy Foundation of Missouri and Kansas for the important work you do supporting individuals and families living with epilepsy right here in our community. 💜🧠✨

03/02/2026

If you have ever considered a nighttime seizure monitor and alert device, Danny Did is hosting this webinar tomorrow with Emfit. They will go over the features, how it works and be available for live questions. Thank you Danny Did for providing the opportunity to educate and helping to close the gaps in epilepsy care!!

March 3rd: Technology Tuesday Featuring Emfit / Events / By Katie Gaughan As part of our ongoing Tech Tuesdays series, we’re excited to invite you to a free educational webinar on March 3rd at 12:30 pm CT featuring a live presentation from EpiUSA, the sole distributor of the Emfit Movement Monitor...

03/01/2026

💜 Get Ready for International Purple Day 💜

March 26th is International Purple Day, a worldwide day to raise awareness and show support for those living with epilepsy. We would love for YOU to wear purple with us and help spread awareness in our community.

To help you get your wardrobe ready, Kayven’s Helping Hands is selling our signature red and yellow shirt with an added purple epilepsy awareness ribbon screen printed over the heart. ❤️

✨ Special March Bonus ✨
Order your shirt during the month of March and we will include:
💜 A purple and white Seize the Day bracelet
💜 A KHH sticker
💜 A KHH bookmark

👕 Order yours today and wear purple with purpose on March 26th.

👉 Order here: https://givebutter.com/tPPR1h

💜🦆

03/01/2026

Today is Rare Disease Day. 💙🧬

Please stand with us in recognizing the incredible children fighting battles many of us could never imagine, and the brave caregivers who advocate for them every single day. Their strength, resilience, and courage inspire us all. 💜

Awareness, research, funding, and community support save lives and improve quality of life for individuals and families living with rare diseases. Together, we can help ensure no one feels unseen or unheard. 🌍✨

02/28/2026

Today is Rare Disease Day. 💙🧬

Please stand with us in recognizing the incredible children fighting battles many of us could never imagine, and the brave caregivers who advocate for them every single day. Their strength, resilience, and courage inspire us all. 💜

Awareness, research, funding, and community support save lives and improve quality of life for individuals and families living with rare diseases. Together, we can help ensure no one feels unseen or unheard. 🌍✨

This Rare Disease Day, we're proud to partner with the Rare Epilepsy Network: REN to support people and families living with rare epilepsies. Together, we’re working to close the unacceptably high mortality rates in these communities and push for better care, research, and outcomes. 💜🧠

From treatment guides to community connections, REN provides tools and resources to help navigate life with a rare seizure condition. www.rareepilepsynetwork.org/resources