Asking Prayers for Cade and Updates

10/07/2025

09/30/2025

Chiari Fact 30:
September is Chiari Malformation Awareness Month, Please help us spread awareness! For more information about Chiari, Please visit https://www.facebook.com/groups/1878097775807738 https://bobbyjonescsf.org/ https://conquerchiari.org/index.asp

09/30/2025

Day 29 Spreading Chiari Malformation Awarness

🧠Chiari is genetic😔

09/29/2025

Chiari Fact 27: Weather and Barometric Pressure can greatly affect Chiari, pain and symptoms. A drop or rise in the barometric pressure (pressure against Earth's atmosphere) means that pressure against the body can drop or rise as well, causing inflamed areas in the body to swell. This can increase inflammation and our bodies hormones may react, like adrenaline and cortisone. These hormones help us handle energy, mood, pain management and the "Fight or Flight" response. As the barometer drops the body may deplete or lose these hormones, effecting energy, pain, mood and response. High pressure may keep tissues from expanding and cause pain. A study has correlated that every 10-degree drop in temperature increases pain as well as any precipitation.
September is Chiari Malformation Awareness Month, Please help us spread awareness! For more information about Chiari, Please visit https://www.facebook.com/groups/1878097775807738 https://bobbyjonescsf.org/ https://conquerchiari.org/index.asp

09/29/2025

09/29/2025

Chiari Fact 28: Some with Chiari also have: Cranio-Cervical Instability (instability of skull and upper spine), Atlanto-Axial Instability (instability between the C1 & C2), Basilar Invagination (top of C2 abnormally herniates above skull), Cranial Settling (flattening of skull base) or Retroflexed Odontoid (C2 abnormally bends backward to brainstem). These complex issues are often seen in EDS patients. Some symptoms are severe head/ neck pain, burning pain in spine, syncope, weakness, numbness, paralysis, hearing loss, respiratory failure, autonomic nervous system dysfunction, flushing, sweating, nausea, mental status change, drop attacks, tremors, etc
September is Chiari Malformation Awareness Month, Please help us spread awareness! For more information about Chiari, Please visit https://www.facebook.com/groups/1878097775807738 https://bobbyjonescsf.org/ https://conquerchiari.org/index.asp

09/26/2025

09/26/2025

09/24/2025

Chiari Awareness Fact 24,
September is Chiari Malformation Awareness Month, Please help us spread awareness! For more information about Chiari, Please visit https://www.facebook.com/groups/1878097775807738 https://bobbyjonescsf.org/ https://conquerchiari.org/index.asp

09/24/2025

September is Chiari Malformation Awareness Month, Please help us spread awareness! For more information about Chiari, Please visit https://www.facebook.com/groups/1878097775807738 https://bobbyjonescsf.org/ https://conquerchiari.org/index.asp

09/23/2025

September is Month Day 23