EDS Connective

EDS Connective Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from EDS Connective, Medical and health, Des Moines, IA.
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☀️ SUMMER 2026
➡️ EDSconnective.com/WAITLIST

Virtual health platform for diagnosis of Hypermobile Ehlers-Danlos Syndrome , Hypermobility Spectrum Disorder , & genetic testing for other subtypes & Heritable Connective Tissue Disorders

04/24/2026

Can you relate❓👉 ” When someone finally sees you and validates what you KNOW has been going on in your body for so long… it can be a huge sense of relief.”

Thank you to the wonderful Jeannie Di Bon for answering: 🎙️Why does getting an EDS / hEDS / HSD diagnosis matter?

We’re looking forward to sharing more about our new partnership with The Zebra Club 🦓🙌🏼 - stay tuned!

04/23/2026

📣 Your symptoms aren’t in your head - they’re REAL 💛

Carley Whitt, MD Physical Medicine and Rehab at answers: 🎙️ Why does an EDS/hEDS/HSD diagnosis matter?

04/21/2026

More Diagnosis ➡️ More Research ➡️ More Therapeutics
(and someday, a CURE🙌🏼)

Thank you to Dr. Nimish Mittal, Medical Director of Goodhope EDS Clinic in Toronto, Canada for answering the big question: 🎙️ Why does an EDS/hEDS/HSD diagnosis matter?

💬 Tell us: what else can a diagnosis do?

04/16/2026

👉“Because of early diagnosis… my kids are doing SO MUCH BETTER than I was at their age.” 🙌🏼

of tells us: 🎙️ why does an EDS/hEDS/HSD diagnosis matter?

💬 has your diagnosis helped others in your family recognize symptoms sooner, prevent harm, or achieve better outcomes?

04/14/2026

AN ACT OF ADVOCACY 💥

You get diagnosed ➡️ your providers learn from you ➡️ they start to recognize the clinical patterns ➡️ the next patient gets an accurate diagnosis sooner ‼️

Love this take by .melissakoehl.pt in her answer to our question: 🎙️ why does an EDS/hEDS/HSD diagnosis matter?

⭐️ If you’re still fighting to be seen, you can soon get a virtual clinical diagnostic evaluation for hEDS and HSD from EDS Connective.

✅ Accurate, affordable, and accessible.

☀️ Launching this summer.

☝🏼Join the waitlist at the link in bio.

04/12/2026

PART 3️⃣: .bloom , President and CEO of The .danlos Society, answers: 🎙️ why does an EDS/hEDS/HSD diagnosis matter?

📣 TELL US: Do you think ❓

04/11/2026

THE Alan Pocinki, MD tells us: 🎙️Why does an EDS/hEDS/HSD diagnosis matter?

Dr. Alan Pocinki is a general internist widely recognized for his expertise in dysautonomia in connection to Ehlers-Danlos Syndrome, specializing in the care of patients with complex, overlapping chronic conditions.

👀 Still searching for YOUR answers?
❤️‍🩹 You shouldn’t have to wait so long and fight so hard to be seen.
🦓 Virtual diagnosis for Hypermobile EDS and Hypermobility Spectrum Disorder is coming soon.
☝🏼Learn more & get on the list at the link in bio.

We believe you.
We believe in you.



04/10/2026

answers: 🎙️why does an EDS/hEDS/HSD diagnosis matter?

04/10/2026

Seeking help is an ACT OF COURAGE.

- Dr. Dacre Knight

💬 We’ll start: folding a fitted sheet is easier than getting a hEDS/HSD diagnosis.🎤 What do you think is easier? ...
03/24/2026

💬 We’ll start: folding a fitted sheet
is easier than getting a hEDS/HSD diagnosis.

🎤 What do you think is easier?

So many people with hEDS aren’t just misunderstood - they’re dangerously misdiagnosed.If you’ve been told it’s psycholog...
03/20/2026

So many people with hEDS
aren’t just misunderstood -
they’re dangerously misdiagnosed.

If you’ve been told it’s psychological,
just anxiety,
or all in your head,
you deserve to be taken seriously.

💬 What have you been told that stuck with you?

We’re listening.
If you’re ready for real answers,
👉 join our waitlist for diagnosis evaluation.

🦓You’ve probably heard it.“It’s just a label.” “There’s no cure anyway.” “Why does diagnosis matter?”For those navigatin...
02/20/2026

🦓You’ve probably heard it.
“It’s just a label.”
“There’s no cure anyway.”
“Why does diagnosis matter?”

For those navigating hypermobility, Ehlers Danlos Syndrome, and the many conditions that come along for the ride,

diagnosis isn’t about collecting a name on a chart. 📝

It can mean:
• Access to informed medical care
• Safer movement and physical therapy
• Protection from harmful treatments
• Workplace or school accommodations
• Insurance documentation
• Validation after years of doubt
• Hope for a healthier future

But we want to hear from you.🔊

💜What do you wish people understood about what diagnosis really means for chronic illness patients?

Drop your answer below.

Your words might change someone’s perspective.

We believe you. We believe in you.
🦓💪💜

Address

Des Moines, IA
50309

Opening Hours

Monday 8am - 5pm
Tuesday 8am - 5pm
Wednesday 8am - 5pm
Thursday 8am - 5pm
Friday 8am - 5pm

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