Rare Cancer Research Foundation

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Durham, NC
Rare Cancer Research Foundation

Dedicated to finding cures for rare cancers by facilitating patient-centric research at pattern.org.

👉 linktr.ee/rarecancerrf

About a quarter of new cancer diagnoses are for rare cancers, while rare cancer deaths account for more than 40 percent of cancer deaths. RCRF translates oncology innovations for common cancers to treat rare cancers. Leveraging economies of scale, RCRF employs shared solutions to enable every rare cancer to have access to the research building blocks that will lead to a cure. For more information, go to www.rcrf.org

01/20/2026

Our partnership with TRACER began in June of 2025 and allows us to send tissue samples donated through pattern.org to a team of researchers who are studying over 30 types in total.

Visit pattern.org today and see if your cancer type is eligible for donation to the TRACER Initiative!

01/16/2026

🙌 Please help us welcome our new CEO, Virginia Spitzer!

2026 is here and RCRF will continue to serve researchers, scientists, hospital systems, academic institutions, biostatisticians, and physicians—always with the patient at the center.

Read our latest blog piece from Virginia at the link in our bio and feel free to leave her a warm welcome in the comments below! 💙💚

01/15/2026

This Rare Cancer Roundup focuses on , a that starts in the lining of blood vessels or lymph vessels and can grow and spread quickly.

A special thanks to our partner Angiosarcoma Awareness Inc. for the information found in this video. 💙💚

Want to spread the word? Make sure to and !

01/13/2026

Our research partner is hosting a patient symposium in March that you won’t want to miss!

From guidance on how to navigate diagnosis and treatment to behind-the-scenes looks into the lab, this is a valuable opportunity. Please visit their page to learn more and register today!

01/08/2026

Salma Harfouche (known affectionately as Sal) never knew a time during her childhood and teenage years where she wasn’t afflicted with constant fatigue, exercise intolerance, and episodes where she would struggle to breathe or have vision changes.

It turns out that Sal had an incredibly rare malignant tumor that had been growing her entire life and accounts for less than one-fifth of all cardiac : of the heart. Read more of her story at the link in our bio.

💙💚

01/06/2026

You won’t want to miss this opportunity to join us in this free virtual webinar on January 21!

We’ll be speaking with several patients about their experiences with their diseases and how they worked to navigate the healthcare system and advocate for their care.

Visit the link in our bio to register today! 💙💚

12/31/2025

Did you know there are multiple ways you can give to help accelerate research projects and treatment hope for ?

Visit the link in our bio to donate today in the way that feels best to you, from stock and crypto to one-time or recurring donations! 💚💙 We are so grateful for your support.

12/30/2025

Our work with researchers across the country is helping to directly improve outcomes for patients in need, such as those with .

As we end the year, we ask that you consider donating today to RCRF so that we can continue to improve the lives of rare cancer patients through patient-powered collaboration. Visit the link in our bio to do so. 💚💙

12/28/2025

Progress happens much more slowly when we are siloed, especially in research. We are proud to partner with a wide variety of patient advocacy organizations who are helping to fuel progress every day.

Our partnerships are making a difference — but don’t just take our word for it — take theirs!

Help us as we continue to find by visiting the link in our bio to donate today. 💙💚

12/18/2025

RCRF is thrilled to partner with to fuel progress in the study of Myoepothelial Carcinoma! 🔬

If you are a patient with MEC, consent to donate your tissue and/or medical data today through pattern.org. Your donations are key in driving progress for this ultra-rare, understudied cancer.

Read more about the newly launched cureMEC Biobank, powered by pattern.org, at the link in our bio. 💙💚

12/16/2025

Our initiatives pattern.org and the Pattern Data Commons are revolutionizing rare cancer research and treatment development.

Watch to learn more and visit the link in our bio to help us continue to fuel discoveries today. 💙💚

12/11/2025

By donating your tissue and/or medical data through pattern.org, you’re allowing researchers to unlock powerful insights about your disease.

You can also help fund RCRF as we continue our pattern.org initiative and build exciting additional infrastructure that is designed to help in the development of better therapies and cures. Visit the link in our bio to ! 💙💚

Address

703 Foster Street
Durham, NC
27701

Website

http://rarecancer.org/, http://pattern.org/, http://linktr.ee/rarecancerrf

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