Rare Cancer Research Foundation

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Rare Cancer Research Foundation

Dedicated to finding cures for rare cancers by facilitating patient-centric research at pattern.org.

👉 linktr.ee/rarecancerrf

About a quarter of new cancer diagnoses are for rare cancers, while rare cancer deaths account for more than 40 percent of cancer deaths. RCRF translates oncology innovations for common cancers to treat rare cancers. Leveraging economies of scale, RCRF employs shared solutions to enable every rare cancer to have access to the research building blocks that will lead to a cure. For more information, go to www.rcrf.org

03/27/2026

Collaboration is driving progress in sarcoma research. Through the Pattern.org Sarcoma Consortium, RCRF is partnering with UNC Lineberger Comprehensive Cancer Center, the Parker Institute for Cancer Immunotherapy, and other institutions to bring data together, expand access, and accelerate discoveries. If you have been diagnosed with sarcoma, you can join us through pattern.org and be part of this collaborative effort to move research forward.

03/24/2026

One donation can power many discoveries. Through Pattern.org, donated tissue samples and medical records can support multiple studies, maximizing the impact of each gift. Thanks to these donations, more than 60 rare and common cancer models have been created with our research partner, the Cancer Cell Line Factory at the Broad Institute of MIT and Harvard. These models are advancing research in cancers such as chordoma, renal cell carcinoma, leiomyosarcoma, desmoid tumor, intestinal carcinoid neuroendocrine tumor, uveal melanoma, and clear cell sarcoma.

03/20/2026

Your contribution matters. Through pattern.org, donated samples can be shared across studies, helping accelerate breakthroughs for rare cancers like Clear Cell Sarcoma, Glioblastoma Multiforme, Leiomyosarcoma, Medullary Thyroid Cancer, Pancreatic and Renal Neuroendocrine tumors, Solitary Fibrous Tumor, and Uveal Melanoma. Together, we can drive progress.

03/18/2026

Over the past year, we launched new programs and strengthened existing ones, we forged impactful new partnerships with patient advocacy organizations, and we built powerful collaborations with research organizations. All with one goal in mind: to cure rare cancers. Click here to read about our progress: https://conta.cc/47STkfL

02/10/2026

We’re proud to announce the launch of the Rare Cancer Data Initiative—a new collaboration with Case Comprehensive Cancer Center and Alliance for Rare Cancers, supported by catalytic funding from Chan Zuckerberg Initiative Biohub.

Together, we’re building patient-powered, high-resolution datasets to accelerate breakthroughs for rare cancer patients.

Visit https://rarecancer.org/news-updates/new-collaborative-launches-rare-cancer-data-initiative-to-transform-cancer-research to read the full press release.

Learn more about Case Comprehensive Cancer Center

02/07/2026

No matter where you are in your journey, there is an opportunity for you through RCRF to help advance research or be connected to more personalized care!

Visit our websites at rarecancer.org and pattern.org to learn more today.

02/04/2026

Thank you to for this feature of our work at RCRF to promote for patients in honor of

Please visit https://www.illumina.com/company/news-center/feature-articles/world-cancer-day-2026-rare-cancer-research-foundation.html to read!

01/27/2026

This Rare Cancer Roundup focuses on , a rare form of . A special thanks to and for the information found in this video.

Do you or a loved one have MCC? Donate your tissue and/or data today through pattern.org! 💙💚

01/22/2026

If you’ve been diagnosed with a rare form of , your tissue and/or data donation can help fuel research progress! Consent today at pattern.org 💙💚

01/20/2026

Our partnership with TRACER began in June of 2025 and allows us to send tissue samples donated through pattern.org to a team of researchers who are studying over 30 types in total.

Visit pattern.org today and see if your cancer type is eligible for donation to the TRACER Initiative!

01/16/2026

🙌 Please help us welcome our new CEO, Virginia Spitzer!

2026 is here and RCRF will continue to serve researchers, scientists, hospital systems, academic institutions, biostatisticians, and physicians—always with the patient at the center.

Read our latest blog piece from Virginia at the link in our bio and feel free to leave her a warm welcome in the comments below! 💙💚

01/15/2026

This Rare Cancer Roundup focuses on , a that starts in the lining of blood vessels or lymph vessels and can grow and spread quickly.

A special thanks to our partner Angiosarcoma Awareness Inc. for the information found in this video. 💙💚

Want to spread the word? Make sure to and !

Address

703 Foster Street
Durham, NC
27701

Website

http://rarecancer.org/, http://pattern.org/, http://linktr.ee/rarecancerrf

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