Rare Cancer Research Foundation

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Durham, NC
Rare Cancer Research Foundation

Dedicated to finding cures for rare cancers by facilitating patient-centric research at pattern.org.

👉 linktr.ee/rarecancerrf

About a quarter of new cancer diagnoses are for rare cancers, while rare cancer deaths account for more than 40 percent of cancer deaths. RCRF translates oncology innovations for common cancers to treat rare cancers. Leveraging economies of scale, RCRF employs shared solutions to enable every rare cancer to have access to the research building blocks that will lead to a cure. For more information, go to www.rcrf.org

12/28/2025

Progress happens much more slowly when we are siloed, especially in research. We are proud to partner with a wide variety of patient advocacy organizations who are helping to fuel progress every day.

Our partnerships are making a difference — but don’t just take our word for it — take theirs!

Help us as we continue to find by visiting the link in our bio to donate today. 💙💚

12/18/2025

RCRF is thrilled to partner with to fuel progress in the study of Myoepothelial Carcinoma! 🔬

If you are a patient with MEC, consent to donate your tissue and/or medical data today through pattern.org. Your donations are key in driving progress for this ultra-rare, understudied cancer.

Read more about the newly launched cureMEC Biobank, powered by pattern.org, at the link in our bio. 💙💚

12/16/2025

Our initiatives pattern.org and the Pattern Data Commons are revolutionizing rare cancer research and treatment development.

Watch to learn more and visit the link in our bio to help us continue to fuel discoveries today. 💙💚

12/11/2025

By donating your tissue and/or medical data through pattern.org, you’re allowing researchers to unlock powerful insights about your disease.

You can also help fund RCRF as we continue our pattern.org initiative and build exciting additional infrastructure that is designed to help in the development of better therapies and cures. Visit the link in our bio to ! 💙💚

12/09/2025

The can bring up complicated emotions for many people, especially patients.

Here are some helpful, practical tips on how you can support your loved one(s) who are dealing with cancer during this time of year. In fact, these tips are relevant year-round!

12/04/2025

In rare cancers, every treatment option matters. Here are a few terms that can help patients advocate for the care they deserve regarding clinical trials and access. 💚💙

Comment below any additional terms you have learned! 👇

12/02/2025

Today is , which means now is the time to support research! Through our initiative pattern.org, we work to connect tissue and medical data to researchers studying rare cancers, paving the way for better treatments for patients in need. But don’t just take our word for it — swipe to see our impact by the numbers so far. 👉

Visit the link in our bio to as we continue to make a difference. 💚💙

11/28/2025

With the officially in full swing, remember that you can support research by purchasing swag and representing RCRF.

Whether you’re looking for a hat, a pullover, a tote bag, or more, we’ve got plenty of gift options for you in our official online store! 😎 Visit https://rarecancer.org/shop today!

11/26/2025

Fall is a season of gratitude, so we want to take the time to recognize our new patient advocacy partnerships that we've formed this year.

We accomplish much more as a collective when we join forces with other organizations that are committed to driving progress for rare cancer patients and researchers. Thank you to all of our partner organizations for what you do! 👏

11/25/2025

is officially one week away! Through our initiative pattern.org, RCRF empowers rare cancer patients to donate their tissue and/or medical data directly to researchers who are studying their disease, creating real progress.

Whether we are supporting infrastructure for the benefit of every patient, or ensuring a single patient gets access to a life-saving treatment, we are fiercely patient-centric.

You can help us as we build a future where rare cancers have proven treatment options and cures. Click the link in our bio to give today! 💙💚

11/20/2025

Navigating the healthcare system can be challenging, especially when you’re a patient. So many questions can swirl around in your mind surrounding how to coordinate care across teams and insurance authorizations.

Here are a few terms you may encounter, but this list certainly isn’t exhaustive.

Comment below any additional terms you have learned! 👇

11/19/2025

We would like to extend our gratitude to high school senior Harper Stevenson-Shimek for recently raising nearly $5,000 through her school fundraising program for RCRF. 🎉

To read more about Harper’s connection to through her late father, click the link in our bio and select “News and Updates.”

Thank you, Harper and friends, for your commitment to helping us accelerate cures through patient-powered collaboration! 💚💙

Address

703 Foster Street
Durham, NC
27701

Website

http://rarecancer.org/, http://pattern.org/, http://linktr.ee/rarecancerrf

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