Rare Cancer Research Foundation

Home
United States
Durham, NC
Rare Cancer Research Foundation

Dedicated to finding cures for rare cancers by facilitating patient-centric research at pattern.org.

👉 linktr.ee/rarecancerrf

About a quarter of new cancer diagnoses are for rare cancers, while rare cancer deaths account for more than 40 percent of cancer deaths. RCRF translates oncology innovations for common cancers to treat rare cancers. Leveraging economies of scale, RCRF employs shared solutions to enable every rare cancer to have access to the research building blocks that will lead to a cure. For more information, go to www.rcrf.org

02/10/2026

We’re proud to announce the launch of the Rare Cancer Data Initiative—a new collaboration with Case Comprehensive Cancer Center and Alliance for Rare Cancers, supported by catalytic funding from Chan Zuckerberg Initiative Biohub.

Together, we’re building patient-powered, high-resolution datasets to accelerate breakthroughs for rare cancer patients.

Visit https://rarecancer.org/news-updates/new-collaborative-launches-rare-cancer-data-initiative-to-transform-cancer-research to read the full press release.

Learn more about Case Comprehensive Cancer Center

02/07/2026

No matter where you are in your journey, there is an opportunity for you through RCRF to help advance research or be connected to more personalized care!

Visit our websites at rarecancer.org and pattern.org to learn more today.

02/04/2026

Thank you to for this feature of our work at RCRF to promote for patients in honor of

Please visit https://www.illumina.com/company/news-center/feature-articles/world-cancer-day-2026-rare-cancer-research-foundation.html to read!

01/27/2026

This Rare Cancer Roundup focuses on , a rare form of . A special thanks to and for the information found in this video.

Do you or a loved one have MCC? Donate your tissue and/or data today through pattern.org! 💙💚

01/22/2026

If you’ve been diagnosed with a rare form of , your tissue and/or data donation can help fuel research progress! Consent today at pattern.org 💙💚

01/20/2026

Our partnership with TRACER began in June of 2025 and allows us to send tissue samples donated through pattern.org to a team of researchers who are studying over 30 types in total.

Visit pattern.org today and see if your cancer type is eligible for donation to the TRACER Initiative!

01/16/2026

🙌 Please help us welcome our new CEO, Virginia Spitzer!

2026 is here and RCRF will continue to serve researchers, scientists, hospital systems, academic institutions, biostatisticians, and physicians—always with the patient at the center.

Read our latest blog piece from Virginia at the link in our bio and feel free to leave her a warm welcome in the comments below! 💙💚

01/15/2026

This Rare Cancer Roundup focuses on , a that starts in the lining of blood vessels or lymph vessels and can grow and spread quickly.

A special thanks to our partner Angiosarcoma Awareness Inc. for the information found in this video. 💙💚

Want to spread the word? Make sure to and !

01/13/2026

Our research partner is hosting a patient symposium in March that you won’t want to miss!

From guidance on how to navigate diagnosis and treatment to behind-the-scenes looks into the lab, this is a valuable opportunity. Please visit their page to learn more and register today!

01/08/2026

Salma Harfouche (known affectionately as Sal) never knew a time during her childhood and teenage years where she wasn’t afflicted with constant fatigue, exercise intolerance, and episodes where she would struggle to breathe or have vision changes.

It turns out that Sal had an incredibly rare malignant tumor that had been growing her entire life and accounts for less than one-fifth of all cardiac : of the heart. Read more of her story at the link in our bio.

💙💚

01/06/2026

You won’t want to miss this opportunity to join us in this free virtual webinar on January 21!

We’ll be speaking with several patients about their experiences with their diseases and how they worked to navigate the healthcare system and advocate for their care.

Visit the link in our bio to register today! 💙💚

12/31/2025

Did you know there are multiple ways you can give to help accelerate research projects and treatment hope for ?

Visit the link in our bio to donate today in the way that feels best to you, from stock and crypto to one-time or recurring donations! 💚💙 We are so grateful for your support.

Address

703 Foster Street
Durham, NC
27701

Website

http://rarecancer.org/, http://pattern.org/, http://linktr.ee/rarecancerrf

Alerts

Be the first to know and let us send you an email when Rare Cancer Research Foundation posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Practice

Send a message to Rare Cancer Research Foundation:

Want your practice to be the top-listed Clinic in Durham?