04/24/2026
For many disabled people, family caregivers are not just the best option. They are the only option.
Across the country, there is a severe shortage of direct care workers. Families are stepping in to provide complex, around-the-clock care because there is no one else available. And that care is real work. It means helping with medications, bathing, feeding, mobility, communication, and safety, often 24/7. It means change in careers, income, and personal health.
“Calling this ‘fraud’ isn’t just inaccurate. It’s disrespectful to the families holding our care system together,” said MDRC Executive Director Theresa Metzmaker. “Rhetoric like this does real harm. It puts essential supports at risk, especially programs that allow disabled people to live in their homes and communities.”
Caregivers’ time is valuable. Their labor is essential. And disabled people deserve support from the people they trust most. This is not fraud. This is survival.
Advocates for disabled people and those who care for them said they were insulted by Health Secretary Robert F. Kennedy Jr.’s allegations that the programs are "rife with fraud."