Family Voices North Dakota

Family Voices North Dakota We assist families of children and youth with a chronic health condition or disability for the state We are a non-profit 501(c)(3) organization.

Family Voices of ND- "Navigating Crossroads to Hope"
Caring for children with special needs and disabilities can be at times overwhelming, exhausting and complex. Often families and caregivers struggle to find the resources and services their child and family may need. Family Voices of North Dakota is there to help families because we are too are parents who have children/youth and young adults with chronic health, physical, developmental and mental health challenges. Family Voices of North Dakota (FVND) is a statewide health information and education center for families who have children with a special health need or disability from birth to age 26 and for the professionals that serve them. A special health care need is a broad definition and includes: disability, chronic illness and physical or mental health condition. We are a free service to families which operates on grants, fundraising and private donations. When families are faced with a prenatal, at birth or later diagnosis, FVND assures that families receive informational and emotional support in caring for their child with a chronic illness or disability. Nearly 20,000 children in our state have some kind of health care need and over 40 percent of these children have a health condition that limits their play and school activities. That means 1 in 5 families within our area have children living with physical, mental or emotional disabilities; others live with a chronic illness and many present a brief, but life-threatening medical problem. Family Voices of North Dakota is available in all (8) regions across the state and the communities we serve help families become better parents, advocates, professionals and educators. When we all work together we can make an impact in the lives of families and their children. Parents become leaders, communities become inclusive and our children are embraced.

01/29/2026

Our team is excited to host the 2026 Newborn Screening Conference on April 22, in Bismarck. This in-person conference is for physicians, other health care providers, audiologists, nurses, social workers, midwives, early intervention workers, parents and family support organizations. SAVE THE DATE and check for updates at hhs.nd.gov/newborn-screening/conference. Hope to see you there!

01/29/2026

We cannot embed self-love into our children ❤️ but we can give them the space to do it independently, because thats how strong they are!
From

01/29/2026

🖐️ Your Go-To Guide for Fine Motor Skills Development! 🖐️

Introducing The Basics of Fine Motor Skills by Heather Greutman, COTA – a comprehensive overview designed to help parents, teachers, and therapists understand fine motor development in children of all ages. 🌟

This 70-page digital guide covers everything you need to know about fine motor skills, including:

The importance of fine motor skills
Key early skills needed for fine motor development
The role of gross motor, visual motor, and sensory processing skills
Developmental milestones and red flags 🚩
How fine motor skills relate to handwriting
Tools, games, and activity ideas by skill and age to encourage growth
Whether you’re working with toddlers, preschoolers, or older kids, this resource provides age-appropriate activities to support fine motor development.

📄 Available for immediate download, the Basics of Fine Motor Skills is the perfect resource for helping your students or children thrive! Purchase your copy today and start building strong fine motor skills!

01/29/2026

You are replaceable.

It’s true.

You are replaceable in all areas of your life.

Except.

In your home and in your closest relationships.

If you were to leave your workplace tomorrow, the office would move on. Eventually, with someone new.

But you are not replaceable to those who love you.

Maybe you are going after your new year goals right now- do it. Go after them. &- do so with clear eyes. Do so knowing your work is important. &- it is not what’s most important.

Prioritize accordingly.

Invest your time and your heart wisely.

01/29/2026

Function is freedom.

The focus should always be on function over perfection ✨

Every child deserves tools that work for them — not just what looks ideal on paper. 📚🛠️

Real success happens when we focus on what helps a child:
✅ Participate
✅ Engage
✅ Grow
..not when we chase a perfect standard that doesn’t reflect their real-life needs. 🚫

Let’s celebrate progress, not perfection. 💪🌱

01/29/2026

Hope you can join us!

01/28/2026

North Dakotans, we want your input!
HHS is seeking public comment on a proposed amendment to the state’s Medicaid IID/DD HCBS waiver. The waiver offers a range of in-home and community-based services that support people with intellectual and developmental disabilities in the least restrictive setting

Comment period: Jan. 26-Feb. 25

The waiver amendment application with the proposed changes is available at hhs.nd.gov/waivers
Your voice helps shape services that support individuals and families across North Dakota. News release: hhsnd.site/xgd

01/28/2026

We want to hear from you! HHS is seeking public comment on a five-year renewal of the state’s Medicaid waiver for medically fragile children. The waiver supports families by allowing children who are medically fragile to received needed care at home instead of a nursing home or hospital.

Comment period: Jan. 28-Feb. 26

The renewal is available at hhs.nd.gov/waivers

Full news release: https://hhsnd.site/nr-medicaid-waiver-medically-fragile-children

01/28/2026

Address

Non Profit At 312 2nd Avenue W/PO Box 163
Edgeley, ND
58433

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Our Story

Family Voices of ND- "Navigating Crossroads to Hope"

Caring for children with special needs and disabilities can be at times overwhelming, exhausting and complex. Often families and caregivers struggle to find the resources and services their child and family may need. Family Voices of North Dakota is there to help families because we are too are parents who have children/youth and young adults with chronic health, physical, developmental and mental health challenges.

Family Voices of North Dakota (FVND) is a statewide health information and education center for families who have children with a special health need or disability from birth to age 26 and for the professionals that serve them. A special health care need is a broad definition and includes: disability, chronic illness and physical or mental health condition. We are a free service to families which operates on grants, fundraising and private donations. We are a non-profit 501(c)(3) organization.

When families are faced with a prenatal, at birth or later diagnosis, FVND assures that families receive informational and emotional support in caring for their child with a chronic illness or disability. Nearly 20,000 children in our state have some kind of health care need and over 40 percent of these children have a health condition that limits their play and school activities. That means 1 in 5 families within our area have children living with physical, mental or emotional disabilities; others live with a chronic illness and many present a brief, but life-threatening medical problem.