02/19/2026
This April, join the DBI CHARGE Network for a webinar with Dr. Kim Blake and Claudia Junghans. Find the registration link below.
DBI CHARGE Network invites its members to the following webinar on Friday, 17 April, 2026. We are very excited to present Dr. Kim Blake and Claudia Junghans!
Adult Medical Issues in CHARGE Syndrome
Insights, Stories and Developing a Comprehensive Care Checklist
Claudia Junghans, 1st president of the German CHARGE Group and mother of a 21 year-old son with CHARGE.
Dr. Kim Blake, Professor of Pediatrics at Dalhousie University, will draw on clinical expertise and personal experience.
As the population of individuals with CHARGE syndrome ages, a distinct set of medical challenges has emerged, necessitating tailored care approaches for adults. This webinar will highlight prevalent health issues in adults with CHARGE syndrome. Cardiovascular issues, including arrhythmias and postural orthostatic tachycardia syndrome (POTS), bone health problems, including scoliosis, and bone mineral density. Hormone replacement, exercise, and mental health wellbeing. Other conditions that impact quality of life. Through real-life stories from adults with CHARGE, we aim to underscore the importance of proactive management and prevention strategies, laying the groundwork for an adult-focused CHARGE medical checklist.
Additional info
It should be noted that everyone is welcome to participate (e.g., individuals with CHARGE syndrome, fathers, mothers, professionals, researchers, others who are interested).
Participants will need to select their preferred language when signing up for the webinar, if your captioning provider offers this option. (The presentation is in English).
After the webinar it is possible to ask the presenter questions.
The webinar will be recorded and shared on the DbI CHARGE Network webpage and DbI YouTube channel.
Friday, 17 April 2026
Central European Time 15.00-16.30h (9:00-10:30am EST)
Presenter: Kim Blake and Claudia Junghans
Facilitators: Lourdes Quintana Baez, Heather Colson-Osborne and Vimla Ramrakhiani
Register in advance for this webinar.
For more information, see the registration page: https://us06web.zoom.us/webinar/register/WN_A2s6OSywQcqR8eAK0lBFVg