12/04/2019
Honored to support the Rare Disease Legislative Advocates’ 8th Annual RareVoice Awards tonight in Washington, DC. This event recognizes & celebrates the tireless work of advocates in rare disease communities across the country. RDLA is a program of the EveryLife Foundation for Rare Diseases.
The RareVoice Awards is an annual celebration to honor advocates who give rare disease patients a voice on Capitol Hill and in state government. Patient advocates, industry executives, and Congressional and government agency staff gather to honor these outstanding advocates in the rare disease commu...