CT Endo Warriors

15/03/2026

This is an what we call “Endo Belly”. I had stage 4 deep infiltrating Endo with multiple organ involvement and a bowel obstruction when I was properly diagnosed after 24 years of debilitating pain. I still live in pain from the multiple autoimmune diseases I developed from long term inflammation and nervous system deregulating. I have nerve damage, bladder and bowel dysfunction. PTSD, anxiety and depression. Late diagnosed ADHD and was put into surgical menopause after my o***y turned black. 💛

14/03/2026

Chronic pain IS its own trauma. To begin to understand how chronic pain impacts a human, you NEED to understand how the nervous system responds to ongoing, inescapable stress.

Managing pain and managing trauma have to go hand in hand to manage EITHER.

12/03/2026

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11/03/2026

Gynecologist have to fight for OR time and often they have their schedules changed. This has a major impact on the patient as well. There’s so many layers to this disease and the hospitals and insurance companies have created these barriers.

10/03/2026

What we are asking for! A CMS Insurance code and coverage for endo as well as ADA/FMLA so patients get the modifications they need in school and the work place.

10/03/2026

.advocates Endo on the Hill! Up Next meeting with Connecticut senators! 💛

10/03/2026

Endo & Adeno Awareness! 💛

07/03/2026

Words matter. What you say to a patient can stick with them and do damage to how they advocate for themselves. To be told that I had the insides of a 75 year old woman made me feel that my life was going to be cut short. It’s hard to not question your lifespan and longevity when you have a chronic illness. 💛 Give yourself grace and love yourself.

06/03/2026

Tabling with resources, meet others with Endo, talk with providers! 💛

05/03/2026

10 years of being followed by an oncologist. I had the diagnosis, they just knew nothing about endometriosis 💛

05/03/2026