COTA for Addi’s Journey

COTA for Addi’s Journey Raising funds for COTA for Addi’s Journey.

Addi is officially 6 months post liver transplant and just about 16 months old — and somehow, she just keeps amazing us ...
04/28/2026

Addi is officially 6 months post liver transplant and just about 16 months old — and somehow, she just keeps amazing us more every single day. 💚

Our sweet girl is on the move nonstop — walking, climbing, exploring everything she can get her hands on, and laughing at just about anything. Her personality is really shining through lately, especially when she flashes that big cheesy grin for pictures… extra big when she knows she’s doing something she shouldn’t be. She keeps us all on our toes in the best way.

One of the most surprising (and cutest!) updates — her hair has turned red! After always being brown, this little change has caught everyone off guard and just adds even more to what makes Addi so uniquely her.

She absolutely loves being outside and would stay out there all day if she could. Whether it’s fresh air, new things to look at, or just being on the move, that’s her happy place. And through it all, one of the most special things to watch is the bond she shares with her twin sister, Lainee. She loves to cuddle her, be near her, and the two of them continue to grow side by side through every high and low. It’s something truly special.

If you didn’t know her story, you would never guess that Addi is a liver transplant warrior. Her energy, her appetite, and her joyful spirit are just incredible. She is thriving in every sense of the word, and it’s nothing short of amazing to witness.

Her doctors continue to be extremely impressed with her progress. Since surgery, they’ve been able to significantly reduce her medications, which is a huge milestone. As long as her bloodwork continues to stay strong (and it has been!), they’ll keep working toward lowering them even more — something we are so hopeful and grateful for.

Mom, Dad, sissy, and even the pups couldn’t be more proud. Addi is so deeply loved, and every single day she reminds us just how strong, resilient, and full of life she is. She is truly a little miracle, and we are so thankful to watch her grow, thrive, and shine. 💚

Thank you to everyone who has followed her journey and donated to COTA for Addi’s Journey. Your love and support has meant more to us through this process than you could ever imagine. Keep an eye out for more exciting fundraisers to come!!!

🚨🚨New fundraiser alert!! 🚨🚨 I’m so excited to announce we have added another company to our bottle return fundraiser! Bo...
04/22/2026

🚨🚨New fundraiser alert!! 🚨🚨

I’m so excited to announce we have added another company to our bottle return fundraiser!

Bottle & Can Retrieval Centers have locations in the Albany, Rochester and Buffalo areas!! Please check out the second picture for each exact locations.

Participating is easy! Any time you have cans to return, bring them to one of the locations and tell them they’re for Children’s Organ Transplant Association for Addi’s Journey. This is an ongoing fundraiser with no end date so keep those bottles comin!!

02/03/2026

🎉🎉 BOOZE COOLER DRAWING WINNER ANNOUNCEMENT! 🎉🎉🎉

Congratulations Andrea Carroll!!

Thank you to everyone who donated!

02/02/2026

Join us tonight 7pm on FB LIVE for the Booze Cooler Drawing!

Thank you to everyone who made today’s Drag Bingo event such a huge success!We are beyond grateful for the nearly 80 ama...
02/02/2026

Thank you to everyone who made today’s Drag Bingo event such a huge success!

We are beyond grateful for the nearly 80 amazing people who showed up to support this cause. A huge thank you to Divas of Drag Entertainment, Aggy Dune, and Comedy at the Carlson for bringing the fun, laughs, and incredible energy that made the day so special.

Because of this incredible community, we raised just over $1,000 for COTA for Addi’s Journey 🎉🥂The love and support never cease to amaze us.

Please keep sharing the love and be sure to follow our page—there’s more to come! 💫

🔔‼️ BOOZE COOLER DRAWING ‼️🔔$20 earns you one entry. Get your entry in by February 1!!Over a $300 value!!Cash, check, cr...
01/14/2026

🔔‼️ BOOZE COOLER DRAWING ‼️🔔

$20 earns you one entry.

Get your entry in by February 1!!

Over a $300 value!!

Cash, check, credit card or direct donation on the website is accepted. Please message me to verify your entry.

Cooler is in Rochester area.



*one entry per person, 21+ only

💚 One whole year of Addison “Addi” Sage Wall 💚Today we celebrate ONE YEAR of our tiny-but-mighty girl — and wow, what a ...
01/11/2026

💚 One whole year of Addison “Addi” Sage Wall 💚

Today we celebrate ONE YEAR of our tiny-but-mighty girl — and wow, what a year it’s been. Addi came into this world six weeks early, showed the NICU who’s boss, took on a biliary atresia diagnosis, rocked a liver transplant, and somehow still found time to smile through it all. Seriously… who gave this baby her warrior license so early?!

Despite more hospital bracelets than most adults and a medical journey that would slow anyone down, Addi decided that crawling, pulling herself up on everything in sight, testing out a few first steps, and saying “hi,” “mama,” and “dada” were all non-negotiable. Oh — and she is absolutely loving food, which feels like its own little miracle worth celebrating. 🍓🥑🍰

Right by her side through every high and every low has been her built-in bestie, twin sister Lainee. From hospital days to home snuggles, Lainee has been there for it all — and Addi has shown her gratitude in the most sibling-appropriate way possible: by pushing Lainee’s buttons whenever she gets the chance. Some things are just instinct. 😉💞

While there are still plenty of doctor appointments on the calendar, the good news keeps rolling in. Overall, the doctors are incredibly happy with how Addi is doing — she’s thriving, her liver numbers are great, and she continues to amaze everyone who cares for her.

The strength, grit, and joy this little girl carries is nothing short of a miracle. She reminds us daily that courage can come in the tiniest packages — often with chubby cheeks, a mischievous smile, and zero interest in taking life slow.

Happy First Birthday, Addi. You are proof that miracles are real, warriors can be small, and one year can hold more love, hope, and strength than we ever thought possible. 🎂💚



COTA.org/cotaforaddisjourney

Biliary Atresia is something none of us heard about before sweet Addi was diagnosed. For those interested to know a litt...
01/09/2026

Biliary Atresia is something none of us heard about before sweet Addi was diagnosed. For those interested to know a little more, BARE Inc. explains it in this post.

💚 Addi Turns ONE in ten days! 💚January 11 marks a very special day—Addi’s birthday. This year, to honor her incredible j...
01/02/2026

💚 Addi Turns ONE in ten days! 💚

January 11 marks a very special day—Addi’s birthday. This year, to honor her incredible journey and celebrate how far she’s come, we’re inviting our amazing community to celebrate with us by donating.

In honor of Addi’s birth day, consider donating $11 to COTA for Addi’s Journey. It’s a small gesture that makes a big impact and helps support transplant-related expenses that continue long after surgery.

Thank you for loving Addi, cheering her on, and standing with her family every step of the way. This little girl is so deeply surrounded by love—and it shows. 💚🎂

🎄💚 Merry Christmas from Addi & Her Family 💚🎄This Christmas looks a little different than what Addi’s family once imagine...
12/25/2025

🎄💚 Merry Christmas from Addi & Her Family 💚🎄

This Christmas looks a little different than what Addi’s family once imagined for their first holiday season—but their hearts are full all the same. They are incredibly grateful and excited to be spending Christmas at home, together, surrounded by love. Through it all, these girls continue to amaze Sarah and Buddy every single day.

Addi is getting stronger by the minute—she’s now saying “hi” and even pulling herself up to stand, reminding everyone just how mighty she truly is. Lainee is all smiles, soaking in the magic of the season and finding wonder in everything around her (especially dog toys 🐾). Their joy, resilience, and sweet spirits continue to surprise and inspire all of us.

From our hearts to yours, we wish you and your family a very Merry Christmas filled with love, hope, and simple moments that mean everything. 🎄✨

Thank you to everyone who helped make Addi’s Rockin’ Christmas Party such a huge success! We are so grateful for the lov...
12/17/2025

Thank you to everyone who helped make Addi’s Rockin’ Christmas Party such a huge success! We are so grateful for the love, time, and support that made this day so special. And if you missed it—don’t worry! Casa Larga plans to make this an annual event, and we can’t wait to rock the holidays together again next year. 🎄🎅

✨ Exciting News! Addi and Her Family Are HOME! ✨We are absolutely thrilled to share that Addi and her family are officia...
12/11/2025

✨ Exciting News! Addi and Her Family Are HOME! ✨

We are absolutely thrilled to share that Addi and her family are officially back home in Gansevoort! After another strong week of bloodwork results, her care team gave them the green light to leave NYC — a moment they’ve been praying for since the day this journey began.

While this doesn’t mean doctor visits and blood tests are behind them, being able to continue this next phase of healing from the comfort of their own home is a blessing beyond words. There’s nothing quite like familiar walls, your own bed, and the peaceful routine of home.

And perhaps the happiest reunion of all… their beloved pups! They were over the moon to have their people back under one roof again, their tails telling the whole story.

Thank you to everyone who has held this sweet family in your hearts. Home is a big step — and such a hopeful one — and your continued prayers and support mean everything. 💚🏡✨

Address

142 Fairport Village Landing
Fairport, NY
14450

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