04/03/2026
The Maine CDC is seeking adults (18+) living with a rare disease, as well as parents or guardians of children with a rare disease, to join the Rare Disease Advisory Council (RDAC).
Help shape priorities and inform recommendations on access to care, diagnosis, and treatment in Maine. Applicants must be Maine residents.
Apply: https://forms.office.com/g/NG2RaHgGcq
Questions? julia.goldman-hasbun@maine.gov