02/12/2026
Black American women are disproportionately more likely to care for family members living with Alzheimer’s disease and related dementias. Yet their lived experiences are often underrepresented in research, policy, and care systems.
This study, published in the Journal of Gerontological Nursing, centers their voices.
Takeaway 1️⃣: Caregiving is rooted in deep family obligation.
For many caregivers, caring for a loved one is a responsibility shaped by culture, love, and duty. Often, this commitment comes at the cost of caregivers’ own physical and emotional health.
Takeaway 2️⃣: Support systems are often inconsistent, inaccessible, or culturally misaligned.
Caregivers described gaps in affordable, reliable, and culturally appropriate support—especially for middle-income families who fall between eligibility lines. This results in isolation, stress, and burnout.
Takeaway 3️⃣: Community, faith, and shared experiences are essential coping tools.
Caregivers relied on social support groups, spirituality, and community connections to cope with the demands of caregiving.
When caregivers aren’t supported, everyone is affected. Culturally responsive care, consistent resources, and community-based support are essential.
Full article: https://journals.healio.com/doi/10.3928/00989134-20230512-03
