Boston's Brigade & Layla Strong

Boston's Brigade & Layla Strong Follow along on Boston's journey living with a congenital heart defect. And Layla's with leukemia

04/02/2026

Well still no luck on getting Bostons sedated echo done. Last night we went to Cincinnati and stayed at the Ronald McDonald house. This morning we got a call that his cardiologist called out sick and wanted to know if we still wanted to proceed with the day or reschedule. I told her we would still do it since it was just a half hour before his appointment for the echo, we would just see whoever was in clinic for the day. We get over to his echo and they're taking his height and weight, and he coughed. And a cough that was moving things around, not just clearing his throat. I went 😬, his nurse went 😬. We took him in and she said let's get his vitals and I'll talk to the doc. I told her that was literally the first one he's done. I've been listening since his one last month was cancelled because he was sick. She took his vitals and his oxygen was down below baseline. I was talking myself down from a full blown panic attack, I figured we were about to get admitted. The doc and anesthesiologist came in. They weren't super concerned with his stats being low, but just said it lead them more towards leaning to not doing the echo today. She said sometimes the risk is so low that they go ahead anyways but they weren't liking this whole set up, but said if I was adamant about getting it done today they would meet and come up with a plan. I told her I was not adamant. We would just come back, I didn't like playing that gamble. I would never forgive myself if he had complications and they could have been avoided by simply coming back another day. They redid his vitals and they were right where they normally are at home. They assumed since his nurse put the pulse ox on and then put his sock over it, she probably didn't actually have it on right anymore. If it was reading part of his toe and his sock it's obviously not accurate. They watched it for several minutes while we finished talking and it stayed strong so everyone was feeling much better. So we'll try again in a month and see how it goes 🤞

Yesterday Layla and my mom dropped off another set of bags at Columbus children's. Layla also put these together all by ...
03/29/2026

Yesterday Layla and my mom dropped off another set of bags at Columbus children's. Layla also put these together all by herself! She did a great job

Got to check out these 2 on opening night last night. What a show!
03/28/2026

Got to check out these 2 on opening night last night. What a show!

Last night I watched my oldest 2 perform in the school play, the little mermaid... Yes that is Graysen under that big be...
03/26/2026

Last night I watched my oldest 2 perform in the school play, the little mermaid... Yes that is Graysen under that big beard 😉. What an awesome show! Graysen is Ariel's father, king Triton. Auburn is in the chorus and plays several different parts, including several dancing parts. She was a sailor, a tap dancing seagull, part of the kitchen crew, a jellyfish, and the water that brings Ariel to the surface when she's human. They both did so great. I can't to watch them again on Friday

Last weekend we spent our weekend watching the girls compete in their first competition of the season. Saturday Layla da...
03/25/2026

Last weekend we spent our weekend watching the girls compete in their first competition of the season. Saturday Layla danced, and then Sunday both girls did production, and then auburn danced Sunday afternoon. Auburn and I forgot to remind each other to get pictures in her costumes like I did for Layla 😔. Hopefully next time I will remember. Ellie also decided she can't wait to start her dance days, and jumped right up there for a picture

Layla goes to Cincinnati this week for a check up, and she will deliver these 8 bags to them. She picked out this round ...
03/18/2026

Layla goes to Cincinnati this week for a check up, and she will deliver these 8 bags to them. She picked out this round for both hospitals by herself. I might be biased, but I think she did a great job. She was so intentional with every single item she picked out. Lots of them follow a color theme, or every item in the bag is related. She did great!

While we stayed at my parents over the weekend while we were out of power, Layla decided to make the most out of it and ...
03/16/2026

While we stayed at my parents over the weekend while we were out of power, Layla decided to make the most out of it and do some baking with Grandpa

The whole town has been out of power since noon. Thankfully my parents had power, so we came out here around 4. Since po...
03/14/2026

The whole town has been out of power since noon. Thankfully my parents had power, so we came out here around 4. Since power will be out overnight, it is a sleepover at grandma and Grandpa's!!

03/12/2026

Have I mentioned lately that this girl absolutely blows me away. First year back in class and she's gaining skills that some kids take years to master. I've been spotting her on them at home, and she just happened to master it the week I get a sitter and went to watch class

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