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Boston's Brigade & Layla Strong

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Fort Jennings, OH
Boston's Brigade & Layla Strong

Follow along on Boston's journey living with a congenital heart defect. And Layla's with leukemia

01/28/2026

This is peak living ❤️

01/23/2026

Today I took Layla to her oncology appointment, and we took 8 more bags with us. Layla carefully picked each of these bags all on her own! I love hearing her talk through the thought and intention behind each bag!

01/16/2026

We were supposed to come down yesterday for her monthly oncology appointment, and then stay the night and do her neuropsych testing today. The snow messed up our plans, so we didn't make her oncology appointment. But we did leave last night after AJ got off work and came down for her testing.
The neuropsych testing will show us if there are any deficits in her thinking or memory caused by her treatment. She's considered in the highest risk because on top of the chemo, she also did radiation to her skull. We should have results in a couple weeks and we will review with this team to decide next steps.
We did get to stay at Ronald McDonald house, and of course had to bring some pop tabs down. We weighed them and it was almost 19 pounds!
Next Thursday we will have to go down for her oncology visit. And then by luck, the following week is Bostons 6 month cardiology visit. Lucky me that I get to go 3 weeks in a row 🙄

12/26/2025

My godmother Arlene and I spent a lot of time together when I was younger. She sadly passed away when I was in high school. Layla carries her name as her middle name. As soon as we got home from the hospital I planted a yellow rose bush outside of Layla's window (they were her favorite). Now Layla always looks for yellow roses everywhere we go. So imagine our surprise when a pack of earrings I got her for Christmas happened to have a pair of yellow rose earrings in them. I bought them online and didn't even look at what was really in them. Layla picked them out right away and said it was so nice of her to come visit our house on Christmas 😭. Shes already wearing them, and I have a feeling will be for quite some time

12/25/2025

What a busy day! We baked cookies, then got the house picked up for Aj's friend Brandon to come over. We hung out with him and the kids opened presents. Then we decorated our cookies. Ate some supper, and then sat down to a Christmas movie before bed. Followed by getting Santa's tray ready. Now hopefully an early bedtime, and more fun tomorrow 🎄🎅🎁

Merry Christmas to everyone!!

12/24/2025

The other week the flu hit our house. It hit the babies the hardest, and the proof of that is my poor ring. I used my carpet and handheld shampooers so much that my ring on my right hand got bent 🫣. I'm hoping my dad can bend it back to its original shape, because AJ gave me this ring when we were first dating.

12/22/2025

3 years ago today this tough cookie spent his day in the OR having open heart surgery. As always, we celebrated with a heart pizza thanks to my sister in law at Jack's pizza.. and big brother who made it while working tonight 😉.
We spent the evening celebrating Boston, and doing whatever he wanted to do. It was lots of playdoh, and some of my least favorite shows on YouTube that I say no to sometimes.
You look at this sweet face and see a normal toddler. But I look at this face and see a fighter, who's endured more in 3 years than most people in a lifetime. CHD life is tough, but not as tough as Boston is ❤️🩵

12/19/2025

Yesterday Layla was in Cincinnati for her monthly labs. Another organization, who's mission is to distribute American girl dolls to cancer patients, sent us 25 dolls to bring to Cincinnati. Hopefully these help bring a little joy to patients spending the holidays in the hospital. I love seeing Laylas love of giving back to her home away from home ♥️

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Fort Jennings, OH
45844

Telephone

+14192042944

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