Team Shane

Team Shane Hey everyone! I finally got around to making a page for updates and pictures for Shane Wolf Siegeler!

Thank you Team Shane! ♥️We were able to bless Shane’s home unit with enough Roku sticks for every room!If you don’t see ...
12/20/2025

Thank you Team Shane! ♥️
We were able to bless Shane’s home unit with enough Roku sticks for every room!
If you don’t see your gift tag, it’s because we had enough to bless the Oncology floor and the PICU as well!
20 Disney+ gift cards and stickers for the patients!

Merry Christmas and God bless! 🙏🏼♥️🎄

Go Fly High on that Mountain, Aunt Dixie. ♥️Thank you for your everlasting gift to the world of organ donation. 🙏🏼-Shane
12/13/2025

Go Fly High on that Mountain, Aunt Dixie. ♥️
Thank you for your everlasting gift to the world of organ donation. 🙏🏼
-Shane

EDIT: Thank you all for the support! We have reached our goal and then some! There will be enough gift cards for the yea...
12/07/2025

EDIT: Thank you all for the support! We have reached our goal and then some! There will be enough gift cards for the year!♥️
God bless all of you & may you all have Happy Holidays!

Good morning friends and family!
Happy Sunday! 🙏🏼♥️

We are still inpatient, but out of the PICU & in our “home away from home” unit here at AFCH-UWKids Hospital. ♥️

This holiday season, Shane and I are wanting to bless others because we were blessed with his Make-A-Wish!
We asked our nurse friends what would help families that have long stays here like us?
They said they are hoping to get more Roku sticks for the rooms because they don’t have enough for everyone.
I also mentioned about getting some Disney+ gift cards for kids who may be here without a parent present
So!
I am asking here, if you have it in your heart to donate $20 for a Roku Stick, or $25 for a Disney+ Gift Card, I would love to gift it to the families staying at the Children’s Hospital here in Madison.
I have included the prices for each at the local Walmart, I have both CashApp and Venmo.
I posted my Venmo in the comments! 👇🏼

Please let me know if you have questions!
God bless yall! ♥️🎄🎅🏼✝️

Happy Birthday Shance!We hope you had a great day & get all of the pie you can handle tomorrow!♥️
11/27/2025

Happy Birthday Shance!
We hope you had a great day & get all of the pie you can handle tomorrow!
♥️

To all of our lovely friends & family,Thank you for your patience and unwavering support. To say the last three weeks ha...
11/27/2025

To all of our lovely friends & family,
Thank you for your patience and unwavering support.

To say the last three weeks has been a whirlwind, is an understatement.

On 11/03, Shane underwent surgery to fix his airway so he could be trach free, everything looked great, we were discharged a couple weeks later.

On 11/18, I brought Shane back to the ER at UW because he was breathing a bit harder and seemed off.
We found out the next day that Shane’s graft was trying to fail. (The piece used to fix his airway)
They tried to fix it and said we will see how he does until Friday. He did not do great.
They went in Friday and found that the graft had been disintegrating and left a hole in his trachea.
With that, they decided to put his trach back into place and put a stent above it with hopes of saving the work they did. This will be in place for roughly 6 months.
There are new challenges and obstacles, BUT nothing Shane and I cannot handle.
We believe in the power of prayer and God is going to heal my son.

Thank you everyone for the love and encouragement, it gets me through the slow days.
♥️🙏🏼♥️🙏🏼

11/19/2025

Prayer for Shane’s airway please.
We need a miracle.
I know God will provide 🙏🏼
I’ll update as I get time. ♥️

When you go, because eventually we all do, why not be an organ donor? Why not save someone else’s life? A child who hasn...
11/19/2025

When you go, because eventually we all do, why not be an organ donor? Why not save someone else’s life? A child who hasn’t had the opportunity to live?

I won’t get on a soap box, BUT Shane is one of those liver numbers and today, on our one year anniversary of his liver transplant, I celebrate his donor. I don’t know them, I can’t send a card, but I can pray that they know how grateful I am for their selfless sacrifice. ♥️

11/17/2025

Back story:
Having a medically compromised child makes you very reluctant to go to new places, see new doctors, nurses. Once you get a routine, the fear is you’ll never get it back and these new people couldn’t love your child like their previous medical team.
That was until I was visiting family last year and my whole world changed.
I cannot praise UW Health Kids enough.
Shane sees:
Transplant
GI
Pulmonology
Endocrinology
Speech
Hematology/Oncology
ENT
Audiology

There has been no better care than the care we receive.
We have been fortunate to have amazing doctors, residents, fellows, & THE BEST NURSES.

These people made me feel like home, even though it was a 1,000 miles away. ♥️

God blessed us with UWHealth. 🙏🏼

No news is good news, right?I’m sorry I haven’t updated as much as I’d like to, we’ve been on a journey of weaning sedat...
11/14/2025

No news is good news, right?
I’m sorry I haven’t updated as much as I’d like to, we’ve been on a journey of weaning sedation meds and that my friends was NOT easy 😅

We have one med left to wean & then we are home free! 👏🏼🙌🏼

Shane is slowly getting back to his normal self, sleeping for 4 1/2 days does a number.
We are working diligently with PT/OT to get back to climbing and our usual activities.

We praise God for this wonderful miracle that is Shane & pray that he can now be a (almost) 3 year old full of life and no limits. ♥️

Love y’all!

11/09/2025

Hey y’all.
Shane woke up today with a very high fever.
We aren’t sure if he contracted something or if he is showing more signs of withdrawal.

If you could pray for him, I would be forever grateful.
This has been a tough week and we are ready for him to be back to his spunky self.

♥️🙏🏼

11/07/2025

Update:
Shane is doing well. They checked his surgery site today and everything is healing. They took the breathing tube out and he is on an oxygen cannula. He doesn’t seem to enjoy it. 😢
Brittany and Shance are having a hard time getting him to stay calm, so please understand they want to update as much as possible but they are very busy keeping Shane relaxed.

Last night, I watched midweek service at Power Church and it was about getting rid of the old to make space for the NEW!...
11/06/2025

Last night, I watched midweek service at Power Church and it was about getting rid of the old to make space for the NEW!
Leviticus 26:10 says- You will still be eating last year’s harvest when you will have to move it out for this year’s new harvest.
It really spoke to me!
Going into this I was holding on to Shane’s tracheostomy and him having it. It’s been a crutch for so many things he’s had done in the past. It’s been helpful to have in scary situations.
It has literally been a part of my everyday life since May of 2023.
It saved his life.
While I know that everyone around me has been very excited for this procedure to get it out, I’ve been holding on to my feelings of grievance for this darn tube.
I even made a joke to the doctor, do you teach intubation classes? She laughed and said NO Brittany! You aren’t going to need that anymore!

So, after hearing the sermon last night, I realized I was holding on to an old crutch. Something that had always been there, but in order for God to put new things in Shane’s life I need to release the old to make room.

So today, I will stop staring at this trach that is no longer inside of his neck and release it.
I thought about throwing it away, but I learned children in Mexico have a shortage of trach’s, so I am going to figure out how to send these out to them!

Matthew 9:17 You cannot put new wine into old wine skins, they will burst. You have to use a new wine skin. ♥️

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Fort Worth, TX

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